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Old 01-31-2017, 05:51 AM   #21
PamelaJune
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Hi Gerry, this is a reduced excerpt of some info online re temgesic.

There is evidence to indicate therapeutic doses of buprenorphine do not reduce the analgesic efficacy of standard doses of an opioid agonist and that when buprenorphine is employed within the normal therapeutic range, standard doses of opioid agonist may be administered before the effects of the former have ended without compromising analgesia. However, in individuals on high doses of opioids buprenorphine may precipitate abstinence effects due to its properties as a partial agonist.

I hope that helps somewhat, but tbh your treating practitioner or PM will be the best source of information. I see getting Oxy for chronic pain (other than cancer) in the US is going to get significantly harder so if you can precipate the conversation with your practitioners before possibly being forced into discussing it might be beneficial. Although with your cancer history you may be alright? Don't quote me because as you know I don't live in the US so what I've read and heard could be well off base.

Movicol comes in half sachets as well as full sachets, they also have a child's dose. Would your miralax maybe have the same concept? It might be worth you having 3 sachets One day and the next 3 1/2 then 3 and so on. I know when I was on the fully ramped Oxy along with the 100mg fentanyl patch I was on 4 movicol sachets a day - 2 in the am and 2 in the evening. I travelled to the UK and it was a true nightmare managing the back pain, the stomach bloat pain and the risk of obstruction even though on such a high dose. You have my sympathy my friend. Life is cruel at times.
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Old 01-31-2017, 11:15 AM   #22
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Pam,
With all the attention about doctors over prescribing opioids; my PM has asked a couple of months ago for me to lessen my dose from 4 60mg's of Oxy per day to 3 doses of 60mg's a day.

He now wants me to cut back further. I had never wanted to be on this high of a dose in the first place. Each time my PM would do an Epidural, he would come in the recuperation room and asked if I felt any better; I would say "no" because I just had come out from being on my belly and injection in my spine; of course I would not feel the effects yet. So he says; we'll up you another 10/20 mg's. I said "oh no". He tells me don't worry when the time comes, I'll help you come down.

I believe he had in mind the SCS because when the series of Epidurals ended; now came the push to get an SCS trial. I eventually gave in to what was a very unsuccessful trial; but now was on a total of 240mg's daily of Oxycontin and up to 4) 7.5 Percocets per day for break thru pain. With the rectal cancer 4 years ago; he no longer pushes for another trial or the possibility of an SCS.



Thanks for all the info Pam. You have been quite helpful.


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Old 03-26-2017, 08:10 AM   #23
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Gerry, I read this article in the news today in Aus. It made me think of you & all you are enduring. I hope admin I'm allowed to copy & paste the link. Please remove if I'm not.

Woman speaks out over devastating impact of mesh surgery
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Old 03-27-2017, 12:43 AM   #24
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Pam,
Thanks so much for thinking of me. It's after midnight here; but will look into Facebook tomorrow. When I had cystocele surgery about 7 or 8 years ago, the urologist put my bladder in a sling and closed me up with mesh as well.

Also, in Nov. 2015, I had three abdominal hernias....2 ventral incisional, and 1 epi-gastric. All three were closed with mesh as well. But I believe the mesh is "iffy" in this area and can be prone to infection or rejection; but using the mesh gave a better chance of the hernia not recurring.

But the main mesh issues is in the female bladder with mesh closure in the vaginal area with the Cystocele surgery. I read an article some months later saying the FDA banned/warned doctors this type of mesh was not to be used in the female lining/vaginal area. Remembering back, I think the warning was sent out the year before I had the surgery.

Because the urologist did not complete tacking the rectal area from dropping, I needed to have additional surgery the following year. For the Rectocele surgery, I then became aware of Uro/gynicologist. The Urologist who operated on me should have recommended I see a Uro/gynicologist. I didn't know any better and went to my husband' Urologist. I wish I had known better.... The Uro/gynycologist who did my Rectocele Surgery a year later said the former doctor should have never put mesh and for this reason he said he uses your own tissue and not mesh in vaginal surgery.

Thanks again.

