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Old 01-09-2011, 09:10 AM #1
kevburgh kevburgh is offline
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kevburgh kevburgh is offline
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Default New Member - New Colloid Cyst

I just found out I have a "3mm hyperdense lesion in the region of the foramen of Monro...", and is believed to be a colloid cyst. Had the CT scan and MRI done this past week and still waiting for my primary doc to get back to me. I was experiencing dizziness and severe headaches for the last 3 months. They originally told me it's being caused by lack of sleep and stress. I have a 2 year old that likes to get me up at 2 am and work sucks, made sense. That was 3 months ago. Another doctor in the same practice told me on a seperate visit, that it may be an inner ear infection. Put me on antibiotics and sent me on my way. Still having issues so they ordered the CT Scan. The doctors office didn't even call me back, I had to call them to get the results! The secretary on the phone read me the report and said I have a cyst. They called back later to say I should have an MRI done. Done, I called the docs office to see if they received the report. Again, the secretary answering the phone read me the results! What the hell!!! I asked her to have the doctor call me back. She told me there is nothing wrong with the MRI and I should be fine. I googled everything on the CT Scan report and WOW! What a surprise!! I think I need a neurosergeon. I love this forum and the fact that I can read others posts to see what is going on. Any one else in recovery after surgery? Trying to get an idea of what is to come.

Thanks!
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Old 01-11-2011, 12:56 PM #2
andyh andyh is offline
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Location: I live in Cambridge, England, close to Addenbrook's Hospital, thankfully.
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Hi Kevburgh,
I am in the later stages of recovery following the removal of a Colloid Cyst at Addenbrookes Hospital, Cambridge, England in November 2008. I had a large cyst that first showed itself while causing various problems, including extreme headaches, it actually caused an intance of extreme pain which forced me stop my car one day and pull over into a local car park,...where I was found three days later and rushed to hospital! The Colloid Cyst was found by the A&E team and was operated on very quickly and successfully removed. I suffered terrible confusion, post surgery, which was compounded by extreme loss of memory, however my memory has pretty much returned and I have no other defecits or problems caused by the cyst. Having said that, I have not been able to return to work yet, but am volunteering my services four days per week as directed by the Occupational Therapy Department at Addenbrookes. I feel fully fit, well and am now desperate to get back to my usual work and prove my complete recovery. It's quite a long haul, but a Colloid Cyst need not change your life forrever, it's certainly not pleasant, but with patience and good surgical care, it's not life ending.
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Old 01-13-2011, 07:11 PM #3
Thomas Kaup Thomas Kaup is offline
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Location: saint henry ohio
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Thomas Kaup Thomas Kaup is offline
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[ lplease check my bio, I would be glad to exchange ideas with you. I check into this site on an infrequent basis to help others if I can.
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Old 01-13-2011, 07:14 PM #4
Thomas Kaup Thomas Kaup is offline
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Quote:
Originally Posted by andyh View Post
Hi Kevburgh,
I am in the later stages of recovery following the removal of a Colloid Cyst at Addenbrookes Hospital, Cambridge, England in November 2008. I had a large cyst that first showed itself while causing various problems, including extreme headaches, it actually caused an intance of extreme pain which forced me stop my car one day and pull over into a local car park,...where I was found three days later and rushed to hospital! The Colloid Cyst was found by the A&E team and was operated on very quickly and successfully removed. I suffered terrible confusion, post surgery, which was compounded by extreme loss of memory, however my memory has pretty much returned and I have no other defecits or problems caused by the cyst. Having said that, I have not been able to return to work yet, but am volunteering my services four days per week as directed by the Occupational Therapy Department at Addenbrookes. I feel fully fit, well and am now desperate to get back to my usual work and prove my complete recovery. It's quite a long haul, but a Colloid Cyst need not change your life forrever, it's certainly not pleasant, but with patience and good surgical care, it's not life ending.
I also experienced the same symptoms as you write about. Check my bio and I would be glad to exchange ideas.
Tom
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Old 05-22-2011, 02:37 PM #5
Rlball27 Rlball27 is offline
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Default Colloid cyst

Hi Andy
I was particularly interested in your post as my much loved Auntie is in the very early stages of recovery after her operation at Nottingham Queens Medical Centre. Her op was last Wednesday after a sudden deterioration in her health over the last couple of weeks. It was discovered that she had a 2cm colloid cyst early last week.
Whilst understanding that she has undergone major surgery we are all a little worried about the effect on her short term memory. I would be interested to learn a little more about your experiences if you would be willing to share them with me, it would be greatly appreciated.

