advertisement
Reply
 
Thread Tools Display Modes
Old 08-24-2012, 01:01 PM #1
sm_warren sm_warren is offline
New Member
 
Join Date: Aug 2012
Location: Southern California
Posts: 1
10 yr Member
sm_warren sm_warren is offline
New Member
 
Join Date: Aug 2012
Location: Southern California
Posts: 1
10 yr Member
Default 9+ years after colloid cyst removal -

Hello Everyone,

I am now 9+ years post colloid cyst removal, and am glad to have found somewhere where I don't feel like I am a freak because I have crushing, debilitating headache pain. I don't know about the rest of you, but on the surface, I think I probably look a little too normal for what I actually feel like.

My cyst was removed in a 5 hour endoscopic surgery. My surgeon was nearly ready to give up part of the way through, and open up my head because the cyst was so difficult to break up and pull out.

The headache pain that had started a few months before the surgery never really went away. My original neurosurgeon did not thing that a shunt would be effective in relieving the normal pressure hydrocephaly that I was enduring.

We got another opinion and found a doctor that thought a shunt would help. He put in the first one. I developed an allergy to the silicone which the shunt was made of. That shunt was in only a few months. He then replaced it with a specially made silicone-free shunt which became infected post-op.
Since I had these two problems, the doctor would not put in another shunt.

I went through all of the available narcotics that the pain management doctors could think of. I even went to a headache specialist and tried some migrane medicines. Although the narcotics helped to numb the pain a small amount, the side-effects they had on my mood and body were not worth the benefit. After a year of titrating down off of the narcotics, I have been completely off them now for about 7-8 months. The pain is a little bit worse without them, but I am more clear-headed and present.

I am now using "alternative" forms of treatment, such as neuro-feedback, acupuncture, massage, herbal medicine etc. Although they help briefly, they have not taken the pain down.

I am looking forward to the support of this group, and am hoping to cross paths with a neurologist and/or neuro-surgeon who has some helpful advice.

Thanks for listening.
sm_warren is offline   Reply With QuoteReply With Quote

advertisement
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
possible colloid cyst crazycanuck New Member Introductions 5 06-19-2013 12:47 AM
Hello every one (colloid cyst) ashleyrod New Member Introductions 2 11-08-2011 01:41 AM
colloid cyst Myranda Whitfield General Health Conditions & Rare Disorders 0 08-09-2009 09:52 PM
Colloid Cyst smallen New Member Introductions 6 12-22-2008 11:00 AM


All times are GMT -5. The time now is 06:43 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.