[ImNoSuperGirl]

Hey (:

I Have CRPS, and am just wondering if anyone else with the same condition wants to chat and stuff

Love

[razzle51]

What is it??????

[Chemar]

Hi ImNoSuperGirl and welcome to NeuroTalk

we have a forum for CRPS/RSD here
http://neurotalk.psychcentral.com/forum21.html

hi Razzle
CRPS is Complex Regional Pain Syndromes also known as RSD / Reflex Sympathetic Dystrophy

[ali12]

Hi - I also have CRPS/RSD. I'm so sorry to hear that you are dealing with it too. I have had CRPS since I was 12 years old (I am now 13) and it affects my left leg and right arm.

If you ever want to chat, I am here

Take care and I hope you're having a low pain day

Alison

[clownie]

I just joined on here today. I was Dx with RSD in my R foot on july 23 07. I now have it full body. Except in my eyes and ears and organs. I'm really one of the very lucky ones cause I'm still very mobily most the time.

Clownie

[Idealist]

Hi, INSG,

I'm with Razzle. Exactly what is CRPS? Is it a nerve disease? I'm really interested to know because I've recently been diagnosed with a nerve disease, but they can't seem to pin it down to one specific condition. I hope it's not something that's too painful. Good luck and best wishes to you.

[Jodee]

Its complex regional pain syndrome.. Its sympathetic nerve pain its burning pain almost like standing in front of a campfire i explain it that way.. Yes its very painful about cancer pain on the pain scale. Its old name was rsd but they are changing it to crps. One can get it from almost anything. Surgery, stress fractures, bites etc. Hope this helps.
JO

Originally Posted by Idealist

Hi, INSG,

I'm with Razzle. Exactly what is CRPS? Is it a nerve disease? I'm really interested to know because I've recently been diagnosed with a nerve disease, but they can't seem to pin it down to one specific condition. I hope it's not something that's too painful. Good luck and best wishes to you.

[KelliS79]

I have had RSD/ CRPS since I was 13 and am now 28 years old. I have it in my right toe, foot, leg, groin and lower back. I have tried NUMEROUS meds but am currently on Neurontin 4800mg,Tegretol XR 800mg, Tramadol 300mg, Effexor XR 75mg, Voltaren 400mg, (1) Lidoderm patch all daily. Which is less than in the past but my neurontin is wayyy more then it ever use to be. I have tried Cymbalta before I went to Effexor but I had too many side effects. I also tried Lyrica and seen GREAT results but you can't take more then (8) 75mg per day and was self medicating 16 daily. So I switched back to neurontin to be able to up the dosage.
I am currently having more break through pain and would love to talk to someone about some of the meds they have tried so I can discuss more options with my Drs.
I take the following for these reasons:
Neurontin - burning pain, tegretol - shooting pain in my spine & legs, tramadol-breakthrough pain, effexor- pain & depression caused by pain, voltaren - anti inflamatory, lidoderm patch - numb nerve pain in localized area.

[Abbie]

Hi KelliS79!!!

Welcome to Neurotalk!!

Here is the link for our RSD/CRPS Forum:
http://neurotalk.psychcentral.com/forum21.html

You will find lots of information and a WONDERFUL group of people there!!

Please feel free to roam around and join in anywhere you feel comfortable.

I hope to see you around the boards.

Abbie

[redman179]

Originally Posted by ImNoSuperGirl

Hey (:

I Have CRPS, and am just wondering if anyone else with the same condition wants to chat and stuff

Love

just had scs done last wk!