Chronic Pain Whatever the cause, support for managing long term or intractable pain.


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Old 10-04-2017, 12:24 AM #1
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Pam,
You have been through so much. Can't help but wonder if the hernia work/repair?/mesh has anything to do with the gut pain.

Maybe the surgeon who did the abdominal hernias/mesh last week at the same time you were under having the spine surgery may be able to get some idea what might be going on in this area.

Even tho I had rectal cancer surgery in 2012; My abdominal pain problems were and are still much worse since the 3 abdominal hernias repair/mesh surgery in 2015. My spine pain from previous/fusion/laminectomy, as well as PN are no where nearly as painful as my abdominal pain .

Hope you don't mind my bringing this up; especially since your "gut" pain is much worse than the spinal fusion pain.
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Old 10-04-2017, 03:33 AM #2
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Like you Gerry, I can't help but wonder, however a very big part of me says no it can't be, this hemotoma happens to be in the exact spot where I had the hematoma in 2001 that turned to septacemia in 2001. It is also where I developed the MRSA in 2001 & is the site of the temporary bag.

The incisional entry point for the whole procedure is above the navel & is allegedly where he has entwined the latest & greatest Agrade mesh (of which I know nothing) but having read all the report reviews none have complained of him other than his secretary expects payment beforehand. I didnt pay in advance, none of my other surgeons expect it...

Anyway, where the hemotoma is, - I saw it last night even though I was supposed to be twilight sedated I could see it all, there were 2 & they said they were connected & "communicating". He drained 10ml of yuck last night in surgery & said it was very hard to get out, they closed it up with the external drain & overnight it drained 100ml. But as I said, the aspiration requirement quickly changed to don't touch, gown up etc. the drain was removed at 1pm today, it's very sore, the site where the platt line tap went in is sore, but still the predominant pain remains underneath the skin in the quadrant where I had that trouble all those years ago.

Narula Neurosurgeon a lot happier & communicative today, he indicated depending on how well my spine recovers, he may go the L5/S1 posterior route down the track, not all is over we're his words. He is very pleased given all I have going on how I'm complying with physio & the effort I'm putting in.

I don't even want to think hernias /mesh. All I think of is you and your trauma since so I've stuck my head in the denial bucket & if I have to look at it I will, otherwise, I'm sticking with MRSA has been known to lay dormant in pockets of cells for years long after it's been thought to have cleared.

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Originally Posted by ger715 View Post
Pam,
You have been through so much. Can't help but wonder if the hernia work/repair?/mesh has anything to do with the gut pain.

Maybe the surgeon who did the abdominal hernias/mesh last week at the same time you were under having the spine surgery may be able to get some idea what might be going on in this area.

Even tho I had rectal cancer surgery in 2012; My abdominal pain problems were and are still much worse since the 3 abdominal hernias repair/mesh surgery in 2015. My spine pain from previous/fusion/laminectomy, as well as PN are no where nearly as painful as my abdominal pain .

Hope you don't mind my bringing this up; especially since your "gut" pain is much worse than the spinal fusion pain.
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Old 10-05-2017, 01:34 AM #3
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I have seen Harsha's no.2 his RMO. I am am off for yet another CT scan. They took more bloods this morning, my haemoglobin has gone up and the infection numbers have gone down. All good news. Now they just have to find out what this thing is that's seems to be growing the size of a football. RMO thinks it's another haematoma- quite likely the one I mentioned yesterday, sealed itself off and growing away quite merrrily in its own and without the infected blood supply. She said it is very hard to touch in comparison to other Stamos u tissue surrounding it. So like the other one, it may require lancing but not today, not today!!!.

