Chronic Pain Whatever the cause, support for managing long term or intractable pain.


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Old 05-18-2015, 01:19 PM #1
guitarguy guitarguy is offline
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I have never had pain issues prior to the ulnar nerve surgery.
I have had plenty of other surgeries for injuries and sinuses, but never a lasting pain issue.
My pain management doctor doesn't think it is CRPS cause it is not progressing, I don't have swelling and some other symptoms so he continues to say it is pain from MGUS.
I know like it was yesterday that my symptoms started within a week of my elbow surgery including the foot pain and discoloration.

I was treated for Lyme disease and confections to rule that out.
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DejaVu (07-22-2015)
Old 07-22-2015, 11:57 PM #2
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Hi guitar guy,

I am sorry for all you have been through.

I had a subcutaneous ulnar nerve transposition. I think that's the surgery you also had?

Weird things had started to happen after the surgery.
Pain was spreading everywhere. BOTH hands and arms and my right foot were a mottled purple color and were swelling. I did have prior pain issues, yet this made it all worse. 3 doctors gave opinions and were concerned I was getting CRPS/RSD.

They had instructed me to desensitize my limbs, using sand paper or other similar tools, along with massage. I worked on my hands and feet with various textured clothes, with various levels of pan scrubbers, with a very soft brush, etc. In time, the mottling and swelling had reversed. Lucky me.

Even so, things have never been the same, The severe swelling started in my feet and the pain has been just excruciating. Another M.D. then told me I have RSD in my feet. I really don't know.

I have other conditions which can inflame feet and all limbs, so it gets confusing in my case.

I'd wanted to let you know the surgery I had for ulnar nerve entrapment had also started some kind of spreading pain and swelling, mottling, etc.

I hope you can find answers and relief!

To Our Healing!
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Old 12-09-2015, 06:24 PM #3
guitarguy guitarguy is offline
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Does anyone know if taking an herb like Kratom can then cause a medication to stop working? I just switched back to Nucynta today after taking nothing but Kratom for months and the max of tramadol for a few weeks. First dose of nucynta and the pain is still hell!
Maybe Tapentatol has to build up?

...second dose and still nothing. In the past it always worked right away!

Last edited by guitarguy; 12-09-2015 at 08:06 PM.
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Old 11-26-2017, 02:52 AM #4
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