advertisement
Reply
 
Thread Tools Display Modes
Old 02-01-2014, 06:58 PM #1
LC513 LC513 is offline
New Member
 
Join Date: May 2013
Posts: 2
10 yr Member
LC513 LC513 is offline
New Member
 
Join Date: May 2013
Posts: 2
10 yr Member
Default

Hi, Anki!
I have a 5x10mm colloid cyst that I have also chosen to monitor, though my doctors have said they will remove it when I am ready. They found it last April and had another MRI in October. No growth, and still just mild hydrocephalus showing in my left ventricle. My symptoms are currently mild. It does make me nervous to wait, but I am more nervous about surgery.
I'm trying to get a referral to see the surgeons at UPMC in Pittsburg, PA. They do a special kind of endoscopic surgery that is less invasive than craniotomy and I am hoping I will be a good candidate for that. I wonder if anyone in Canada also does something similar, if that would be an option for your case. I know some cases require craniotomy in order to get all of the cyst removed.
How are you feeling?
LC513 is offline   Reply With QuoteReply With Quote
Old 03-28-2014, 04:46 PM #2
Anki Anki is offline
Junior Member
 
Join Date: Dec 2013
Posts: 14
10 yr Member
Anki Anki is offline
Junior Member
 
Join Date: Dec 2013
Posts: 14
10 yr Member
Default

Quote:
Originally Posted by LC513 View Post
Hi, Anki!
I have a 5x10mm colloid cyst that I have also chosen to monitor, though my doctors have said they will remove it when I am ready. They found it last April and had another MRI in October. No growth, and still just mild hydrocephalus showing in my left ventricle. My symptoms are currently mild. It does make me nervous to wait, but I am more nervous about surgery.
I'm trying to get a referral to see the surgeons at UPMC in Pittsburg, PA. They do a special kind of endoscopic surgery that is less invasive than craniotomy and I am hoping I will be a good candidate for that. I wonder if anyone in Canada also does something similar, if that would be an option for your case. I know some cases require craniotomy in order to get all of the cyst removed.
How are you feeling?
Hi, thank you for your reply! I had a CT scan in March and the cyst is stable, same the hydro. However I fell more and more presure in my head and I'm becoming quite anxious. In the meantime, two othe neurosurgeons (one from Anadolu clinic in Turkey and another garanteed experienced from Romania) have recomended microsurgery intercallosal approach. I will go with endoscopic at St Michaels Toronto, sometime in June (just had the appointment this week). Your cyst would not be removed here, as they start operating on over 1cm only (if no symptoms). Mine is border, so they will do it...I'm very anxious too...thanks again, and all the best! I'll keep posting when I have news.
Anki is offline   Reply With QuoteReply With Quote
Old 03-28-2014, 05:53 PM #3
Anki Anki is offline
Junior Member
 
Join Date: Dec 2013
Posts: 14
10 yr Member
Anki Anki is offline
Junior Member
 
Join Date: Dec 2013
Posts: 14
10 yr Member
Default

Coming back with a revise, in order not to confuse people: the 2nd and 3rd opinions were :
"The selected approach is microsurgical *interhemispheric transcallosal way". Better to be specific than to write from memory...
Thanks again!
Anki is offline   Reply With QuoteReply With Quote
Old 05-20-2014, 06:06 PM #4
Anki Anki is offline
Junior Member
 
Join Date: Dec 2013
Posts: 14
10 yr Member
Anki Anki is offline
Junior Member
 
Join Date: Dec 2013
Posts: 14
10 yr Member
Default

Hi LC,
How are you feeling? I now realize that your cyst is actually 10mm. Do you have any news?
Anki is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
possible colloid cyst crazycanuck New Member Introductions 5 06-19-2013 12:47 AM
New here - colloid cyst LC513 New Member Introductions 1 05-17-2013 02:16 AM
colloid cyst Myranda Whitfield General Health Conditions & Rare Disorders 0 08-09-2009 09:52 PM
Colloid Cyst smallen New Member Introductions 6 12-22-2008 11:00 AM


All times are GMT -5. The time now is 10:18 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.