Chronic Pain Whatever the cause, support for managing long term or intractable pain.


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Old 10-04-2017, 12:24 AM #51
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Pam,
You have been through so much. Can't help but wonder if the hernia work/repair?/mesh has anything to do with the gut pain.

Maybe the surgeon who did the abdominal hernias/mesh last week at the same time you were under having the spine surgery may be able to get some idea what might be going on in this area.

Even tho I had rectal cancer surgery in 2012; My abdominal pain problems were and are still much worse since the 3 abdominal hernias repair/mesh surgery in 2015. My spine pain from previous/fusion/laminectomy, as well as PN are no where nearly as painful as my abdominal pain .

Hope you don't mind my bringing this up; especially since your "gut" pain is much worse than the spinal fusion pain.
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Old 10-04-2017, 03:33 AM #52
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Like you Gerry, I can't help but wonder, however a very big part of me says no it can't be, this hemotoma happens to be in the exact spot where I had the hematoma in 2001 that turned to septacemia in 2001. It is also where I developed the MRSA in 2001 & is the site of the temporary bag.

The incisional entry point for the whole procedure is above the navel & is allegedly where he has entwined the latest & greatest Agrade mesh (of which I know nothing) but having read all the report reviews none have complained of him other than his secretary expects payment beforehand. I didnt pay in advance, none of my other surgeons expect it...

Anyway, where the hemotoma is, - I saw it last night even though I was supposed to be twilight sedated I could see it all, there were 2 & they said they were connected & "communicating". He drained 10ml of yuck last night in surgery & said it was very hard to get out, they closed it up with the external drain & overnight it drained 100ml. But as I said, the aspiration requirement quickly changed to don't touch, gown up etc. the drain was removed at 1pm today, it's very sore, the site where the platt line tap went in is sore, but still the predominant pain remains underneath the skin in the quadrant where I had that trouble all those years ago.

Narula Neurosurgeon a lot happier & communicative today, he indicated depending on how well my spine recovers, he may go the L5/S1 posterior route down the track, not all is over we're his words. He is very pleased given all I have going on how I'm complying with physio & the effort I'm putting in.

I don't even want to think hernias /mesh. All I think of is you and your trauma since so I've stuck my head in the denial bucket & if I have to look at it I will, otherwise, I'm sticking with MRSA has been known to lay dormant in pockets of cells for years long after it's been thought to have cleared.

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Pam,
You have been through so much. Can't help but wonder if the hernia work/repair?/mesh has anything to do with the gut pain.

Maybe the surgeon who did the abdominal hernias/mesh last week at the same time you were under having the spine surgery may be able to get some idea what might be going on in this area.

Even tho I had rectal cancer surgery in 2012; My abdominal pain problems were and are still much worse since the 3 abdominal hernias repair/mesh surgery in 2015. My spine pain from previous/fusion/laminectomy, as well as PN are no where nearly as painful as my abdominal pain .

Hope you don't mind my bringing this up; especially since your "gut" pain is much worse than the spinal fusion pain.
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Old 10-05-2017, 01:34 AM #53
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I have seen Harsha's no.2 his RMO. I am am off for yet another CT scan. They took more bloods this morning, my haemoglobin has gone up and the infection numbers have gone down. All good news. Now they just have to find out what this thing is that's seems to be growing the size of a football. RMO thinks it's another haematoma- quite likely the one I mentioned yesterday, sealed itself off and growing away quite merrrily in its own and without the infected blood supply. She said it is very hard to touch in comparison to other Stamos u tissue surrounding it. So like the other one, it may require lancing but not today, not today!!!.

I know I've said this before but she has to be the most beautiful female doctor I have ever laid eyes on. And yet her boss gives her so much grief, he treats her like Shiite. I wonder maybe because she is so beautiful she was expected to be the good girl married off into a wealthy family (arranged marriage) and do nothing other than have babies and entertain. This child due in 6 or so weeks will be her 3rd and she will have then 3 babies all under the age of three. She is very determined, very knowledgeable. She keeps thanking me because I keep saying you should be doing this that and the other, to accomodate for your pregnancy and you most definitely should not be down on your hands and knees taking blood from my ankles.... and while she did this again today not one person stepped forward to help her up. I know she is foreign and this is a catholic hospital but gosh, I'm C of E, it shouldn't make any difference....
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Old 10-05-2017, 10:32 AM #54
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Quote:
Originally Posted by PamelaJune View Post
I have seen Harsha's no.2 his RMO. I am am off for yet another CT scan. They took more bloods this morning, my haemoglobin has gone up and the infection numbers have gone down. All good news. Now they just have to find out what this thing is that's seems to be growing the size of a football. RMO thinks it's another haematoma- quite likely the one I mentioned yesterday, sealed itself off and growing away quite merrrily in its own and without the infected blood supply. She said it is very hard to touch in comparison to other Stamos u tissue surrounding it. So like the other one, it may require lancing but not today, not today!!!.

