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Chronic Pain Whatever the cause, support for managing long term or intractable pain. |
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12-05-2006, 04:49 AM | #1 | |||
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Senior Member
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Hi all
I could use some suggestions about a situation with my doctors. I have a symptom (numbness, tingling and muscle fatigue in my face). My primary care doctor said to ask the neurologist and rheumatologist. My Neurologist says it is stress/anxiety. My Rheumatologist says it is stress/anxiety. My psychairtist says it's not stress/anxiety. Unfortunately, this psychaitrist is not a great as my old one - he will not give me a magic letter to bring to my other doctors to tell them "this is not stress". So I am stuck in this loop - the body docs say it is all in my head. The head shrinking doc says it is a body thing not a head thing. I honestly don't care if it is stress or body - I just want the symptom to get treatment of some sort. I tend to agree with the psychaitrist because the symptom does not change with my stress/anxiety levels. How do I get out of this loop? Any wise words of wisdom or suggestions? Thanks all, Liz
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~*~*~*~ The greatest difficulty lies not in choosing between self-interest and the common good, but in knowing the difference. ~*~*~*~
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12-05-2006, 07:11 AM | #2 | |||
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Senior Member
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Try an oral surgeon? Or maybe a dentist? Since it may have something to do with your jaw and or face, they may be able to help you.
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. Enjoy when you can, and endure when you must. -- Goethe Diagnoses: FM, Sciatica, Rosacea, Piriformis Syndrome, SI joint disfunction, Joint Facet Syndrome L3-L5, Pinched Nerve (somewhere on the left side), Depression, Anxiety and Bipolar II . |
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12-05-2006, 10:39 AM | #3 | ||
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((((((Liz)))))),
Cheese-and-crackers. I wish these doctors would GROW UP and get over themselves and get some bedside manner and STOP telling women it's all in their heads I like that idea about the oral surgeon or the dentist. I saw a show on one of the Discovery channels the other night -- little girl with horrendous cheek pain. Everyone was saying it COULDN'T BE trigeminal neuralgia 'cause children DON'T GET THAT. :WRONG: I just had a thought, Liz. You're entitled to get a copy of ALL your records -- doctor's notes, x-ray results plus x-rays, MRI plus results. Could you ASK for a copy of all your doctor's clinical notes?? That would give you the written 'thingy' that you need to take to the other ones. BIG HUGS. Barb |
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12-05-2006, 10:36 PM | #4 | ||
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I would like to know how they know it is stress and anxiety without checking it??? Seems like an EMG should have been run. The physical should have been ruled out before accusing.
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12-06-2006, 12:13 AM | #5 | |||
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Senior Member
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Thanks all.
I wish I could see a dentist or oral surgeon, but my insurance does not allow any type of dental - so if the doctors office does any type of work that concerns teeth it is not covered even if I am there for something that has nothing to do with teeth. It's just so frustrating to have my facial muscles get so weak and useless. Thankfully the muscles involved are on my forehead and cheek area and not my mouth area. If this fatigue/weakness caused problems with my mouth I probably wouldn't be able to chew properly. Unfortunately, it does affect the muscles around my left eye, which causes my eye to go buggy when those muscles get so fatigued.... I have gotten used to watching TV and reading with my left eye closed so that the muscles can rest and not go buggy. I see my primary care doctor later this week, and I really want to see what she says now. Last time she told me to talk to the specialists - and now I have done that and gotten nowhere, so maybe she will now step in and figure this out. She is very good, so I know she will do something, but I fear that her something will be to send me to another specialist -- which would mean waiting a few months for an appointment, and I don't want to wait anymore, I want my facial muscles to work properly now! Anyway, sorry to babble, it's a bad habit Thank you all for the suggestions and support.... I will let you know what the primary care doc says. Hopefully it will be good news of some sort.
__________________
~*~*~*~ The greatest difficulty lies not in choosing between self-interest and the common good, but in knowing the difference. ~*~*~*~
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12-06-2006, 08:02 AM | #6 | |||
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Senior Member
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Liz, sorry to hear that insurance won't cover a visit to the dentist or an oral surgeon.
Knowing about your primary doc, I am sure she will help you out. Darn, you are like me, everytime you turn around something else is happening to you. Ah! The life of a CPer!
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. Enjoy when you can, and endure when you must. -- Goethe Diagnoses: FM, Sciatica, Rosacea, Piriformis Syndrome, SI joint disfunction, Joint Facet Syndrome L3-L5, Pinched Nerve (somewhere on the left side), Depression, Anxiety and Bipolar II . |
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12-12-2006, 12:40 AM | #7 | ||
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Junior Member
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Quote:
Read the below link and review. Some of these can be self treated. There are many ways to treat trigger points in the muscles. The most important treatment is a home stretch program. http://www.round-earth.com/HeadPainIntro.html Last edited by painfree; 12-13-2006 at 09:45 PM. |
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