Go Back   NeuroTalk Support Groups > >

Chronic Pain Whatever the cause, support for managing long term or intractable pain.

Relentless lower back pain

Reply
 
Thread Tools Display Modes
Old 09-29-2017, 06:50 AM   #31
kiwi33
Senior Member
Community Welcome Team
 
kiwi33's Avatar
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 1,950
My Mood: Relentless lower back pain
Default

Pamela, it sounds to me that you have had a lot to process.

I think that your doctors are doing a good job in keeping you informed.

I am glad that the visit from your Mum and her sister was lovely.

As ever, you are in my thoughts.

__________________
Knowledge is power.
kiwi33 is offline   Reply With Quote
"Thanks for this!" says:
ger715 (09-29-2017)
Old 09-29-2017, 12:59 PM   #32
ger715
Magnate
 
Join Date: Jul 2011
Location: Illinois
Posts: 2,127
My Mood: Relentless lower back pain
Default

Pam,
As I mentioned previously; you might want to check out Niggs (Nigel) poetry. Might add a nice smile to your day. He so enjoys hearing from those who have been touched by his poems.

Gerry
ger715 is offline   Reply With Quote
Old 09-30-2017, 06:36 AM   #33
PamelaJune
Senior Member
 
PamelaJune's Avatar
 
Join Date: Dec 2013
Location: Where my heart is
Posts: 1,101
Default

Temp now 38.9 & on its way down.... more bloods to be taken - food withheld (not hungry anyway), Clavicle Line to be removed with tip sent off for testing.

So only now they're worried where this temp is coming from. I've been telling them every day I'm throwing temps from 38.3 to 38.7 plus... This evening I was going through my daily routine of teeth chattering as I was so cold & today's new nurse said uhm hangon, is this happening a lot, as I'm asking her for my gloves to put on. I say Yes for the last few days every day, and long & short of it, it seems the panadol I'm requesting for my headache has been masking a possible infection somewhere. My gut has swelled from 84 cm to 85 then 95cm & today just now 97cm. General surgeon not happy not to have been told. But he doesn't come see me everyday, whereas the Neurosurgeon is in first thing every morning & I've been saying to him, I just feel worse each day, it's a malaise type feeling.

To get blood from my veins will be tough, they're putting heat packs onto my gloves, activating them for heat, so the veins will open as much as possible. The RSN has been summoned to take the blood... it never rains eh
__________________
I can still remember what life was like before pain became my life long companion
PamelaJune is offline   Reply With Quote
"Thanks for this!" says:
ger715 (09-30-2017)
Old 09-30-2017, 08:47 AM   #34
PamelaJune
Senior Member
 
PamelaJune's Avatar
 
Join Date: Dec 2013
Location: Where my heart is
Posts: 1,101
Default

My gut swelled another 2cm. Narula told Harsha to get on with it. Not 1st time I've spiked a temp. They've been a bit blase. The new nurse on tonight 1st night back from maternity said are you always shivering cold like this, I said at least once a day since the op. She disappeared came back & said I think you have an infection. They have to do more scans and take more bloods. I've had all these staff called back in to work. Snr radiological registrar, Snr radiographer, Snr registrar. I feel a bit guilty. Oh well, no one ever listens to me anyway...

Mum wrote and said Oh that is so awful for you. I can't believe they have taken so long to recognise you have an infection. Even I could see how pale you were with no colour in your lips, I said for you to ask for a FBC. I hope they get tests done ASAP. The last thing you need is complications. Let me know how you before you go to sleep ( if you can) Love you xxx so now in addition to my cousin who I was on the phone with when it all went sideways & DB & our lodger being upset & worried too. Hey ho, it's all ok I keep telling them, we've done this vefore we can do it again. We are competent surviving characters. Going to sign off my mind is playing funny tricks and words turning sideways

Post edit

My stomach really really really hurts
__________________
I can still remember what life was like before pain became my life long companion
PamelaJune is offline   Reply With Quote
"Thanks for this!" says:
ger715 (09-30-2017), kiwi33 (09-30-2017)
Old 09-30-2017, 09:18 PM   #35
PamelaJune
Senior Member
 
PamelaJune's Avatar
 
Join Date: Dec 2013
Location: Where my heart is
Posts: 1,101
Default

Haemoglobin very low. No sign of either surgeon today so far. General surgeon will come in I hope as the Neurosurgeon has told him to get on with it...

Feel very tired, effort to hold IPad & type, maybe going to sleep for a bit bye xx
__________________
I can still remember what life was like before pain became my life long companion
PamelaJune is offline   Reply With Quote
"Thanks for this!" says:
ger715 (10-02-2017), kiwi33 (10-01-2017)
Old 10-01-2017, 05:21 AM   #36
PamelaJune
Senior Member
 
PamelaJune's Avatar
 
Join Date: Dec 2013
Location: Where my heart is
Posts: 1,101
Default

Seen Neurosurgeon, he is such a caring man. A little perturbed here we are 7 days post op & while the spine is fine, nothing has progressed on account of the gut. Hopefully will see the General surgeon tonight & he will take some action. Poor nurse had to tolerate mum and her suggestion of a Bowel lavage, could see her visibly cringe under mums statement she'll be ok we used to do them all the time. I just said, and now you don't. Never mind, they'll come up with a plan xxx
__________________
I can still remember what life was like before pain became my life long companion
PamelaJune is offline   Reply With Quote
"Thanks for this!" says:
ger715 (10-02-2017), kiwi33 (10-01-2017)
Old 10-01-2017, 05:27 AM   #37
kiwi33
Senior Member
Community Welcome Team
 
kiwi33's Avatar
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 1,950
My Mood: Relentless lower back pain
Default

Pamela, it is good that the neurosurgeon is on the ball. I hope that the general surgeon can sort things out for you soon.

