Chronic Pain Whatever the cause, support for managing long term or intractable pain.


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Old 07-22-2015, 05:14 PM #1
Albertakewl Albertakewl is offline
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Default anyone else have this??

I am having a hard time finding info on this. Let me begin with my symptom. I have a feeling of Iam wearing something on my
Lower legs and lower arms. I twitch and jerk randomly . The tingling all over my body at times. My left side feels more numb then the right .
Like it feels "asleep" . It doesn't feel like the rest of the tingling in my body. When I try to sleep at times. My arm
Will jerk when Iam just trying to doze of to sleep . And it wakes me up. I will get some dull pain in my lower arm and legs at times. My left foot freezes at times and my left ankle will ache or or burn. Or something it's really hard to explain.

The neurologist wrote on the paper stating he knows it is central hypersensitization. And then put where they brain is irritated. But I can't find anything on this?
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Old 07-22-2015, 07:59 PM #2
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I never heard of central hypersensitivity. I'm going to look it up. What you are describing sounds like neuropathy.
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Old 07-22-2015, 08:19 PM #3
Albertakewl Albertakewl is offline
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I never heard of central hypersensitivity. I'm going to look it up. What you are describing sounds like neuropathy.
They said no to neuropathy . Because I have all my reflexes . But the only test I had done was nct.
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Old 07-22-2015, 08:31 PM #4
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Quote:
Originally Posted by hopeful View Post
I never heard of central hypersensitivity. I'm going to look it up. What you are describing sounds like neuropathy.
Central hyper sensitization
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Old 07-22-2015, 09:49 PM #5
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Hi Alberta,

Here's reference to the condition your doctor had mentioned:

https://www.painscience.com/articles...sitization.php

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3268359/

http://www.ncbi.nlm.nih.gov/pubmed/19712899#


I am sorry you are dealing with this.

Many people with chronic pain have central sensitization.
Also, many have central pain sensitization, along with non-centralized pain, where there is actual tissue damage, etc.

I deal with both.

I hope these articles help?

Did your doctor propose a treatment plan for you?

To Our Healing,
DejaVu
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Old 07-22-2015, 10:41 PM #6
Albertakewl Albertakewl is offline
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Quote:
Originally Posted by DejaVu View Post
Hi Alberta,

Here's reference to the condition your doctor had mentioned:

https://www.painscience.com/articles...sitization.php

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3268359/

http://www.ncbi.nlm.nih.gov/pubmed/19712899#


I am sorry you are dealing with this.

Many people with chronic pain have central sensitization.
Also, many have central pain sensitization, along with non-centralized pain, where there is actual tissue damage, etc.

I deal with both.

I hope these articles help?

Did your doctor propose a treatment plan for you?

To Our Healing,
DejaVu
Does my symptoms sound like central hyper sensitization ?

All the dr did for me so far was up my Effexor to see if it works.
And they said if it does not work she will take me off and put me on lyrics or gab or something?
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Old 07-23-2015, 12:14 AM #7
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Hi Alberta,

The first article I had listed is more reader-friendly.
Was it helpful to you?

I cannot diagnose. Even if I could, I have no reason to differ with the M.D. whom has examined you and has taken your history, etc.

Sometimes, these things take time. It's often helpful to stick with one doctor and help the doctor to further confirm/deny the diagnosis by complying with treatment and seeing what happens. Doctors will often change treatments if needed. They will sometimes also change the diagnosis once they see other signs/symptoms develop.

My neurologists have been following me for over 20 years, watching various illnesses progress. It has taken time for these illnesses to fully show themselves to the doctors.

Do you feel the doctor has listened to you and has been thorough?
Do you feel you can contact the doctor if the current treatment plan does not work for you?
Are you okay with the current treatment plan?

Do you have more questions to ask of your doctor now?

Please continue to reach out here.

To Our Healing,
DejaVu
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Old 07-23-2015, 10:02 AM #8
Albertakewl Albertakewl is offline
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Quote:
Originally Posted by DejaVu View Post
Hi Alberta,

The first article I had listed is more reader-friendly.
Was it helpful to you?

I cannot diagnose. Even if I could, I have no reason to differ with the M.D. whom has examined you and has taken your history, etc.

Sometimes, these things take time. It's often helpful to stick with one doctor and help the doctor to further confirm/deny the diagnosis by complying with treatment and seeing what happens. Doctors will often change treatments if needed. They will sometimes also change the diagnosis once they see other signs/symptoms develop.

