Chronic Pain Whatever the cause, support for managing long term or intractable pain.


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Old 12-18-2020, 03:55 PM #1
Maxxine Maxxine is offline
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Join Date: Jan 2020
Location: Canada
Posts: 7
3 yr Member
Maxxine Maxxine is offline
Junior Member
 
Join Date: Jan 2020
Location: Canada
Posts: 7
3 yr Member
Default Don't know what else to do

Hello,

I have had chronic pain for almost 4 years. I have had multiple blood tests, x-rays and a couple MRI's. I have seen a neurologist. He told me it's most likely fibromyalgia. But he didn't diagnose me, just referred me to a hospital with an average wait time of 2 years.

I only experience nerve pain on my whole right side. Any injury will cause me severe pain for 2 day to 2 weeks. Depending on the injury. My pain is still getting worse. It hasn't slowed down. I'm on gabapentin, cymbalta, T3s as needed, birth control (as my cycle made it so I only had maybe 3 good days a month) and amitriptyline. I also suffer from migraines. I get really bad "attacks", I start overheating and sweating excessively, along with flu like symptoms and the feeling of tiny pinprick electrical zaps over my entire body. It will eventually subside but I have to lay in the shower for at least 30mins to level out my temp. Certain chairs, hot environments, exercise and certain types of clothing will cause these attacks. I also occasionally get a red rash right under eyes that burns like a chemical burn and feels hot to the touch.


At this point I have no idea what is happening in my body. I don't know what else I can do to find out what is wrong. All my tests come back 100% normal. I feel insane and everytime I get told I'm 100% normal its very upsetting and I loose encouragement to keep trying to find out whats wrong.


Any tips or ideas I'm welcome to. At this point I'm willing to try anything at least once.

Thank you.
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