__________________
Knowledge is power.
kiwi33 is offline   Reply With Quote
"Thanks for this!" says:
ger715 (10-02-2017), PamelaJune (10-02-2017)
Old 10-02-2017, 02:06 AM   #38
ger715
Magnate
 
Join Date: Jul 2011
Location: Illinois
Posts: 2,127
My Mood: Relentless lower back pain
Default

Pam,
Wonder if the abdominal issues has to do with the hernias your surgeon cut thru/repaired, along with the mesh?

As you may remember, I had 3 Ventral Abdominal) incisional hernias in 2015 repaired, pubic, navel, and above navel/waist (epigastric) areas. All 3 were closed with mesh. My abdomen is still giving me problems.

Pray doctors will soon figure out why all the stomach pain, etc.


Gerry

Last edited by ger715; 10-02-2017 at 11:28 AM.
ger715 is offline   Reply With Quote
"Thanks for this!" says:
PamelaJune (10-02-2017)
Old 10-02-2017, 02:51 AM   #39
PamelaJune
Senior Member
 
PamelaJune's Avatar
 
Join Date: Dec 2013
Location: Where my heart is
Posts: 1,101
Default

I know Gerry, I keep thinking of you. Pain no better today, it's quite severe & im exhausted. I'm doing everything they ask me to do, and I have to go back over this line by line to make sure the context of conversation hasn't changed.

I'm not sure about the mesh it was a surprise to me, all he said was Agrade 3 mixed with my blood cells ....

Quote:
Originally Posted by ger715 View Post
Pam,
Wonder if the abdominal issues has to do with the hernias your surgeon cut thru/repaired, along with the mesh?

As you may remember, I had 3 Ventral Abdominal) incisional hernias in 2015 repaired, pelvic, navel, and above navel/waist (epigastric) areas. All 3 were closed with mesh. My abdomen is still giving me problems.

Pray doctors will soon figure out why all the stomach pain, etc.


Gerry
__________________
I can still remember what life was like before pain became my life long companion
PamelaJune is offline   Reply With Quote
Old 10-02-2017, 06:27 AM   #40
PamelaJune
Senior Member
 
PamelaJune's Avatar
 
Join Date: Dec 2013
Location: Where my heart is
Posts: 1,101
Default My update

So today, one of my nurses totally cracked it, she has been going home worrying over me so she paged my General Surgeon's no.2. 2 answered the page & my nurse said I've got this patient of yours in combination with a Neurosurgeon- she is spiking temps in excess of 40 every day, her haemoglobin is 76, she is having rigours, she is very unwell, she has now resorted to attempting to explain her pain in as descriptive a manner as she can - she describes her pain as reactive arthritis (she suffered this in 1987). She is doing her utmost to comply with all our directions and all the while paint a clear picture here for us of just how unwell she is. We've been waiting on you for 5 days, 5 days. 2 nights ago she was carted off in the middle of the night for all sorts of tests & activity & still I have nothing. I can see her getting worse in front of my eyes... Her temp right now is 40, she is in the midst of another rigour, what are you going to do. ....
No 2 turns up & says has GS been in here, uhm no? Voila like a magician he appears. He stands and says to me & my dear DB, I've looked at your scans & your bloods etc, you have an infection, you have a haemotoma & you need urgent blood transfusions - now. We're sending you down to radiology now for a picc line to be inserted. The haemotoma will be lanced & drained tomorrow, the most important thing is to get some blood in you, get your temp under control along with your pain (btw I notice you've halved your pain meds, I said yes) so I'm increasing your pain meds back up for 3 days.

DB left as I was going down, he looks extremely stressed, I said it's ok, it's not history repeating itself, we'll be ok xxx sigh, I hope so, this explains why I'm so dog tired, dehydrated and in so much pain.... I wonder if the rhetoric rain will stop soon lol
__________________
I can still remember what life was like before pain became my life long companion

Last edited by PamelaJune; 10-02-2017 at 07:25 AM.
PamelaJune is offline   Reply With Quote
"Thanks for this!" says:
ger715 (10-02-2017), kiwi33 (10-02-2017)
Reply

Tags
10mg, oxynorm, pain, rtwplan, valium

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Can TOS Cause Lower Back and Leg Pain? Coop42 Thoracic Outlet Syndrome 0 06-17-2017 09:23 PM
Lower back pain, Bottom Rib Cage pain skywalker1988 Chronic Pain 1 03-03-2014 05:15 PM
tremors, muscles cramps, joints pain, lower back pain, difficulty walking, shoulder claudedaniel New Member Introductions 5 04-05-2013 12:22 PM
right lower back pain EVANGEL Spinal Disorders & Back Pain 1 03-24-2008 05:26 PM
lower back pain brian524 Chronic Pain 1 02-20-2008 09:51 PM


All times are GMT -5. The time now is 09:48 PM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2018 DragonByte Technologies Ltd.

All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy