My compound is ketoprofen 10%, ketamine 4% and gabapentin 6%. A plus of this formula is that it is nice and creamy. I have had some in the past that were too sticky and just sat on my skin. This one absorbs quite well.

The pharmacy I use does a great job and that makes a difference. After using three compounding pharmacies I definitely I have a preference for them. Some companies use bases that get runny, etc over time. These guys have just nailed it. They also add in a little DMSO to help carry the medication through the pores.

Hi ,

Thanks Mrs. D for your link on the clonodine. It was very helpful and informative.

Dave... Thanks for sharing your experience with your lidocaine infusions and your insight of the " risk and reward " aspect of it .

Littlepaw... Thanks for writing the ingredients and percentages in your compound cream .
Lots of things to share with my doctor at my next visit!

All of you are so helpful and kind to take the time to reply to me... Thanks bunches

dear vintage wine,

MrsD mentioned the compounded clonidine cream, which I have not tried but the tablets work for me.

my doc and pain doc agreed to keep me on clonidine for blood pressure issues and neuropathy issues(killing 2 birds with one stone).
It is just part of the combo of things I take...for me, it just helps soften the edges of neuropathy but along with Lyrica and opiates.

The good thing is, it helps me relax/sleep so I take it at the end of the day.

You need to be careful because If you don't have BP issues, it will really knock your BP down and make you dizzy, woozy feeling.

Hope things are improving for you.
You are in my thoughts and prayers,
D.

Hi Vintagewine,

I am sorry you have been suffering.

I've had mixed experiences with oral clonidine. While clonidine has helped pain in a major way, including allodynia, I have to keep the dose very low. At a very low dose, I find it causes significant mood changes and depression.

I'd prefer to try it topically; however, my doctors argue topical clonidine will have the same effect upon me as the low-dose clonidine. Likely true. I don't want to try it in an expensive topical if I cannot tolerate the topical.

I have tried clonidine, have sworn it off, and have had to go back to it.
I hope to find something to take its place, something with fewer side-effects for me.

I also suspect capsaicin. I have tried it several times. I don't do well with it.

Just this week, a neurologist told me allodynia should be controlled with anti-epileptic drugs. I have not had that happen, possibly because I no longer tolerate many in that drug class.

I hope you have found relief prior to my writing this post.


DejaVu

Hi,

Thanks again for your replies to me . I appreciate them so very much .

Diandra... I'm happy that you are finding some relief from the clonidine. I hope your pain subsides more and more every day.

DejaVu... I'm sorry about your experience with the clonidine . This allodynia pain is horrendous and such a challenge for doctors to treat !!
I also can not tolerate most medications including the anti-epileptics ones. I know how frustrating it is to try to find something that
can help this pain and that can be tolerated as well. I hope you find something that will help your pain.


I hope you all have a blessed day