Chronic Pain Whatever the cause, support for managing long term or intractable pain.


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Old 10-11-2017, 04:51 AM #61
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Oh Gerry, yes the colonoscopy prep is dreadful, you will be in my thoughts, it's quite dreadful.

I think the detox is a fabulous idea, not sure if you remember my cousins had the detox done back earlier this year and my aunt last week. All went well. Very brave of you to entertain the idea, it will be worth it though. Billy went from 180-200mg Oxy, 30 Diaz spent 4 days on a ketamine detox, been on pain relief for 5 plus years, now takes nothing once the ketamine weaned him off and then off of the ket, in there for 6 days total. Best 6 days ever he says. My aunt last week, similar but not ketamine infusions to assist, just something else. Very happy she is and her essential tremor has halved to boot...

Not sure why the vomit, I've always had some form of vomit with bowel obstructionism but the ct scan after the Peco prep dye showed the colon clear as a whistle. No issues at all, so it's not making me vomit.

Dr a Harsha came again tonight, as no vomit today no endoscopy tomorrow, (yay) will meet the new PM tomorrow instead, met his nurse today, she was amazed at how much I know, so likely some sort of nerve block for the abdomen.... Harsha hopes I can go home by a Saturday. I will have been here just short of W3 weeks...

Quote:
Originally Posted by ger715 View Post
Pam; this is unreal. All this vomiting. It appears they are not sure why all the "gut" pain either. I would think the straining alone of vomiting has added to the pain. With the rise and fall of the abdomen hurling out everything and anything including blood. From what you mention, it seems like the incision for the spinal fusion was thru your abdominal area rather than the backside.

I have been dealing with a lot of painful issues. Haven't been able to post as often on NT.

I believed I mentioned my having a Colonoscopy on Thursday Oct. 19th. Am really dreading the prep; but it's needs to be done.

Providing the outcome of the Colonoscopy, I am seriously thinking about getting detox of all opioids and Valium in a hospital environment. Not sure how I will be dealing with the pain issues; but the several years of opioid meds/constipation have just about wrecked my body causing more pain than why they were prescribed. My daughter is looking into arranging the detox, etc.

Pray your doctors will soon be able to get to the bottom of all these problems and soon be back home.
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Old 10-11-2017, 11:13 PM #62
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Quote:
Originally Posted by PamelaJune View Post
Oh Gerry, yes the colonoscopy prep is dreadful, you will be in my thoughts, it's quite dreadful.

I think the detox is a fabulous idea, not sure if you remember my cousins had the detox done back earlier this year and my aunt last week. All went well. Very brave of you to entertain the idea, it will be worth it though. Billy went from 180-200mg Oxy, 30 Diaz spent 4 days on a ketamine detox, been on pain relief for 5 plus years, now takes nothing once the ketamine weaned him off and then off of the ket, in there for 6 days total. Best 6 days ever he says. My aunt last week, similar but not ketamine infusions to assist, just something else. Very happy she is and her essential tremor has halved to boot...

Not sure why the vomit, I've always had some form of vomit with bowel obstructionism but the ct scan after the Peco prep dye showed the colon clear as a whistle. No issues at all, so it's not making me vomit.

Dr a Harsha came again tonight, as no vomit today no endoscopy tomorrow, (yay) will meet the new PM tomorrow instead, met his nurse today, she was amazed at how much I know, so likely some sort of nerve block for the abdomen.... Harsha hopes I can go home by a Saturday. I will have been here just short of W3 weeks...

Pam,

It's good to know you are doing better. Just wish they could find adefinite reason for what's going on. Glad the colon is clean; I was concerned about your having a bowel obstruction.

Thanks for the info about the detox....Not sure how this will be accomplished. I would not inform my PM doctor of the possibility of going into detox. I don't want to be in an area of those dealing with the drug
abuse that has been rapid in the country. As you might recall, my daughter
is certified with the Drug Mental areas. She actually was on the front page of the Chicago Tribune a few months ago about her work with this epidemic.

My daughter has worked with many of the parents in getting help and working with some of the hospitals to get those going thru abuse into
rehab; not sure how it will go with someone being admitted for medication dependency and not abuse ( I have a cabinet with many of the extra opioid meds because I do not allow myself to take the max amount so I have additional pain meds not used.) Sherry is quite on the "ball" with wanting me to try doing the rehab. Again not sure how this will come about without a doctor admitting me; but rather my daughter as my advocate. Both of usbelieve I am dealing with additional pain due to rebound.

This happened some years ago taking too many Midrin for the migraines. I would take one; then a few hours later the pain would come back and take another; this went on until we realized "rebound was adding to the constant pain of the migraines.

Since being on the opioids, I am on a 2 day prep for the Colonoscopy. YUK!! It just makes me gag and hard to hold the prep in without throwing up.