Regards, Rachel





Quote:
Originally Posted by andyh View Post
Hi Kevburgh,
I am in the later stages of recovery following the removal of a Colloid Cyst at Addenbrookes Hospital, Cambridge, England in November 2008. I had a large cyst that first showed itself while causing various problems, including extreme headaches, it actually caused an intance of extreme pain which forced me stop my car one day and pull over into a local car park,...where I was found three days later and rushed to hospital! The Colloid Cyst was found by the A&E team and was operated on very quickly and successfully removed. I suffered terrible confusion, post surgery, which was compounded by extreme loss of memory, however my memory has pretty much returned and I have no other defecits or problems caused by the cyst. Having said that, I have not been able to return to work yet, but am volunteering my services four days per week as directed by the Occupational Therapy Department at Addenbrookes. I feel fully fit, well and am now desperate to get back to my usual work and prove my complete recovery. It's quite a long haul, but a Colloid Cyst need not change your life forrever, it's certainly not pleasant, but with patience and good surgical care, it's not life ending.
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Old 03-19-2013, 12:11 PM #6
Thomas Kaup Thomas Kaup is offline
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Join Date: Nov 2007
Location: saint henry ohio
Posts: 24
15 yr Member
Thomas Kaup Thomas Kaup is offline
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Quote:
Originally Posted by kevburgh View Post
I just found out I have a "3mm hyperdense lesion in the region of the foramen of Monro...", and is believed to be a colloid cyst. Had the CT scan and MRI done this past week and still waiting for my primary doc to get back to me. I was experiencing dizziness and severe headaches for the last 3 months. They originally told me it's being caused by lack of sleep and stress. I have a 2 year old that likes to get me up at 2 am and work sucks, made sense. That was 3 months ago. Another doctor in the same practice told me on a seperate visit, that it may be an inner ear infection. Put me on antibiotics and sent me on my way. Still having issues so they ordered the CT Scan. The doctors office didn't even call me back, I had to call them to get the results! The secretary on the phone read me the report and said I have a cyst. They called back later to say I should have an MRI done. Done, I called the docs office to see if they received the report. Again, the secretary answering the phone read me the results! What the hell!!! I asked her to have the doctor call me back. She told me there is nothing wrong with the MRI and I should be fine. I googled everything on the CT Scan report and WOW! What a surprise!! I think I need a neurosergeon. I love this forum and the fact that I can read others posts to see what is going on. Any one else in recovery after surgery? Trying to get an idea of what is to come.

Thanks!
you can look at my post, I have been down this path and if I can be of assistance don,t hessitate to post a message for me.
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Old 03-21-2013, 01:16 PM #7
SummerVT SummerVT is offline
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Join Date: Mar 2013
Location: Athens, Texas
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Default Recovery after 11mm colloid cyst removal

It is my understanding that they aren't dangerous unless your spinal fluid is building up. I personally had an 11MM Cyst removed in June, 2011. I too was misdiagnosed on several occasions. My surgery was done as an emergency I didn't experience headaches just pressure that felt much like a sinus infection. Then I suddenly started to vomit uncontrollably and was admitted in the hospital for dehydration. Then 2 days later was sent by helicopter to
Have an emergency surgery to relieve the pressure. I personally ended up in ICU 21 days. Your case most likely wont be as severe. The most painful time for me was while I was waiting for the team, scope, and surgeons to align. After the removal I recovered quickly even though my colloid cyst was rather large considering. I was actually in the gym days after getting out of the hospital. I hope this calms your nerves some.

My most recent problems have been with depression and mood. I'm not sure if its related to my cyst or not. Sometimes I think I'm crazy. I don't mean to be. I'm so damn sensitive and get my feelings hurt too easily. But it's not all the time so I don't know what my deal is.

Quote:
Originally Posted by kevburgh View Post
I just found out I have a "3mm hyperdense lesion in the region of the foramen of Monro...", and is believed to be a colloid cyst. Had the CT scan and MRI done this past week and still waiting for my primary doc to get back to me. I was experiencing dizziness and severe headaches for the last 3 months. They originally told me it's being caused by lack of sleep and stress. I have a 2 year old that likes to get me up at 2 am and work sucks, made sense. That was 3 months ago. Another doctor in the same practice told me on a seperate visit, that it may be an inner ear infection. Put me on antibiotics and sent me on my way. Still having issues so they ordered the CT Scan. The doctors office didn't even call me back, I had to call them to get the results! The secretary on the phone read me the report and said I have a cyst. They called back later to say I should have an MRI done. Done, I called the docs office to see if they received the report. Again, the secretary answering the phone read me the results! What the hell!!! I asked her to have the doctor call me back. She told me there is nothing wrong with the MRI and I should be fine. I googled everything on the CT Scan report and WOW! What a surprise!! I think I need a neurosergeon. I love this forum and the fact that I can read others posts to see what is going on. Any one else in recovery after surgery? Trying to get an idea of what is to come.

Thanks!
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