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looking for help on cerebral palsy

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Old 01-21-2007, 01:00 AM   #1
Evgenia
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Confused looking for help on cerebral palsy

hello everyone!
i would greatly appreciate it if anyone can help me on cerebral palsy. do you know any good clinics? i have a four year old son with spastic diplegia(affects both legs). i live in a country that has very limited knowledge and resources on the specific subject.
thanks!
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Old 01-21-2007, 01:12 AM   #2
DiMarie
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Default Only a few thoughts

There have been several places that treated my nephew, as a child, young adult, and teen.

Dupont, in Delaware, or is ot New Jersey? Hershey Hospital in, Hershey PA. (THe doctor here was a pediatrician) Jefferson hospital, Philadelphia, as a teen, did an extension when he grew the spine collapsed.

The extension rod to make him the corrected height and fix spine was giving him several inches in height. The neurogist in Hershey, and a hospital in New York, did a loosening for the muscle spasicity.

Another thought we did not use them, likely for distance reasons is Johns Hopkins in Maryland. That would be my first choice if coming from out of country as they are considered tops in the field. I am not sure if Dr.Paul Carson does the work with CP, but top neurologist.

Hope you can find some answers, there may be other forums here that may have more members with this problem in their family.
Dianne.
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Old 01-21-2007, 07:50 AM   #3
Chemar
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Hi Evgenia and welcome to NeuroTalk

we do have a forum here for Cerebral Palsy although it is not yet very active (we are still a relatively new community)

I did notice tho that there were some links to useful websites in the sticky at the top of the forum so you may find some info there?
here is the forum link
http://neurotalk.psychcentral.com/forumdisplay.php?f=52

and here is the thread on the useful sites
http://neurotalk.psychcentral.com/showthread.php?t=1381

HTH
Cheri
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Old 01-23-2007, 02:13 PM   #4
mama z
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Hi Evgenia,

What kind of clinic specifically are you looking for and what kind of services (if any) are you receiving now. I'd say the most important treatments of any kind would be the physical therapy and occupational therapy. As well as speech if needed.

You might try posting in the Child Health forum vs the cerebral palsy. It's not real active but I do know that some people lurk more than post.

Take care,
Laura
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