Chronic Pain Whatever the cause, support for managing long term or intractable pain.


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Old 12-08-2015, 04:16 PM #21
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Hi Pam,
I do think the postponement will go in your favor...in the end you will be glad.
If you got shingles while there, I think you would have been miserable.
Hopefully you took the Valtrex in time and it caught it before it got too bad.

Enjoy Christmas and New Year with hubby and family and be more prepared physically and emotionally Jan 15. I Am sorry the pain has ramped up again.
Thinking of you, D.


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Originally Posted by PamelaJune View Post
Just when I need it the most they have had to cancel. Next intake is January 15, not sure if I will be able to go then. DB telling me everything happens for a reason and he is right. All will become clearer and I bet something happens and we will be relieved I'm home.
I'm very disappointed though, but I understand the group dynamics depend largely on the number of participants.
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Old 12-11-2015, 04:28 PM #22
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Default Short notice

So at short notice they have thrown together a weekend here at the clinic. I arrived last night at 4, 2 others arrived btwn 6&7 and the 4th due to arrive last night a no show. 2 more expected early this morning. Apparently, sadly, no shows without calls ahead are the norm. The two week group definitely cancelled due to lack of numbers so this 2 day group with maybe 5 will I hope be big enough for us all to get something out of it.
Although, as yet, I don't know what the approach will be. I can't deny a big part of me worries there is an unspoken thread, the pain is in my mind, the drugs you take are addiction / dependence based and the focus will be instead of managing pain dealing with addiction. I guess I will find out in a few hours. I went to sleep sometime after 11, been up since 3, no surprise, I don't sleep well at home so down here would be no different. I made a cup of tea at 4, the sun is up enough now for me to try a walk. Update tonight maybe, hope I don't spend the day in tears.
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Old 12-11-2015, 10:30 PM #23
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Hi Pam,
Thanks so much for the update but, I was surprised.
So what is game plan for only a weekend?
Do you get to come back some time soon for the full 2 weeks?

If you do get to come back for a longer period, maybe it will be good to just get a sample of what will be going on and it may do wonders to assuage any anxiety you have because you will have a clear picture of what will be transpiring.

Looking forward to your update.
Hugs, D.


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So at short notice they have thrown together a weekend here at the clinic. I arrived last night at 4, 2 others arrived btwn 6&7 and the 4th due to arrive last night a no show. 2 more expected early this morning. Apparently, sadly, no shows without calls ahead are the norm. The two week group definitely cancelled due to lack of numbers so this 2 day group with maybe 5 will I hope be big enough for us all to get something out of it.
Although, as yet, I don't know what the approach will be. I can't deny a big part of me worries there is an unspoken thread, the pain is in my mind, the drugs you take are addiction / dependence based and the focus will be instead of managing pain dealing with addiction. I guess I will find out in a few hours. I went to sleep sometime after 11, been up since 3, no surprise, I don't sleep well at home so down here would be no different. I made a cup of tea at 4, the sun is up enough now for me to try a walk. Update tonight maybe, hope I don't spend the day in tears.
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Old 12-12-2015, 04:49 PM #24
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It was a group of people put together who they felt would benefit from even just 2 days worth. SO much emotional trauma here for this group of people, not one of us has zilch baggage carried around for decades. I am the only one here who has not been previously and they have all attended the 2 week and 4 week programs. They all say the weekend ones are better and will continue to only do weekend visits. Me, I'm not so sure, it's a 3&1/2 drive, but, we shall see. Yesterday was a tough day, very tough, but we did some exercises of the mind where at one stage all my pain just left my body, it was a very surreal feeling and so immediately noticeable. Lasted for about 2 minutes. If I can work on that, I hope to expand the duration.
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Old 12-17-2015, 08:53 PM #25
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Quote:
Originally Posted by PamelaJune View Post
It was a group of people put together who they felt would benefit from even just 2 days worth. SO much emotional trauma here for this group of people, not one of us has zilch baggage carried around for decades. I am the only one here who has not been previously and they have all attended the 2 week and 4 week programs. They all say the weekend ones are better and will continue to only do weekend visits. Me, I'm not so sure, it's a 3&1/2 drive, but, we shall see. Yesterday was a tough day, very tough, but we did some exercises of the mind where at one stage all my pain just left my body, it was a very surreal feeling and so immediately noticeable. Lasted for about 2 minutes. If I can work on that, I hope to expand the duration.
Hi Pam,
Just checking to see how things went this past weekend.
Was it productive?
Glad you attended?
What kind of mind exercises did you do that enabled your pain to leave your
body? .....very interesting.
D.
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Old 12-20-2015, 01:20 AM #26
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Default Glad I went

Hi D, it was good and I am glad I went. I couldn't tell you exactly what exercise it was that we did, he had us do a number of mindful exercises throughout the day and I think they all came together in that one moment, combined and the result was the lifting of the pain. It was surreal, I had hoped he would do it again on day two but it was instead based on the trauma each of us had experienced and we only did a meditation exercise before end if day. I struggled with that one as I couldn't lie comfortably at all. I will def go again if the opportunity arises.


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Originally Posted by Diandra View Post
Hi Pam,
Just checking to see how things went this past weekend.
Was it productive?
Glad you attended?
What kind of mind exercises did you do that enabled your pain to leave your
body? .....very interesting.
D.
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Old 12-26-2015, 03:40 AM #27
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Default Hit by a reversing car

Christmas Eve 6am seafood shopping (only in Aus) carpark manic and people crazy I got only a bump but enough to throw me off balance and fall against my car. My handbag took the brunt, in it my iPad with screen now shattered. He of course reversing caught me with his SUV corner blind spot left the scene, no cctv footage and no number plates.