Gerry

Last edited by ger715; 03-27-2017 at 12:01 PM.
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Old 09-09-2017, 04:32 PM   #25
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Gerry, I think you were due for some check ups mid August? How did they go and are you in less pain than a few weeks ago? You have so much to endure and it seems as we more often speak on other threads you have a turtle husbands like me. I hope you are feeling somewhat better after the disastrous patio plant watering episode, where his pain will no doubt recover quickly, yours will remain. DB complains of his elbow recently, I think he has tennis elbow, what can I say, I'm doing more than anyone else in my shoes would be doing, but I've noticed these past few mornings he has begun to thank me for my help so I know he is grateful.
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Old 09-10-2017, 11:02 PM   #26
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Quote:
Originally Posted by PamelaJune View Post
Gerry, I think you were due for some check ups mid August? How did they go and are you in less pain than a few weeks ago? You have so much to endure and it seems as we more often speak on other threads you have a turtle husbands like me. I hope you are feeling somewhat better after the disastrous patio plant watering episode, where his pain will no doubt recover quickly, yours will remain. DB complains of his elbow recently, I think he has tennis elbow, what can I say, I'm doing more than anyone else in my shoes would be doing, but I've noticed these past few mornings he has begun to thank me for my help so I know he is grateful.

Pam,
The GI doctor's office called; wanted me to see doctor; then schedule Colonoscopy. I have a Sept 27th office visit with GI doctor whom performed my first colonoscopy 5 years ago and discovered cancerous rectum. Removal of rectum surgery followed, remaining colon attached to a...l area.

Unfortunately the incision from that surgery resulted in 3 incisional abdominal hernias which were repaired almost 2 years ago. Am now dealing with the separation of middle abdominal muscle after the hernia surgery causing pressure/pain abdomen and groin areas.

Not looking forward to colonoscopy. My last one was 3 years ago. I have difficulty keeping down the "stuff" needed to clean out for colonoscopy. Last colonoscopy; just finished my last drink of the "stuff" heaved everything up across the table Also being on opioid pain medication calls for extra cleaning plus daily Miralax. Abdominal issues seems to be more painful than my spinal issues, along with PN leg pain, feet/ankles burning. Just one big mess. Not sure what I am dealing with abdominally. Almost don't want to know.

Hubby's dislocated finger is being held with buddy bands for a few more weeks then sees orthopedic doctor again. His head bruises healing pretty good. After removing bandages from the ER visit a few days later, I needed to clean coagulated blood with proxide to prevent infection. Along with rebandaging when going out or in public.

Unfortunately, less then a week after his fall, I went to hang robe on back of the door hook; which moved. Me, with my numb unbalanced legs titled backwards and hit the back of my head on the pointed tip of dresser, then went down. Felt back of head; blood......Had to call hubby to help me stand back up. He advised how I should hold on to couch to lift myself up in the future. My legs are so weak; can't put pressure on my knees. Impossible to lift myself. Never asked, including next morning "how's your head doing".... Back of Head is healing but very tender if I forget and apply any pressure.

Well; that's about goings on here. I will visit GI doctor Sept. 27 and schedule for colonoscopy.
As you mentioned about DB becoming more grateful....after my getting a bit upset about lack of any compassion and letting hubby know how I felt; he has been a bit more supportive as well. Hope it continues.

Pam....onward and upward we keep on going........


Gerry
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Old 09-11-2017, 04:41 AM   #27
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When I was younger in work as a quirky gift given once by some company we had these foam things, shaped like a large cardboard carton of eggs but just the one if you can envisage it. All the management team were given one, the idea was you out it over your mouth and you could scream and no sound escaped it. I wish, I wish I had held onto it, like you there are times I could scream but I don't want to scare the neighbours. I think you need one Gerry, your DB is just seemingly beyond empathy or compassion. It's as if he's missing a sensitivity Chip!!! Argh. How jolly uncaring advising use the couch to stand up. MY DB would have had an earful as well.

I can understand your not wanting to know, denial is a wonderful thing, with hope it's just adhesions which nothing can be done for and nothing more serious. You are in my prayers regularly but I'll add an extra verse. I think people believe I'm loopy as I go through my prayer ritual, light a candle, say my words to God and then thank him. Some days I light 12 candles, some days only a few. These are separate to the candles I have for my deceased ones. I only light candles for them on birthdays, or the day of passing. But I don't care what anyone else thinks, it's what I do and have done for many years. It works for me. Because of our climate in summer candles lit are extinguished after a minute or less, in winter, I will enjoy the aroma of the wax for a little longer, but never more than 30 minutes. Am I nuts, maybe...

I hate the colonic pre procedure, it's horrid. Do you get the sore legs as well? As I become more and more dehydrated as I pass more and more my legs pain me like nothing I can describe. It's deep within the bone as if the marrow itself is giving up any moisture it may have to send to the intestine...