I'm sure after 3 weeks in the hospital, you can hardly to get back home.
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Old 10-12-2017, 02:32 AM #63
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Pamela, it is good to read that things are looking better.

I hope that you will be able to get home on Saturday.

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Old 10-12-2017, 03:59 AM #64
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Sigh - Change of plan, Endoscopy under GA at 7pm tonight. (WA time Thursday)

Abdominal wall nerve block (??) Friday under GA not sure what time.

Maybe go home Saturday, likely Sunday!

In a lot of pain today, feel it racing up and down my legs, my gut & my spine. Last night pain so bad I rated it an 8 /10. It's quite subjective rating your pain. She looked at me & said you seem quite settled, I thought to myself I'm groaning in agony, I've got my knees on my chest (I've just had spine surgery -not a good plan) so I can be running my hands up and down the front /side of my thighs, my gut as I'm in so much pain. I don't consider that settled. She clarified by saying you seem settled because your flat on your back with the TV on....

Most nurses are just the salt of the earth, some I'm sure are in it for love / compassion/passion to help people, some are in it for the $, it's a job and a 3 night shift, weekend work pays as much as working 5 days a week, some are in it, it's a calling, some fell into it, parental influence & some I'm sure are sadists.

She took my BP - very high, common sign of pain, - pulse high, another indicator, temp 38, another indicator of pain. She said what do you want, I said 1 temgesic please & 1 Valium, she looked at my notes and said oh you haven't had much pain relief in the last 48 hrs, I said I'm worried about my bowel, I don't want to overload it. She said I'll give you 2 endone, I said no, maybe 2 temgesic, 1 Valium, please I'm sure it will help me and help this racing pain in my legs, it did, I slept until 5am when pain in legs returned, I'm sure it's linked to my gut, I've never had it before on the front /side of my thighs and lower abdomen.

Anyway, as a result if that the Doctor came in & said hmm will def do the endo, just if anything to confirm a theory & clean up / seal any ongoing bleeding. I feel relieved to be having it tbh.
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Old 10-13-2017, 07:14 AM #65
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Endoscopy showed severe inflammation of the intestinal tract. Nothing to indicate why I vomited up 10 blood bags. Nor do they know where it came from. The haematoma as been mentioned frequently as a possibility... he Finns a polyp which he took and sent off for biopsy. Good rmorning result, nothing there. Still problem with the left kidney, have to monitor. Lots of little gut complications all addded together with presenting pain making it hard for me to deal with particular as I seem to have my back pain under control. At least that's what Dr Gong said today.

No nerve block today, to much risk of infection still as my infection markers still very high but less than 200....

I may be here until Wednesday and the pain Mgt specialist may put me on the Tuesday list for an abdomanial wall nerve block then... (steroids) sigh....

I have to be extra careful of the mesh, hold myself when cough, not exert myself in anyway, and as we know I've been told I'm not able to bend or twist again.. I see the physio every day he says I'm making good progress and I have high, maybe a little too high expectation of myself

I even have trouble now on the loo twisting to wipe.... argh....
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Old 10-14-2017, 04:30 AM #66
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I'm home, took some talking and convincing on my behalf to influence them to release me but after we discuss all options and with my infection markers still being high (although better) too much risk to inject abdominal wall, the new Agrade mesh(!) & the 3 or 4 fusion cages -(I'm still not sure how many he did- I can't remember) DB thinks 3 & they couldn't do the 4th) wait 2 weeks & see if improvements otherwise return and have procedure, or wait in hospital another 2 weeks. ...no way.

Picc line removed, they wanted to leave it in and me attend hospital every morning for injections, I said you can give me the Antibiotics & Pantoprazole for me to take orally. I can't go home with 3 labs & this hanging out my arm with a 40.3 cm leading direct to my heart. Finally they saw sense (2.5hrs) I even have to keep the dressing on now for 7 days & wear a shower sleeve over it to wash as I have been in hospital.
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Old 10-14-2017, 12:01 PM #67
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Glad you are home Pam....
Also, there may be no need for the nerve block if you get better. I like the "wait and see" approach.
It appears you did a good job of talking your way out of the hospital. Actually, all too often hospital environments can add to infection risk. They had you long enough.
As always,
Lovee & Prayers
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Old 10-15-2017, 06:02 AM #68
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It is great that you are home.

I hope that the supportive environment (DB and your lodger) there is good for you .
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Old 10-15-2017, 07:09 AM #69
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Very good and caring xx
Quote:
Originally Posted by kiwi33 View Post
It is great that you are home.

I hope that the supportive environment (DB and your lodger) there is good for you .
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Old 10-17-2017, 06:00 PM #70
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Saw my GP yesterday, I'm signed off until November 10th. But I'll have to work a few odd days in between there from home. Conference diall today and payroll this Friday. In quite a lot of pain this morning, trying to keep quiet DB very stressed
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