I know I've said this before but she has to be the most beautiful female doctor I have ever laid eyes on. And yet her boss gives her so much grief, he treats her like Shiite. I wonder maybe because she is so beautiful she was expected to be the good girl married off into a wealthy family (arranged marriage) and do nothing other than have babies and entertain. This child due in 6 or so weeks will be her 3rd and she will have then 3 babies all under the age of three. She is very determined, very knowledgeable. She keeps thanking me because I keep saying you should be doing this that and the other, to accomodate for your pregnancy and you most definitely should not be down on your hands and knees taking blood from my ankles.... and while she did this again today not one person stepped forward to help her up. I know she is foreign and this is a catholic hospital but gosh, I'm C of E, it shouldn't make any difference....

Pam; do the doctors have any idea why so many haetmatomas? This latest appears really large.
Do you think the doctor being foreign had anything to do with not being helped? They even let you make your own messy bed with blood and vomit. Their nurses/help seem unwilling to do any more than necessary. Not sure being foreign or religion has anything to do with helping the doctor.

Sure hope you can get as much as possible taken care of before you are discharged. Still appears a lot going on.

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Old 10-05-2017, 11:26 AM #55
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No idea Gerry, wish we knew, I wouldn't have gone through 01 or 02. In the main this hospital has the best reputation across Perth, it's the hospital prople travel far & wide to. They wouldn't normally let me near doing anything for myself previously. The making of the bed yesterday a one off I believe. In other hospitals across town I've made my bed many a time and it's been expected almost or certainly welcomed.

Poor old soul across the way just had a bad fall, we knew it would happen, she's been climbing over the bed rails all night long. Hell of a crash. Hope she's done little damage.


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Pam; do the doctors have any idea why so many haetmatomas? This latest appears really large. 03
Do you think the doctor being foreign had anything to do with not being helped? They even let you make your own messy bed. Their nurses/help seem unwilling to do any more than necessary. Not sure race or religion has anything to do with it.

Sure hope you can get as much as possible taken care of before you are discharged. Still appears a lot going on.
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Old 10-06-2017, 11:20 PM #56
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Terrible night, vomiting over 10 times, pain score well over 10 & unable to control. Had to get Emergency response team in. Worst night ever, thought I was going to die, so did DB. Looks like I'm vomiting up blood, they did more scans this morning & took more bloods, likely to have another blood transfusion. Mum coming this afternoon, my sister on her way now. Will update you when I have more energy, hard to type much, can't seem to spell
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Old 10-09-2017, 09:15 PM #57
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Quote:
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Terrible night, vomiting over 10 times, pain score well over 10 & unable to control. Had to get Emergency response team in. Worst night ever, thought I was going to die, so did DB. Looks like I'm vomiting up blood, they did more scans this morning & took more bloods, likely to have another blood transfusion. Mum coming this afternoon, my sister on her way now. Will update you when I have more energy, hard to type much, can't seem to spell

Pam,
Haven't been on NT for the past few days. Was stunned when I read this post. Please keep updates when possible.

As always, you are in my prayers.

Gerry
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Old 10-10-2017, 09:12 AM #58
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So 1 haematoma was 10cm but is reducing in size, they lanced & aspirated 10ml and then it drained a further 100ml. Then they took the drain out, may have been better to have kept it there a day more.

I'm still in here, I've changed wards now it's nice enough. It a smalller room and I can't use my walker all the way round the room but I just use it to go out in the corridors and to help keep me upright. Anyway I have a zillion tests done another $5k worth in just one week, DB got one of the radiology bills it will be the lance and drain one & the picc line insert probably $1800 each not unlike the July bills, hope we get a decent amount back from Medibank & Medicare as I paid all the July bills up front. I might get DB to bring the bills in tomorrow with the claim forms and post them all off and just pay the gap this time round. Im reminded I have to check I paid the house insurance and the cars all due 10,11&12th October. Might do that now while my mind is a bit more with it. I've been away in fairyland I can tell you.

