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Old 01-08-2009, 12:57 PM #1
Christy1229 Christy1229 is offline
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Default Anyone from Maryland that has had Surgery?

I have a 3mmx9mm CC I am awaiting a second opionion from a doctor at JHU this month. I am very nervous. I have had the CC since 2001, and my neurologist has not been very informative. not until this July did I find out how serious this condition could be. I would like to talk to someone who may live in the Maryland area who has had a CC removed. And for lack of better words Pick Your Brain.


Happy New Year!
Christy
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Old 01-14-2009, 10:58 PM #2
Thomas Kaup Thomas Kaup is offline
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Originally Posted by Christy1229 View Post
I have a 3mmx9mm CC I am awaiting a second opionion from a doctor at JHU this month. I am very nervous. I have had the CC since 2001, and my neurologist has not been very informative. not until this July did I find out how serious this condition could be. I would like to talk to someone who may live in the Maryland area who has had a CC removed. And for lack of better words Pick Your Brain.


Happy New Year!
Christy
I have undergone such a surgery and would be glad to share my experiences with you. Private message me to make contact. I live in the extreme western part of central Ohio if no one closer responds, these tumors are extremely rare.
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Old 07-28-2009, 01:23 PM #3
glittergirl glittergirl is offline
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Originally Posted by Thomas Kaup View Post
I have undergone such a surgery and would be glad to share my experiences with you. Private message me to make contact. I live in the extreme western part of central Ohio if no one closer responds, these tumors are extremely rare.
Hello Thomas
I too have a cc I am actually thinking of having it removed at the CLEVELAND CLINIC asap! I am soooooooooooooo scared too I now have a vp shunt but am having sooooo many problems with it! I dont know what to do! Take the risk or deal with a shunt for the rest of my life? Please tell me your exsperience Thanks
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Old 10-28-2011, 07:38 PM #4
Isotope Isotope is offline
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Quote:
Originally Posted by Christy1229 View Post
I have a 3mmx9mm CC I am awaiting a second opionion from a doctor at JHU this month. I am very nervous. I have had the CC since 2001, and my neurologist has not been very informative. not until this July did I find out how serious this condition could be. I would like to talk to someone who may live in the Maryland area who has had a CC removed. And for lack of better words Pick Your Brain.


Happy New Year!
Christy
Hey Christy,

I recently (within the last month) had a colloid cyst removed at Johns Hopkins Hospital. The team that worked on me was incredible. The cyst is completely gone, and I am essentially free of symptoms/complications. Feel free to PM me. I can also give you a phone number to call if that would be easier.
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Old 01-20-2012, 09:25 AM #5
stovall14040119 stovall14040119 is offline
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Confused I was resently dianosed & need advice

Quote:
Originally Posted by glittergirl View Post
Hello Thomas
I too have a cc I am actually thinking of having it removed at the CLEVELAND CLINIC asap! I am soooooooooooooo scared too I now have a vp shunt but am having sooooo many problems with it! I dont know what to do! Take the risk or deal with a shunt for the rest of my life? Please tell me your exsperience Thanks
I live in indiana and was resently dianosed w/ an 8mm colloid cyst. I posted my story and think I put it in the worng area. If u or anyone can search it , it explains everything. But, if anyone can talk 2 me about all this, it would be greatly apperacated. Pm me to exchange #'s
. I need help.
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Old 01-20-2012, 09:34 AM #6
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Originally Posted by stovall14040119 View Post
I live in indiana and was resently dianosed w/ an 8mm colloid cyst. I posted my story and think I put it in the worng area. If u or anyone can search it , it explains everything. But, if anyone can talk 2 me about all this, it would be greatly apperacated. Pm me to exchange #'s
. I need help.
Hi there
I will put a copy of your other post, which you had in our General health forum, over here for you as well
here is the link to the copy that I just moved here for you
http://neurotalk.psychcentral.com/sh...d.php?p=843154
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"Thanks for this!" says:
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