Chronic Pain Whatever the cause, support for managing long term or intractable pain.


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Old 08-26-2006, 02:09 PM #11
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Hi Nancy, good to finally "see" you on here. It has been a hot one this summer! Have you kept in touch with the rest of the gang. I have been very worried about Billie? I am hanging in there, trying different meds to try and get pain under control. I am taking Topamax now but so far nothing positive to report. Well hop on that bike and go for a ride ...Sue
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Old 08-26-2006, 05:19 PM #12
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Oh man......if I could do cartwheels I would be doing them all over my house with some leaping backflips, too.....
Blessings...
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Old 08-26-2006, 05:54 PM #13
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Default Hi Nance

Hi Nance,

I went off my Mirapex and take it only when my legs get really bad as I was like you falling asleep at the drop of a hat. I was feeling so weak and having a lack of energy and just thought it was be going through a bad spell. Now that you mention it Nance I've noticed an terrible increase in my pain since I started Mirapex maybe it increase PN pain. I need to look at the side effects and see what it says.

You have a good weekend.

Love Lynners
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Old 08-26-2006, 07:00 PM #14
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It's so nice to see some friendly faces. I have thought of many of you with sincere sadness that those I've missed so much don't even know it.
I hope when the boards come back that the bickering will stop and all will enjoy the positive they have missed so much.

The lonliness I've felt is real and the fact that "this too shall pass" is truly a relief to my spirit.

Peace and Hugs to all!!!
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Old 08-26-2006, 11:23 PM #15
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Default Thx Lynners & Hello Sue-Z-Q!!!

Thx for the info, Lynn. I'm going to stop the Mirapex and let my body go back to what it was and then try it again in 4-6 weeks to see if I have the same issues. If I don't give it a 2nd try, my neuro will be all ticked off at my next appt. (I really don't like neuro's, especially those in my area because they know people are waiting months to see them and they are the only game in town. The neuro my hubby had in San Fran didn't talk at appts. His NP did all the talking and explaining while he sat there. It was weird.)

Sue - I lost your e-mail address when we got a new computer and I didn't get the e-mail addresses on the disc. Missed you! Hope your nice hot summer was ok!

Later girls~
nancy
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Old 08-27-2006, 01:41 PM #16
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Default Hello CP Friends

Hi Ya'll

It's great to see so many of the oldies on this site - Thanks Doc John.

Guess we can get back to doing roll calls.

I got my SSD finally. Hubby and I are going to take a 7 day cruise to the Virgin Islands the end of October. Of course, I will use a wheel chair at the airports and take my rollator (walker with wheels, handbrakes and seat) with me. We booked bus tours at St. Thomas and St. Marteen so I won't have to walk too much.

My Neurosurgeon is going to give me an ESI at C7-T1 and L3-L4 on 10/20 hoping to put me in a 'comfort zone' for the cruise and mebbe delay having fusions there.

I had C6-C7 fused 5/2/05. C5-C6 11/29/05. L4-L5 1/18/06. So think I've had enuff surgeries for awhile (I Hope).

Hugs To Ya!
Claudia
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Old 08-30-2006, 08:42 PM #17
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Smile hi everyone

Hi everyone,
Some of your names are familiar. I have been on the old cp forum. I'm feeling pretty today and have put in a good day's work. I've cleaned one of my carpets yesterday and onother one today. My pastor was saying tonight he feels I have been healed. That would be nice but I am having surgery this coming Tuesday. Doc said it will take 5 hours. Now that for sure will give me chronic pain. Having the stimulator taken out, finally.

It's good to see more posting everyday. Come on people start posting so we can get to know each other.
Blessings,
Fancylady
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Old 08-30-2006, 09:02 PM #18
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Talking You guys don't remember me,I bet...LOL.

Hey everyone,

I've been doing okay,except for a nasty flare-up Monday,that really didn't sit too well,with me.(Or my favorite relative who has pain E.S.P.,he means well, but,he drives me nuts..)

I've been thinking of you all,and praying for pain-free days for all of us...

Love,Kristin
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Old 09-02-2006, 10:33 AM #19
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Thumbs up Very glad to find everyone!

Hey there everyone! I see several familiar names of those that have already found their way over here, and hope to see many more!!
I missed having the board to go to in order to find the support I've needed lately! This board is great!!

Thanks Ragtop for sending me the link!
~Kimmy

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Old 09-02-2006, 03:27 PM #20
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Hi kids~
Good to see old friends! I'm happy to have found this home away from home, (I think that's why I'm happy....)


and I want to thank the good doctor for starting it for us!!


I'm glad our family is starting to get back together.... I missed everyone!


Hugs,
Jan
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