Is there anything they can do for the muscle separation? Seems like you could have sued the surgeon who used the mesh given it was widely acknowledged to not use it 12 months prior to your op. But I guess you're like me, we could sue, but the heartache of reliving it too overwhelming.

Thinking of you and hoping you have done no damage to your body in addition to your head in the fall xxx

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Originally Posted by ger715 View Post
Pam,
The GI doctor's office called; wanted me to see doctor; then schedule Colonoscopy. I have a Sept 27th office visit with GI doctor whom performed my first colonoscopy 5 years ago and discovered cancerous rectum. Removal of rectum surgery followed, remaining colon attached to a...l area.

Unfortunately the incision from that surgery resulted in 3 incisional abdominal hernias which were repaired almost 2 years ago. Am now dealing with the separation of middle abdominal muscle after the hernia surgery causing pressure/pain abdomen and groin areas.

Not looking forward to colonoscopy. My last one was 3 years ago. I have difficulty keeping down the "stuff" needed to clean out for colonoscopy. Last colonoscopy; just finished my last drink of the "stuff" heaved everything up across the table Also being on opioid pain medication calls for extra cleaning plus daily Miralax. Abdominal issues seems to be more painful than my spinal issues, along with PN leg pain, feet/ankles burning. Just one big mess. Not sure what I am dealing with abdominally. Almost don't want to know.

Hubby's dislocated finger is being held with buddy bands for a few more weeks then sees orthopedic doctor again. His head bruises healing pretty good. After removing bandages from the ER visit a few days later, I needed to clean coagulated blood with proxide to prevent infection. Along with rebandaging when going out or in public.

Unfortunately, less then a week after his fall, I went to hang robe on back of the door hook; which moved. Me, with my numb unbalanced legs titled backwards and hit the back of my head on the pointed tip of dresser, then went down. Felt back of head; blood......Had to call hubby to help me stand back up. He advised how I should hold on to couch to lift myself up in the future. My legs are so weak; can't put pressure on my knees. Impossible to lift myself. Never asked, including next morning "how's your head doing".... Back of Head is healing but very tender if I forget and apply any pressure.

Well; that's about goings on here. I will visit GI doctor Sept. 27 and schedule for colonoscopy.
As you mentioned about DB becoming more grateful....after my getting a bit upset about lack of any compassion and letting hubby know how I felt; he has been a bit more supportive as well. Hope it continues.

Pam....onward and upward we keep on going........


Gerry
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Old 09-12-2017, 11:15 AM   #28
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Quote:
Originally Posted by PamelaJune View Post
Gerry, I think you were due for some check ups mid August? How did they go and are you in less pain than a few weeks ago? You have so much to endure and it seems as we more often speak on other threads you have a turtle husbands like me. I hope you are feeling somewhat better after the disastrous patio plant watering episode, where his pain will no doubt recover quickly, yours will remain. DB complains of his elbow recently, I think he has tennis elbow, what can I say, I'm doing more than anyone else in my shoes would be doing, but I've noticed these past few mornings he has begun to thank me for my help so I know he is grateful.

Pam,
I started thinking about what August check up had I mentioned to you....It dawned on me it probably was my Diagnostic Mammogram/Ultrasound for the left breast.
In 2016 my mammogram showed an image that needed further investigating so I was given an UltraSound which indicated what appeared to be a benign tumor so I had to go back in 6 month, last February 2017,for another Diagnostic Mammogram/Ultra Sound, which I did; the results were still the same. Then needed to return again 6 month in August, which was last month.

The Diagnostic Mammogram/Ultra Sound appears to still show what looks like a benign tumor on the back wall of the left breast. The technician said it is still pretty small; but need another followup in 6 months for Diagnostic testing. It is something that needs continued monitoring.

Having had rectum removed 5 years ago due to rectal cancer has me a bit concerned. Hope the Diagnostic testing continues to show a benign (non-cancerous) tumor.

As far as your prayers and lighting candles ; I think it is something beautiful.
:
I pray daily; even throughout the day. I have a prayer list for all those I pray for daily, as well as a list of the poor souls that have passed; especially close individuals.

I begin each day with "The Morning Offering".....which goes something like.....
"O Jesus, I offer you this day my joys ,prayers, works, suffering, sorrows in atonement for my sins and those of the whole world, as well as for all those on my prayer list and the departed souls I pray for daily.

As you have experienced; these prayers gives purpose to each day; whatever comes our way is not wasted.

Hope & pray you soon get all in order for your upcoming surgery.

Gerry
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