Go Back   NeuroTalk Support Groups > >

Chronic Pain Whatever the cause, support for managing long term or intractable pain.

I'm new, here's my story...

Thread Tools Display Modes
Old 10-20-2017, 11:21 PM   #1
New Member
Join Date: Oct 2017
Posts: 5
Default I'm new, here's my story...

I'm 66 years old and have been living with chronic back pain and fibromyalgia for 30 years. Back pain is lumbar, along with nerve pain that has come and gone down one leg or the other and at times both at the same time. Last year it became more than I could handle; I really felt my quality of life was really low, causing me serious depression and anxiety. I did my research/homework and found a top notch neurosurgeon, who then recommended an orthopedic surgeon and they together performed laminectomy and fusion L3/4, L4/5 in December 2016. Since then, the nerve pain down both my legs has worsened. I've gone through phys therapy on 3 separate occasions and have been seeing a pain mngmnt doc who keeps wanting to do nerve injections which I continue to refuse, having had way more than I ever should have had over the course of 30 years. Yesterday I had a nerve/muscle test, EMG/NCV which showed moderate/severe nerve damage from L2 through S1 on the right and the same on the left, L5/S1. No reflex in right knee or ankle. So, where do I go from here? Ortho surgeon recommends I go back to pain doc and see what he recommends. I cannot take gabapentin or Lyrica, or any steroid medication. Not sure what's left? And, what's really upsetting me is I went ahead with the surgery because of the nerve compression; I was told I had severe spinal stenosis and spondylolisthesis and after surgery, the neurosurgeon told me he decompressed the nerves, but they were much worse than he anticipated, that was 11 months ago. And now I'm told I have compressed/damaged nerves at that location? I'm at a complete loss.
painfulnana is offline   Reply With Quote
Old 10-20-2017, 11:46 PM   #2
Community Support Team
Jo*mar's Avatar
Join Date: Aug 2006
Location: USA
Posts: 25,759
My Mood: I'm new, here's my story...

I know someone that had spinal stenosis and spondylolisthesis pinching nerves and it took 2 tries for surgeon to "clean out" the right amount.. he was conservative the first time, but a year or so later the paint came back, the second surgery worked much better..

We also have a Spinal forum - you can post there also & if you have a MRI report you can share it there - sometimes the written report wording can help with getting better info. https://www.neurotalk.org/forum22/

Did your therapy try TENS, IF stim, low level/soft laser, ultrasound, traction, anything like those?

Maybe a SCS might be something to look into since some meds are an issue.
We have a SCS sub forum also..

most of the things I mentioned can be found with a site search - in past threads or posts..
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Community Guidelines linked @ at bottom of our pages.
Jo*mar is offline   Reply With Quote
"Thanks for this!" says:
painfulnana (10-22-2017), PamelaJune (10-21-2017)
Old 10-21-2017, 04:13 PM   #3
New Member
Join Date: Oct 2017
Posts: 5

thanks so much! PT tried fascia release, traction, and all kinds of stretches. Ortho surgeon won't ok any more therapy. Told me to take what I've learned and do it at home. I'll check out the spinal forum. thanks again
painfulnana is offline   Reply With Quote
"Thanks for this!" says:
PamelaJune (10-21-2017)

nerve, neurosurgeon, pain, surgeon, told

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Same old story KittyLady The Stumble Inn 3 09-12-2012 01:52 PM
Social Security News: Powerful TV Story On Backlogs (VIDEO Story) Stitcher Parkinson's Disease 1 07-14-2008 11:55 AM
My Story So Far ............. Bassetcase Trigeminal Neuralgia 7 09-03-2007 04:34 PM

All times are GMT -5. The time now is 12:37 PM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.

Powered by vBulletin • Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2019 DragonByte Technologies Ltd.

All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy