Chronic Pain Whatever the cause, support for managing long term or intractable pain.


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Old 07-04-2008, 09:49 PM #11
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[I am super sensitive to just about all meds so I take as little as possible]

Have you ever tried homeopathy or alternative treatments?
acupuncture, hypnosis, things along those lines?
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Old 07-04-2008, 09:59 PM #12
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Ok Junie!! If you change your mind or just want to hang out feel free to drop in!
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Old 07-04-2008, 10:02 PM #13
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I can't afford any treatments anymore...my insurance was changed again a year ago and now its 20% and we can't take anymore hits...MRI= 120.00. My husband just had 2nd bypass surgery in April, I have not been able to work since 2000 and have been waiting on disability and last letter said maybe another 18-24 more months before hearing so I am over anymore treatments. If I had stayed away from Dr's I would not be where I am today! I trust none of them!
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Back injury 1999, PN,DDD, Spinal Stenosis, Arthritis, Chronic pain, Lumbar Fusion 6-06, Pain Worse then Ever Since!10-10-06 Arachnoiditis! CES! now numbness from waist to thighs, bowel, bladder paralysis, self caths, chronic constipation. Left sided weakness! No appetite depression! Bed 22 hrs day!
Under care of PM 3 years. Diabetic, lost over 100 lbs was 300+, now 174 lbs. Normal labs, diet controlled!
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Old 07-04-2008, 10:05 PM #14
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Thanks Dorrie, I just don't want to go to an area am seem like I am all better and make others feel bad. I just want to find others like me that living with daily pain has made a trainwreck of their lives and see hoe they got through it??
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Back injury 1999, PN,DDD, Spinal Stenosis, Arthritis, Chronic pain, Lumbar Fusion 6-06, Pain Worse then Ever Since!10-10-06 Arachnoiditis! CES! now numbness from waist to thighs, bowel, bladder paralysis, self caths, chronic constipation. Left sided weakness! No appetite depression! Bed 22 hrs day!
Under care of PM 3 years. Diabetic, lost over 100 lbs was 300+, now 174 lbs. Normal labs, diet controlled!
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Old 07-05-2008, 12:38 AM #15
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Hi, Junie...

We've never talked before, but I had to reply to a post like this. I may be wrong, but I really believe I have a good idea of what you feel like inside lately. I'm about to join you in being alone, as soon as my wife succeeds in forcing me out of the house. I have my mother and father as well as five siblings, but I can never tell which of them even believe me and which think that all I need is a change of perspective to make me happy and cheery. They can't imagine being in pain 24/7 for the past six years.

I've lost most of my best friends because they felt uncomfortable being around me. They just can't accept me as just a person any longer. Right now I have a very important appointment to see a specialist in Charlottesville, a small city about eighty miles from where I live. We had a family cook-out for the 4th, and I asked everyone if they could find a way to help me out in getting there, but not one of them would commit themselves.

And yes, I have to admit that there have been times when I thought that as a member of this site, I have been largely ignored for long periods of time. The only thing that keeps me going then is that I have made a few pretty good friends here, and I can PM them when no one else seems interested in my problems.

To tell the truth, probably my greatest contribution here is as a listener who cares about what I hear. It really hurts me that you have felt so ignored, and that we have failed you. I never would have let that happen if I realized what you were feeling. There are times when people feel reluctant to answer posts when they don't understand what it's really about, or where it's going, but I'm not afraid of those things. And I know that there are others here who feel the same way.

I truly hope that you reconsider your decision to close down your browser on this site. I have always believed that the best thing we can all do for each other is offer our support, because we understand things which healthy family and friends could never understand. Just one simple word here can convey more meaning than an hour of talking at home sometimes. I'm glad you posted this thread though, because it makes me realize that I haven't been listening close enough to other people here, and I'm definitely going to try to change that fact. If you EVER feel like you need to talk or just get something off your chest, I am here every day or two most of the time, and you are definitely welcome to PM me or simply start a thread that I might see. I mostly hang around on the Social Forum, the CP Forum, the Fibro Forum, and the depression forum.

Anyway, I'm sorry we let you down, and I hope that you will forgive us all and give us another chance. I will be looking out for your posts in the future, and I hope that they are there. Good luck and best wishes to you, Junie. I hope to see you again soon.

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Old 07-05-2008, 01:36 AM #16
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thank you,
you made me cry. i just needed to hear the words, i understand, not get more pills, see more drs, play games, be happy, just be heard and i know you did. i also know everyone did their best to help and i am grateful, but i also know you heard what i said on another level, because you have walked in my shoes, no doubt they are slide on flip flops.
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Back injury 1999, PN,DDD, Spinal Stenosis, Arthritis, Chronic pain, Lumbar Fusion 6-06, Pain Worse then Ever Since!10-10-06 Arachnoiditis! CES! now numbness from waist to thighs, bowel, bladder paralysis, self caths, chronic constipation. Left sided weakness! No appetite depression! Bed 22 hrs day!
Under care of PM 3 years. Diabetic, lost over 100 lbs was 300+, now 174 lbs. Normal labs, diet controlled!
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Old 07-05-2008, 11:09 AM #17
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Junie, you are most welcome here. I once thought I was a thread killer, every time I posted the thread died. lol

Have you tried to post to the ms forum or other neuro threads? I know you don't have ms or maybe not the others but they all understand chronic pain. My husband has been living with chronic pain for years. He is currently on methadone and it helps greatly. He also take Zoloft for depression.

Please come back and dabble in various forums even though you've had problems before. Many of us joined here less than a year ago and are new here from another site. Hugs!
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Old 07-05-2008, 11:39 AM #18
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Hi Junie,
Looks to me like there a few of us here now...if we continue to chat, others may join in and stay. We have to stay to build it. I only check in once or twice a week, so don't be offended if I'm not here every day. I work 6 days a week

I've suffered from chronic low back pain for many years now...sometimes it gets a bit better (like right now) and other times I'm in tears. Its a bad place to be, and can be depressing. Forum support, friendship and sharing experience is important. Fighting is really not worth our time or energy and I see very little of that here at NT world.

Glad you came back! Stay and visit...I'll try and be here so you don't feel so alone
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Old 07-05-2008, 11:40 AM #19
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<----------Thread Killer here too!! LMAO!!
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Old 07-05-2008, 12:18 PM #20
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btw....i'm short on time...so a quick hit of the thank you button to let you know i read....

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