NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Chronic Pain (https://www.neurotalk.org/chronic-pain/)
-   -   anyone else have this?? (https://www.neurotalk.org/chronic-pain/223429-else.html)

DejaVu 07-25-2015 04:58 PM

Hi Alberta,

It took probably 6 years before my initial symptoms of PN and the testing showed neuropathy. I had skin punch biopsies, EMGs, NCVs and other sensory testing. I have had most of my neurological testing at a Neurology Division of a teaching medical school. This has, at times, enabled testing which was not then yet available (or never available) to the public-at-large.

My neurologist has told me they don't do skin punch biopsies anymore. I was surprised. He says they can pick up more info via blood work now.

I hope your symptoms go away! :)

Some meds and other exposures can cause periodic neuropathy flares, etc. You have probably checked this all out on the PN forum.

I am not qualified to interpret any lab results and/or other testing results.
No need to take a picture of your results.

I'd suggest you learn all you can about centralized hypersensitivity. Learn about the role of excitotoxins in amplifying pain, and more. (Search here. MrsD mentions excitotoxins a lot.) Also learn about PN and be sure you have eradicated all known potential drug and/or environmental causes, etc.

I hope you find relief, and soon! :)

To our Healing,
DejaVu

Albertakewl 07-25-2015 11:18 PM

Quote:

Originally Posted by DejaVu (Post 1157717)
Hi Alberta,

It took probably 6 years before my initial symptoms of PN and the testing showed neuropathy. I had skin punch biopsies, EMGs, NCVs and other sensory testing. I have had most of my neurological testing at a Neurology Division of a teaching medical school. This has, at times, enabled testing which was not then yet available (or never available) to the public-at-large.

My neurologist has told me they don't do skin punch biopsies anymore. I was surprised. He says they can pick up more info via blood work now.

I hope your symptoms go away! :)

Some meds and other exposures can cause periodic neuropathy flares, etc. You have probably checked this all out on the PN forum.

I am not qualified to interpret any lab results and/or other testing results.
No need to take a picture of your results.

I'd suggest you learn all you can about centralized hypersensitivity. Learn about the role of excitotoxins in amplifying pain, and more. (Search here. MrsD mentions excitotoxins a lot.) Also learn about PN and be sure you have eradicated all known potential drug and/or environmental causes, etc.

I hope you find relief, and soon! :)

To our Healing,
DejaVu


What is excitotoxins? And were your reflexes normal for the 6 years
Before they diagnosed you with Pn?

DejaVu 07-29-2015 09:47 PM

Excitotoxins, etc.
 
Hi Alberta,

Please type "excitotoxins" into the search engine on this site.
(The blue bar placed near the top of the page contains various words/terms. One is "search." Click on that and enter "excitotoxins." The search should bring you info on excitoxins, as they are rather frequently discussed in various forums here.)

I had normal everything in testing 6 years prior to neuropathy showing in any way, even though I had neuropathy symptoms for those 6 years.

Again, it's key to be sure you omit any possible cause of neuropathy, if you can do so. Watch your blood sugar, too. Some people start getting neuropathy symptoms even though their blood sugar testing looks okay, and their a1c looks okay, too. Keep those values lower then the guidelines, as long as you are not getting low blood sugar from doing so.

Much of this info is on the neuropathy forum.:hug:

I wish I had this info available when I had started with symptoms so many years ago now.

I am hoping for your healing... now... before there are findings on tests.

To Our Healing,
DejaVu

caroline2 08-04-2015 12:04 PM

I'm certainly not an expert but follow a lot of health groups and talk about a lot and magnesium is talked about so much and that so many are deficient in this critical mineral. It addresses so much in our health system...do some search on magnesium and your issues. Just throwing that out.

A friend is dealing with afib now and I'm thinking she wasn't taking enough magnesium if she took any....there is a lot of info out there on mag and heart health.

mrsD 08-04-2015 02:52 PM

Excitotoxins include glutamate as in MSG a food additive.

The BMAA mentioned in this article occurs in algae in lake water.
Algae blooms like that in Lake Erie right now are very toxic to people and animals.

https://en.wikipedia.org/wiki/Excitotoxicity

Magnesium is an NMDA antagonist and that is why it is recommended for people with peripheral neuropathy.

Albertakewl 08-05-2015 12:12 PM

What is afib?

caroline2 08-05-2015 01:52 PM

http://knowledgeofhealth.com/control...without-drugs/

Good info here, in my opinion.

Kitt 08-05-2015 03:52 PM

Quote:

Originally Posted by Albertakewl (Post 1160310)
What is afib?

Atrial Fibrillation. Here is a site explaining it.

http://www.mayoclinic.org/diseases-c...n/con-20027014

Albertakewl 08-07-2015 11:51 AM

Quote:

Originally Posted by Kitt (Post 1160376)
Atrial Fibrillation. Here is a site explaining it.

http://www.mayoclinic.org/diseases-c...n/con-20027014



Thanks everyone for all you help. I am learning lots. Not much info on center so senitization. I can't seems to find stuff on just an irritated brain. It states in my paper that he doesn't think it's cns or pherphrial . So I am confused

DejaVu 08-09-2015 01:18 PM

Central Sensitization Info.
 
Quote:

Originally Posted by Albertakewl (Post 1160822)
Thanks everyone for all you help. I am learning lots. Not much info on center so senitization. I can't seems to find stuff on just an irritated brain. It states in my paper that he doesn't think it's cns or pherphrial . So I am confused

Hi albertakewl,

I am sorry you are feeling confused about what's going on with your body.
Please ask your doctor more questions when you can do so.

I had given you a few links on Central Sensitization. One link was more reader-friendly than the others.
https://www.painscience.com/articles...sitization.php

A few more links for you:

http://www.healthcentral.com/chronic...15887/nervous/
http://www.webmd.com/pain-management...-pain-syndrome
http://www.physio-pedia.com/Central_..._Sensitization
http://www.ninds.nih.gov/disorders/c...ntral_pain.htm
http://www.practicalpainmanagement.c...form-disorders

I hope you find something in these links helpful to you.
I also hope you are finding helpful info in other forums here.
You have mentioned you participate in the PN forum.
Have you used the "search" function here to find threads/discussion/info on "central sensitization?"

I hope you find more information which helps you in your understanding of your condition. Please keep asking questions and we will try to support you.

:hug:
DejaVu


All times are GMT -5. The time now is 07:09 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.