Christmas night and now I'm really feeling the pain it hurts to bend into the fridge to pack away the festive leftovers. DB busy caught up with his own poor health jumped off his wagon into the bottles lure and is oblivious. But the kids said its the best Christmas they have ever had so it was worth it.

I put all I had into Christmas Day with cleaning and cooking to get everything ready for the evening /night celebrations. Up at 5am to cook the bird and begin cleaning, moving furniture to create room for Santa & 9 eat in comfort at the big table. The 2 young ones on their own little table closer to the floor (my old aerobic step came up a treat decorated with cloth and crackers) began cooking the pork at 3pm along with the ham and at 6 began shelling the prawns. Good thing I have 3 ovens. I squeezed in a shower at 4, I reckon I needed it! The family began to arrive around 6ish, DB home at 7 and at 7.30 Santa arrived. Bed never felt so wonderful!
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Last edited by PamelaJune; 12-26-2015 at 09:49 PM. Reason: Try attach photo
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Old 12-29-2015, 08:14 AM #28
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Default You kicked butt girlfriend

Quote:
Originally Posted by PamelaJune View Post
Christmas Eve 6am seafood shopping (only in Aus) carpark manic and people crazy I got only a bump but enough to throw me off balance and fall against my car. My handbag took the brunt, in it my iPad with screen now shattered. He of course reversing caught me with his SUV corner blind spot left the scene, no cctv footage and no number plates.

Christmas night and now I'm really feeling the pain it hurts to bend into the fridge to pack away the festive leftovers. DB busy caught up with his own poor health jumped off his wagon into the bottles lure and is oblivious. But the kids said its the best Christmas they have ever had so it was worth it.

I put all I had into Christmas Day with cleaning and cooking to get everything ready for the evening /night celebrations. Up at 5am to cook the bird and begin cleaning, moving furniture to create room for Santa & 9 eat in comfort at the big table. The 2 young ones on their own little table closer to the floor (my old aerobic step came up a treat decorated with cloth and crackers) began cooking the pork at 3pm along with the ham and at 6 began shelling the prawns. Good thing I have 3 ovens. I squeezed in a shower at 4, I reckon I needed it! The family began to arrive around 6ish, DB home at 7 and at 7.30 Santa arrived. Bed never felt so wonderful!
Girl
You and I went at it
And like I was told
The best Christmas ever
All of my children their husband partner
Most importantly my sons partner Jason brought my son to the
house as he was released from the hospital I was the only one that
had no clue
My guests one friend for thirty years has an only child
the same age as Christine both her and Patrick the same age
thirty years old came also with his fiancé enamored with my
granddaughter
Patrick is part of this family as a family member
He was watched over by me
grew up with my children
Took them to the circus
Played in my backyard with my children all his life
That's how close he is too us
To know you kicked butt and everyone was happy
made me happy
Jeez the ham was out of this world
My eldest baked homemade biscuits
I am most certain my OCD THAT KICKED IN TWO DAYS BEFORE
Christmas Day
Now we have something we can reflect on
It puts a smile on my face when a new friend invited
called and said
"It was the best Christmas I ever had"
Says enough
God bless you and family as You push through with the pain
Love and support
Me
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eva

Last edited by eva5667faliure; 12-29-2015 at 08:25 AM. Reason: Fixing
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Old 02-19-2016, 11:38 AM #29
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Just bumping this up for myself since I would still like to hear from anyone who may have attended one of these inpatient chronic pain clinics in the USA. I really would like to attend one but a bit apprehensive about going blindly. I have called several of them to inquire. My goal is to learn biofeedback and other hypnosis / mindfulness skills to reduce meds. I lack the discipline to do this at home and that is why I am seeking an inpatient program. I have asked my painmgmt doc and the ones he knows personally are all private and very expensive (I.e Silver Hill Hospital, New Canaan, CT) costs $40k for 28 days. Yeah, right.
Thanks,
D.


Quote:
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Have any of you ever attended one of the chronic pain rehabilitation programs or
clinics (some examples below). I would be interested in hearing
about your experiences, if you thought they were helpful and if it was difficult to get your insurance to cover program.

Thank you, Diandra


http://www.brooksrehab.org/specialty...rehabilitation

https://my.clevelandclinic.org/servi...-rehab-program
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Old 02-19-2016, 05:57 PM #30
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Hi Diandra

Just a suggestion before you fork out $$$$ for the biofeedback or hypnosis treatment. Some people just don't respond to that type of treatment - maybe because their brains are wired differently or there may be some unknown neurological condition that is making the brain less receptive.

I'm one of them - 7 years ago I was prescribed hypnotherapy to assist with chronic pain for an (at that time) undiagnosed physical condition. I did 4 sessions (privately). I suspected right from the 1st session that I wasn't receptive but carried on - desperate for improvement. By the 4th session my pragmatism (and rapidly emptying wallet) kicked in and I asked the therapist more probing questions about how I should be responding and she grudgingly admitted that I wasn't very susceptible to hypnosis. She would have carried on treating me as long as I was gullible enough to pay.

So I would recommend a few trial sessions to assess your receptiveness before committing to an expensive residential course.

All the best for finding some relief.
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