My regular painkillers doing nothing for this stomach pain, the Nevro working on the upper thoracic which is a boon.

Hemoglobin has returned to 99 was 76 when they gave the transfusions, went up to 113 but has dropped. Spent all friday / Saturday vomiting up blood, at first fresh and then what they call old coffee grounds, I knew it was blood I could taste it, not to mention it was all over me.

I always seem to get the one witch night nurse, she refused my medication at 11.26, got that sorted & then told me at 5 am I couldn't have more until I stopped vomiting as all I was written up for was oral, I truly thought I was going to die, the pain excruciating & the vomit never ending, even after they gave me ondancetron & then stemetil. I couldn't control it, finally I vomited over myself and the bed so the night nurse had to change my linen, I cleaned myself up, I said to her I'd put my dog to sleep if she presented like this in such pain & obviously ill. I asked to see the RMT. I told her, she said if I didn't improve she was to call her & im not improving at all. So then she told me I was too low down in the bed & I was to dig my heels in and push myself up the bed, I said I like my feet to touch the bottom rail, but she insisted & made me dig in 4 times & inch myself up. What sort of power trip is that all about???

Then DB rang in & demanded to speak with the RMT when he came in the afternoon & he was great he charted me new drugs incl if vomiting by injection & if I vomited again they were to report it & I to have an endoscopy first thing Monday am. So Sunday the pain returned & I vomited from 3pm to 5pm, my friend was here so we gave a witness.

They didn't report it to the doctor so no endoscopy as yet, but I've had other tests and now it seems my left kidney is slightly blocked. Not sure how that's happened or what it means. I got transferred to a new Ward yesterday & im happy seeing the care they are taking, the other Ward was good for Narula Neurosurgeon patients but not gut problems. Harsha showed me my gut and all the problems it looks nightmarish I must admit. Either way I still have to have this endoscopy as he says I've got a bleeding ulcer /hernia just not sure where from the external imaging. Narula did say to me, if I'm not happy with anything I'm to tell him straight away, the nurses on this ward don't like him much, but I think he's done a fabulous job on my spine, truly, it's as if I've not had major work done on it so far Pain wise. Everything pain wise is mostly from my gut except yesterday when I jarred my back with the difference in height between the toilet seats, I was expecting to go lower like my old room so hit this higher one quite hard and really jolted my spine.

Keep well my dear friends xx

Gerry, hope you've been ok, you were missed xxx
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Old 10-10-2017, 10:01 AM #59
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Dr Harsha just been in 10.30pm... gave me an injection - local anaesthetic 2 needles into the spot in my gut where it's so swollen, said to see if that helps. He spoke to his friend pain Mgt specialist (I might be under a new one soon by the round of it) who will come see me tomorrow, they think I have a nerve tear in the abdomen wall as well. Harsha has said I'm having the endoscopy first thing in the morning. Said he'll be back at 6am, long hours these doctors work.... he's very nice & I feel very comforted by his approach.
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Old 10-10-2017, 07:55 PM #60
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Dr Harsha just been in 10.30pm... gave me an injection - local anaesthetic 2 needles into the spot in my gut where it's so swollen, said to see if that helps. He spoke to his friend pain Mgt specialist (I might be under a new one soon by the round of it) who will come see me tomorrow, they think I have a nerve tear in the abdomen wall as well. Harsha has said I'm having the endoscopy first thing in the morning. Said he'll be back at 6am, long hours these doctors work.... he's very nice & I feel very comforted by his approach.

Pam; this is unreal. All this vomiting. It appears they are not sure why all the "gut" pain either. I would think the straining alone of vomiting has added to the pain. With the rise and fall of the abdomen hurling out everything and anything including blood. From what you mention, it seems like the incision for the spinal fusion was thru your abdominal area rather than the backside.

I have been dealing with a lot of painful issues. Haven't been able to post as often on NT.

I believed I mentioned my having a Colonoscopy on Thursday Oct. 19th. Am really dreading the prep; but it's needs to be done.

Providing the outcome of the Colonoscopy, I am seriously thinking about getting detox of all opioids and Valium in a hospital environment. Not sure how I will be dealing with the pain issues; but the several years of opioid meds/constipation have just about wrecked my body causing more pain than why they were prescribed. My daughter is looking into arranging the detox, etc.

Pray your doctors will soon be able to get to the bottom of all these problems and soon be back home.

Last edited by ger715; 10-10-2017 at 10:13 PM.
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