Last night I was in soooo much pain that I was passing out. So, my boyfried carried me to the car & took me to the ER. I was also having a lot of trouble breathing. After having to wait awhile there with everyone staring at me, they took me back. THey gave me an IV with Ativan & Dilaudid. THey also gave me Dilaudid to take home with me. I reallly hope tonight isnt as rough because the last month has been a really painful one.

this has happend 2 me b4 wer i hav passed out with my rsd spasm pain its so annoying aswell d way ignorant medically qualified people like nurses n drs look at u like ur mad or ask if ur just stressed n that aaaaaaargh tey so dont understood this horrid illness plus hav any of u ever embarrassingly lost control of ur bladder wen havin 1 of these spasms x

Firegirl..........this must be a really rough patch...I hope this flare will pass soon for you.

Chels......I understand your frustration...I've meet more than my share of medical professionals who were jerks, but I was a little offended by your comment "ignorant medically qualified people like nurses" because all nurses are not ignorant, but I understand that having to deal with those that are is beyond frustrating.

Hi:

I also have RSD and spasms with movement disorders caused by RSD. On Saturday, September 10, 2011, I was walking in the supermarket when I suddenly felt like my knees were going to buckle (they actually did buckle a little bit). In the supermarket, I also felt like the noises around me were dimmed. There was a strange, undescribable sensation in my head. So, to sum it up, I felt like I was going to pass out. It might sound strange, but I was telling my brain "Do not pass out!" over and over again for about a minute, until everything became normal again.

Quote: "Ignorant medically qualified people like nurses n drs look at u like ur mad or ask if ur just stressed n that aaaaaaargh tey so dont understood this horrid illness." One of my doctors, a cardiologist, also blamed these problems on stress. He really needs to go back to medical school and learn much more about RSD!

In fact, I wanted to see his colleague, also a cardiologist, but this one has RSD. It is pretty rare to find a doctor with RSD. I thought this man would understand me better and, since he has RSD, he would be able to give me an idea of special medications I have never tried, in order to control these horrible icy cold and insect spasms I feel running through my blood vessels. Unfortunately, this doctor just retired! Arrrrrgh! Just when I thought I was going to get some help from a doctor who knew what it was like to have RSD!

Sorry you're having such a rough patch. I hope things get better. I to have RSD and complex pain syndrome. I sometimes think doctors believe there's nothing wrong with us and we just need to suck it up. But those of us who also suffer understand, I hope he gets better soon.