NeuroTalk Support Groups - Chronic Pain Rehab Clinics?

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- - Chronic Pain Rehab Clinics? (https://www.neurotalk.org/chronic-pain/226460-chronic-pain-rehab-clinics.html)

Hi Pam,
Thanks for the update. I hope the epidurals have given you sustained pain relief and hope the hip pain got better.

when do you go to the clinic or are you there already?

You are in my thoughts and prayers that all goes well and please know your NT buddies are here to helpl,

My very best,
D.

Quote:

Originally Posted by PamelaJune (Post 1184171)

Hello, so I had the dorsa and lumbar epidural injections on Monday. They kept me in overnight because my blood pressure was too low for me to go home. Spent a sleepless night in the hospital, up and down getting hot drinks so probably a good thing to not be home as I would have driven DB up the wall. He had to be up and out of the house for a 3am start. Anyway, I'm home now, came home yesterday, felt very spaced out and again today, BUT, the pain in my lower back is good, so the injections must have worked. I hope they hold out long enough for me to attend the clinic in 2 weeks and for the 2 weeks I'm there, Fingers crossed. I do have this bizarre hip pain in my left side, I wonder had it always been there and I haven't noticed because I was taken up with the back pain, or is it a new way of the nerves trying to let my brain know, helloooo we are still here, just trying to get your attention. I Just don't know anymore, I'm sick and tired of functioning in this world of pain. No one friend or family (other than DB) understands, you have a procedure and they think voila you are better forever, they are shocked when you say, yes better for today, maybe even tomorrow or the next month, but it will return, and then the look comes, I call it the look, it's the one where you can see the wheels turning in their brain, oh she is just attention seeking.

I suppose also using the pain scale of 1-10 where most would say 5 is painful, so very painful, 5 /6 to me is normal. I'm still in pain today, just not like I normally am my pain scale today would be a 4, I say that's an improvement.

I have a busy remainder of week, work wise I juggle my load around and I am fortunate in that. Many would be unable, they would just have to take the time off and lose the pay, instead I move my days around.

Hi D, I go Dec 6. Hip pain resolving, and now weird feeling like a dozen or so bumble bee sting attack sensation comes over my lumbar region from time to time. The nerves reawakening no doubt.

My anxiety has kicked in and is overwhelming at times. My pre-sessions to the clinic have awakened some hugely traumatic incidences that occurred in my childhood and teenage years, things I have had locked away and not even acknowledged, there is the saying you need to remember in order to forget, I hope so. It's painful and traumatic, the two weeks inpatient period will no doubt explore these. I am not sure I was ready for this, it has opened some incredible wounds and I have cried an ocean of tears. I am so hopeful this experience will release me. It will be devestating to go through this and get no relief (pain relief I mean) of course, there should be emotional relief, perhaps that will be enough? I sure hope so xxx

Hi Pam,
This is certainly a lot to undertake.

It sounds like the facility you are going to is doing the right thing by having you start to explore these emotional issues as an outpatient, while you still have the love and comforts of home for support. It is like they are giving you a head start on what you will be going through.

Trying to deal with emotional issues and pain issues simultaneously sounds like an awful lot to bite off at once though, I hope you don't mind me saying. Pam, Do you have the flexibility to say to the facility, "Listen, the therapy has re opened hugely traumatic incidences from my past that I am having some difficulty with and I would like to come to terms with all the before I start the inhouse 2 week program? " Meaning, can you say, I prefer to start later, after I have a better handle on these issues?
Just a thought.

I am also thinking time frames, in that, the holidays have a lot of emotional import for many of us and you will be dealing with all of this in the weeks before Christmas and then come home just before Christmas, perhaps at your most vulnerable, yet have all the issues of Christmas to deal with. Perhaps, it is a matter of the glass half full or half empty. On the positive side, It could potentially be the greatest Christmas gift in the world to you and your family
as you successfully make it through the program with the results you are seeking. Or maybe, good to away from home during all the pre Christmas hubbub.

Honestly, my heart aches for you as you are not only dealing with the physical side, the "bee stings" , overall daily chronic pain, etc, but dealing with re-emerging emotional traumas, and no doubt dealing with hubby's readjustment to sobriety and return to work AND you are working part time.You have shown you are the type of person who, when she sets her mind to a task, you accomplish it.
I wish you the very best Pam and am thinking, as painful as this has been on so many levels, what an amazing accomplishment and how much better your life will be when you have completed the program. I have my cheerleading skirt on for you!

A big hug and tons of positive energy coming your way. Please keep us posted.
Much love, D.

Quote:

Originally Posted by PamelaJune (Post 1185489)

(((((( Pam ))))))

Hi Pam,

Thinking of you.

Offering Love and Supportive energy.

:hug:
DejaVu

My companion pain opted to renew its tenure... I'm reminded of the movie paranormal (?) that line when she is looking at the TV all fuzzy white noise and she says "they're baack". Yup, they're back alrighty, full strength crippling pain kicked in over the last 24 hours. And this coupled with the weird crap my mind is kicking up is making for a really unpleasant tough time right now. I'm working hard on my coping resources, breathing techniques etc etc and I found on youtube 2 brilliant anxiety and relaxation. I hope I'm allowed to say his name?Search for David Fairweather

Quote:

Originally Posted by PamelaJune (Post 1186196)

Pam,
This is so unfair. One step forward and two steps back....I hope all this work comes to a positive outcome while you are away.

I just learned a great, quick relaxation technique in yoga class yesterday.
Put your right thumb on your right nostril and breath in slowly,deeply, filling
your belly like a large balloon, then slowly let it out through lightly pursed lips.
Keep repeating til the anxiety has subsided. This worked very well for me.
We did it for about 8-10 breathes.

Sending hugs and prayers,
D.

2 week group cancelled

Just when I need it the most they have had to cancel. Next intake is January 15, not sure if I will be able to go then. DB telling me everything happens for a reason and he is right. All will become clearer and I bet something happens and we will be relieved I'm home. :hug:
I'm very disappointed though, but I understand the group dynamics depend largely on the number of participants.

My pharmacist thinks I might be having a shingles outbreak, I'm ever so stressed right now, my painkillers don't seem to be working since my companion reawakened, and truthfully, I really am upset the clinic treatment didn't happen. I dont know where to put myself. I can't help but wonder if this attack was coming anyway and it's a good thing I haven't gone to the clinic or if my suddenly learning I'm not going has triggered this enormous stress and attack... A conundrum no less...
I had booked off two weeks from work and had not yet told them yet the clinic has cancelled so I will take a few days this week and see if I can calm this nerve pain down. Left outer thigh and parts of the inner thigh. It's a different colour to the rest of the limb and hurts like the dickens, resorted to taking a Valium last night. Pharmacy dispensed valtrex (?) this morning have to get a script from my GP asap for it. My pharmacy are just the best, they really look after me and DB. I can't get in to see the GP until Tuesday and the pharmacist said it is far too long to wait with the symptoms and pain I'm in. I hope this valtrex works.
I really am having a crappy time right now, thank goodness for having found this david fairweather chap on YouTube I would be lost without his tracks I can tell you.

i have had rsd for many years and i really need advice.i have been working with pain management and nothing seems to be working . should i be working with any other doctors? right now i need help very bad. the pain is so bad that my clothes hurt my body. if you have any info for me please help me.

Hi Katurah, I'm sorry you are in such a bad way. You might get a better response on the crps /rsd forums.

http://neurotalk.psychcentral.com/forum21.html

Quote:

Originally Posted by katurah1975 (Post 1187033)