My neurologists have been following me for over 20 years, watching various illnesses progress. It has taken time for these illnesses to fully show themselves to the doctors.

Do you feel the doctor has listened to you and has been thorough?
Do you feel you can contact the doctor if the current treatment plan does not work for you?
Are you okay with the current treatment plan?

Do you have more questions to ask of your doctor now?

Please continue to reach out here.

To Our Healing,
DejaVu
I read that first link. That's a lot of info. But good info. Thanks for finding that for me. This is all new to me. Last sept/oct. I went from
Healthy to a disaster. And it took me 9 months to see a neurologist . They spent quiet a while with me in the room listening to my story and stuff . But when k left he said he didn't no what was wrong with me, come back when it get worse. So the neurologist and her must of talked after to try and figure it out. My primary dr said he is a great neurologist. I believe her. But I'm just trying to wrap my head around all of this. And trying to get info. Which you helped me with.
So you have been dealing with this for 20 years?
What are you symptoms?

I understand this a little bit. . But what I am wondering is. You can have this without the pain of someone touching you? Because I don't get that kinda pain. I see where it effects the sensory in the brain. And that's probably why I have that feeling in my lower legs and arms. With tingling that comes and goes
Everywhere ?

Last edited by Albertakewl; 07-23-2015 at 12:45 PM.
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Old 07-23-2015, 08:05 PM #9
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Hi Alberta,

I apologize for the delay in my responding to your post. It's been a very busy day.

Yes, I have had this part of my many medical issues for over 20 years.
Yes, I do have amplified pain. I also often have pain when someone simply touches me. My pain issues are quite progressed at this time.

I have several painful conditions. I cannot sort out, entirely, which symptoms belong to which condition. I wish I could be of more help.

It may be that you have another condition and it does not yet show up in ways conducive to diagnosis. As I had mentioned in an earlier post, sometimes symptoms progress or change and doctors change their initial diagnosis.

I hope someone else will come along and comment.
I have too many co-occurring issues to give clear answers about my own symptoms.

The first article tells us the diagnosis is tough to make and is a bit of a judgment call on the part of medical practitioners.

Which test did you have to rule out neuropathy?
I'd had many symptoms of "neuropathy" before mine showed up on testing, by the way. Read at the neuropathy forum and see if people are describing similar symptoms. Again, I cannot determine what's going on for you. Sometimes, it's just helpful to read up and compare notes with others?
Ask questions there if you are wondering about Peripheral Neuropathy. The PN forum is quite active.

I hope you are having a good day today.

To Our Healing,
DejaVu
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Old 07-24-2015, 01:02 AM #10
Albertakewl Albertakewl is offline
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Quote:
Originally Posted by DejaVu View Post
Hi Alberta,

I apologize for the delay in my responding to your post. It's been a very busy day.

Yes, I have had this part of my many medical issues for over 20 years.
Yes, I do have amplified pain. I also often have pain when someone simply touches me. My pain issues are quite progressed at this time.

I have several painful conditions. I cannot sort out, entirely, which symptoms belong to which condition. I wish I could be of more help.

It may be that you have another condition and it does not yet show up in ways conducive to diagnosis. As I had mentioned in an earlier post, sometimes symptoms progress or change and doctors change their initial diagnosis.

I hope someone else will come along and comment.
I have too many co-occurring issues to give clear answers about my own symptoms.

The first article tells us the diagnosis is tough to make and is a bit of a judgment call on the part of medical practitioners.

Which test did you have to rule out neuropathy?
I'd had many symptoms of "neuropathy" before mine showed up on testing, by the way. Read at the neuropathy forum and see if people are describing similar symptoms. Again, I cannot determine what's going on for you. Sometimes, it's just helpful to read up and compare notes with others?
Ask questions there if you are wondering about Peripheral Neuropathy. The PN forum is quite active.

I hope you are having a good day today.

To Our Healing,
DejaVu
Hey, that's alright , busy day is a good day. :-)
I am on the neuropathy forum to. And I have so many symptoms of it. But they said no, I think it was busy all my reflexes was good. And I guess with neuropathy they said you don't have reflexes.
All I have had for test were and MRI of the head to rule out ms. A bunch of blood work. And a nerve conduction test , which I do believe is an Emg. I've
Been dealing with these symptoms since October 2014,
So I'm not sure if it takes a while for neuropathy to show up?
You said it took a while for your neuropathy to show up on a test, how long after and what test?

They don't want to do anymore test because they are
To invasive . I can take a picture of the report if u want?
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