Chronic Pain Whatever the cause, support for managing long term or intractable pain.


advertisement
Reply
 
Thread Tools Display Modes
Old 06-06-2018, 07:26 PM #1
Jake1974 Jake1974 is offline
Newly Joined
 
Join Date: Jun 2018
Posts: 1
5 yr Member
Jake1974 Jake1974 is offline
Newly Joined
 
Join Date: Jun 2018
Posts: 1
5 yr Member
Default Undiagnosed neuropathic pain

Hello.

I am 44 years old, male from Sweden. Otherwise healthy.

Since October 2015 I've had nerve pain, most severe in my feet, but also in my face and lower back.

I've had 4 neurological investigations (with EMG, nerve conduction studies and thermal thresholds), seen 7 neurologists and 30+ other doctors, and been on a multidisciplinary pain assesment.

All tests have come out fairly normal (except from some deviations on thermal thresholds) and nobody seems to have a reasonable explanation for my nerve pain, and a diagnosis of peripheral neuropathy has been ruled out.

Nevertheless, the pain clinic decided to refer me to an ortopedic surgeon for evaluating tarsal tunnel syndrome.

In February 2018 I had surgery for tarsal tunnel syndrome in my right foot (worst). According to the surgeon the tibial nerve had signs of compression and there were varicose veins in the tarsal tunnel.

Unfortunately the surgery didn't help at all. And these findings don't explain all of my symptoms anyway. So I guess there's something else going on.

The nerves affected by symptoms are: posterior tibial nerves in both feet, pudendal nerve (rectal area) on left side and like a "sun-burn" tingling in the skin on right side of my nose.

The pain is characterized as: tingling, prickling, cutting, stabbing, burning, crawling and some numbness.

There are also a lot of random muscle twitching at various locations in the body. Tinel's test is strongly positive when tapping on feet and lower spine.

Pain treatments I have tried (without significant effect): Gabapentin , Lyrica, Amitryptilin, Botox injections, Oxycontin, nerve blocks and cbd-oil.

The symptoms are always worse in the evenings. And slowly getting worse overall.

It's a total inferno of unpleasant sensations in my feet 24-7, and it has caused devastating effects on my life.

Any suggestions? How can I get a proper diagnosis?

Regards, Jake
Jake1974 is offline   Reply With QuoteReply With Quote

advertisement
Old 06-06-2018, 09:56 PM #2
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,678
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,678
15 yr Member
Default

You might explore our forum - Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)
(RSD and CRPS) for short
https://www.neurotalk.org/forum21/
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jake1974 (06-07-2018)
Reply

Tags
feet, nerve, pain, symptoms, tunnel

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Neuropathic pain kiwi33 Peripheral Neuropathy 2 07-16-2016 03:33 PM
Ms & neuropathic pain PegMeerkatz Chronic Pain 3 10-21-2010 07:40 PM
Neuropathic Pain Hermes New Member Introductions 5 10-19-2010 09:39 AM
Neuropathic Pain Hermes Peripheral Neuropathy 27 09-14-2010 09:34 AM
Neuropathic Pain josephine2007 New Member Introductions 5 02-02-2008 11:06 AM


All times are GMT -5. The time now is 05:20 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.