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Chronic Pain Whatever the cause, support for managing long term or intractable pain. |
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08-03-2018, 10:11 AM | #1 | |||
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Hello CRPS and welcome to Neurotalk. I, like you have CRPS in my foot and have to spend most of my time with my foot elevated. I am in better shape than I was just a couple of years ago after the Cleveland Clinic helped me by implanting a DRG stimulator. It's been a game changer for me and has allowed me to get into physical therapy for a couple of months. I'm now able to walk short distances with a cane, but still find that I need to keep my foot elevated most of the time. I have tried a number of doctors here in Michigan with none of them giving any success towards living with reduced pain. I had no problems finding doctors that were willing to prescribe painkillers for me but they provided little relief if any. If you live near Detroit, I can provide the names of a few doctors that at least gave it their best shot with me, but I was a rather difficult case that even the Cleveland Clinic had a hard time figuring out. I have tried several different treatments for CRPS including spinal cord stimulation, ketamine infusions and of course a multitude of different medications before getting to where I am now. Currently what is working for me is:
DRG stimulator Low dose Naltrexone Terazosin Trileptal Cymbalta Vitamin C High CBD medical marijuana I still have my bad days and still have to take things easy but at least something is helping. Of course everyone is different. What works for me might not work for someone else.
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. Alaina |
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"Thanks for this!" says: | CRPS (08-03-2018) |
08-03-2018, 10:42 AM | #2 | ||
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I have tried everything on your list except Terazosin. Of which I will have to look into. My list of attempted medications (non-opiate) is around 14. I have only been on the 1 opiate medication, which has been the ONLY thing that has helped over the last 2 years and 4 months. Other than Lyrica, which helps with desensitization. Along with 7 different injections, all of which either did nothing at all, or provided little relief for a day, or less. I would certainly appreciate any direction you could me regarding some potentially helpful, or compassionate Dr's. I look forward to your reply. Thank You. |
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"Thanks for this!" says: | PurpleFoot721 (08-03-2018) |
08-03-2018, 12:27 PM | #3 | |||
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I believe you need a minimum of ten posts before being able to pm anyone. I am not sure of the regulations on posting doctor recommendations so this might get deleted. If it does, I will email them to you.
Dr. Honet out of Bloomfield Hills helped me the most. He does both scs and pain pumps if that is the right route for you. He works out of an office called Neuro Pain Consultants. You will have to look them up because I doubt I am allowed to post phone numbers here. There is also Dr Deogun out of Sterling Heights. His office is called Chronic Pain Institute. He is a small office and only treats through medication, but if something is helping you, he is willing to continue to prescribe it. Those are the only 2 in the state that I was able to find that were able to help, they just weren't able to help me enough. I hope this helps you.
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. Alaina |
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"Thanks for this!" says: | CRPS (08-03-2018) |
08-03-2018, 02:06 PM | #4 | |||
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Community Support Team
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It's absolutely fine for patients to recommend doctors here to other patients.
(Only doctors promoting themselves isn't allowed) CRPS just a few more posts and the PM system will open up to you. (It's part of our anti-spam features to protect members from being inundated with PM spam)
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~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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08-03-2018, 05:06 PM | #5 | ||
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"Thanks for this!" says: | PurpleFoot721 (08-03-2018) |
08-12-2019, 11:22 PM | #6 | ||
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I'm 81, have lived with chronic OA back issues for over 60 yrs, went thru a terrible hip replacement almost 10 yrs, left me with more pain, whole right side of body is a mess.
I do not want heavy duty pain meds, especially oxy, had them a couple times after surgery and could not wait to get rid of them. Don't want pain pumps etc....so have learned to live with what I do. For the last few yrs at least since hip replacement and knee infection I have been taking 2 ibuprofen every 6 hrs...this keeps things manageable for me. I don't see myself being pain free....but manageable yes. About 7 months ago, thru my daughter, a homeopathic transdermal HGH gel came into my life. After a few months on it, I found I could reduce the 2 ibuprofen to 1 every 6 hrs and that's where I am now for a couple months....this is gold to me. Research of HGH Therapy for Chronic Back Pain Treatment If you want to know what I'm using, ask me. There are SO MANY HGH products on the market and I can only speak for this one I'm using. This product is quite new on the market and has gone viral on facebook. My daughter found it there. I'm not on FB. Many say it only gets better with time so who knows maybe I'll end up pain free at the year mark or so. |
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