I know I've said this before but she has to be the most beautiful female doctor I have ever laid eyes on. And yet her boss gives her so much grief, he treats her like Shiite. I wonder maybe because she is so beautiful she was expected to be the good girl married off into a wealthy family (arranged marriage) and do nothing other than have babies and entertain. This child due in 6 or so weeks will be her 3rd and she will have then 3 babies all under the age of three. She is very determined, very knowledgeable. She keeps thanking me because I keep saying you should be doing this that and the other, to accomodate for your pregnancy and you most definitely should not be down on your hands and knees taking blood from my ankles.... and while she did this again today not one person stepped forward to help her up. I know she is foreign and this is a catholic hospital but gosh, I'm C of E, it shouldn't make any difference....
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Old 10-05-2017, 10:32 AM #4
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Quote:
Originally Posted by PamelaJune View Post
I have seen Harsha's no.2 his RMO. I am am off for yet another CT scan. They took more bloods this morning, my haemoglobin has gone up and the infection numbers have gone down. All good news. Now they just have to find out what this thing is that's seems to be growing the size of a football. RMO thinks it's another haematoma- quite likely the one I mentioned yesterday, sealed itself off and growing away quite merrrily in its own and without the infected blood supply. She said it is very hard to touch in comparison to other Stamos u tissue surrounding it. So like the other one, it may require lancing but not today, not today!!!.

I know I've said this before but she has to be the most beautiful female doctor I have ever laid eyes on. And yet her boss gives her so much grief, he treats her like Shiite. I wonder maybe because she is so beautiful she was expected to be the good girl married off into a wealthy family (arranged marriage) and do nothing other than have babies and entertain. This child due in 6 or so weeks will be her 3rd and she will have then 3 babies all under the age of three. She is very determined, very knowledgeable. She keeps thanking me because I keep saying you should be doing this that and the other, to accomodate for your pregnancy and you most definitely should not be down on your hands and knees taking blood from my ankles.... and while she did this again today not one person stepped forward to help her up. I know she is foreign and this is a catholic hospital but gosh, I'm C of E, it shouldn't make any difference....

Pam; do the doctors have any idea why so many haetmatomas? This latest appears really large.
Do you think the doctor being foreign had anything to do with not being helped? They even let you make your own messy bed with blood and vomit. Their nurses/help seem unwilling to do any more than necessary. Not sure being foreign or religion has anything to do with helping the doctor.

Sure hope you can get as much as possible taken care of before you are discharged. Still appears a lot going on.

Last edited by ger715; 10-05-2017 at 09:40 PM.
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Old 10-05-2017, 11:26 AM #5
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No idea Gerry, wish we knew, I wouldn't have gone through 01 or 02. In the main this hospital has the best reputation across Perth, it's the hospital prople travel far & wide to. They wouldn't normally let me near doing anything for myself previously. The making of the bed yesterday a one off I believe. In other hospitals across town I've made my bed many a time and it's been expected almost or certainly welcomed.

Poor old soul across the way just had a bad fall, we knew it would happen, she's been climbing over the bed rails all night long. Hell of a crash. Hope she's done little damage.


Quote:
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Pam; do the doctors have any idea why so many haetmatomas? This latest appears really large. 03
Do you think the doctor being foreign had anything to do with not being helped? They even let you make your own messy bed. Their nurses/help seem unwilling to do any more than necessary. Not sure race or religion has anything to do with it.

Sure hope you can get as much as possible taken care of before you are discharged. Still appears a lot going on.
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Last edited by PamelaJune; 10-05-2017 at 12:53 PM.
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Old 10-06-2017, 11:20 PM #6
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Terrible night, vomiting over 10 times, pain score well over 10 & unable to control. Had to get Emergency response team in. Worst night ever, thought I was going to die, so did DB. Looks like I'm vomiting up blood, they did more scans this morning & took more bloods, likely to have another blood transfusion. Mum coming this afternoon, my sister on her way now. Will update you when I have more energy, hard to type much, can't seem to spell
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Old 10-09-2017, 09:15 PM #7
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Quote:
Originally Posted by PamelaJune View Post
Terrible night, vomiting over 10 times, pain score well over 10 & unable to control. Had to get Emergency response team in. Worst night ever, thought I was going to die, so did DB. Looks like I'm vomiting up blood, they did more scans this morning & took more bloods, likely to have another blood transfusion. Mum coming this afternoon, my sister on her way now. Will update you when I have more energy, hard to type much, can't seem to spell

Pam,
Haven't been on NT for the past few days. Was stunned when I read this post. Please keep updates when possible.

As always, you are in my prayers.

Gerry
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