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newbie 09-20-2006 04:48 PM

Comic relief any one?

shotspine 09-20-2006 05:00 PM

Cancer Forum
Abuse Forum

Thank You!

trekker 09-20-2006 06:07 PM

Would you also consider forums for:

Caregivers so we can share coping strategies and shoulders to lean on during the bad times.

Humor or Comic Relief for the days when we desperately need to find something to laugh about.

Pet forum because they are such an important part of our lives. No matter what our problems they just love and support us without judgement.

Art/Poetry forum. There are many creative people and I for one enjoy reading and seeing photos of the output of their hearts and minds. I think I learned more about the pain and difficulty of people's lives in reading their stories and poems than anywhere else. And just as importantly about their joys and triumphs and what makes them unique, wonderful, amazing.

CoolAngel26 09-20-2006 06:16 PM

What about a sub-forum for Normal Pressure Hydrocephalus??

Jomar 09-20-2006 11:02 PM

Other new forum topics...??
 
what does anyone think about a few more forums medical and non-medical ?

like maybe something like - I'm just putting some ideas out -

For the Home?
Recipes & Cooking ?
Penny Pinching, Coupons & Frugal Living?
{maybe these could be combined if there is any interest in these types of topics.}

what about a General topic about-

Dealing with Drs, offices, forms, tests, legal issues & insurance companies? { would need a shorter name i think}
{ this would be handy for all- hints, tips and ins and outs, ect}

A few other medical topics -

Repetitive Strain Injury
Chronic Myofascial Pain
Chronic Fatigue

So what do you think?
any ideas or suggestions?
How to make this a well rounded community?

FreeSpirit 09-21-2006 01:03 AM

Hi All,

I'm new here so perhaps it is forward of me to ask but if there is enough interest would it be possible to have a forum for Arnold Chiari Malformation?

Thank you for your consideration.

FS

JoJo6 09-21-2006 07:27 AM

Alzheimer's, Dementia & Caregivers
 
Hi Trekker. I agree we need something for caregivers. I had posted this along with the Alzheimer's and Dementia room.

Maybe we could have a caregivers room, put all the things that goes with caregiving. It is MHO that caregivers need all the encourgement they can find. It is a hard job and if one is not careful they will burn out, then who will take care of the patient?

I hope this will be considered.
thank you, Jo

swift 09-21-2006 02:26 PM

Hiya,

There's a stickied thread about new forums right here: http://forums.braintalk2.org/showthread.php?t=1200

HTH
Swift

Buttons 09-21-2006 04:59 PM

More forums
 
Hi all, I'm requesting a Pet Forum, myoclonus/movement disorder forum & emotional support forum. And sure would like to see the Lymies back-appreciate that you put in the Lyme disease forum!

I'm adding the need for a diabetes forum also! (hard to recall all the forums I was active on!)

Thanks so much!
Buttons

JoJo6 09-21-2006 06:12 PM

Alzheimer's, Dementia and CAREGIVERS!
 
Quote:

Originally Posted by JoJo6 (Post 9499)
Maybe this is already hear and I just don't see it, but if not I would like to see a forum for the patient as well as the caregiver.

The symptoms of Alzheimer's and Dementia from aging or numerous other reasons are closely related. There are differences, but close enough to combine the 2.

The caregiving issue is important, too little attention is given to the health of the caregiver and they get burned out in a hurry.

Many times we will find ourselves doing both. I myself have several neuro issue's, but I have been caregiver to MIL who has Alzheimer's Disease.

If enough people are interested enough to be a part of a forum like this please speak up. It would be helpful to me, but not if only 1 or 2 others take part. It's not easy taking care of another very sick person.

Be honest with your self if you think about being part of a forum of this nature. If you can't take part it is certainly understandable if you don't have time to take anything else on.

I would like to see every thing here helpfull. If not, then we need to put the space to a better use.
thank you, Julia

On a board as large as this one, well i think the last time I looked there were maybe 6 or 7 hundred? Am I the only one here that have loved ones with Alzheimers or Dementia from many reasons? The Caregivers are the ones that need desperatly a place to care for each other as much as an online site could be. This is very important

I don't understand why no interest has been shown for this request. On another post Trekker listed a Caregiver Support room. This could be for more than one disease.

Alzheimer's D. is an important issue, it's not like something nobody has ever heard of it. Sorry, I have personal concerns, my MIL has Alzheimer's and it is very heart breaking.

I see many other things being asked for , they all have their place. I'm sure many like Comic Relief and maybe that is how they get through their hard times, but when you watch someone lose their idenity, don't remember their name, much less their childrens name and the heart break goes on.

If nobody else here have an interest in a room for Caregivers, Alzheimer's and Dementia, I will stop posting all over the place. This is something that you put your whole self into and thats when the caregiver gets into trouble with their health.

thank you, Jo

shotspine 09-21-2006 08:31 PM

Hi Jo

I'm pretty positive I read on a thread today that Doc John has been sick and he would get more forums put up tomorrow.

I agree that the forums you are asking for are extremely important. I took care of my father with dementia and I bow to anyone taking care of Alz or dementia patients.

Blessings for you!

Phillipe 09-22-2006 06:36 PM

Quote:

Originally Posted by jo55 (Post 9845)
what does anyone think about a few more forums medical and non-medical ?
like maybe something like - I'm just putting some ideas out -

For the Home?
Recipes & Cooking ?
Penny Pinching, Coupons & Frugal Living?
{maybe these could be combined if there is any interest in these types of topics.} So what do you think? any ideas or suggestions?
How to make this a well rounded community?


What do I think? Jo, this is not a Betty Crocker, Pillsbury or a Martha Forum. Lets stick with medical issues, OK? Doc John has made this a well rounded community. Lets respect this.

Jane 09-22-2006 07:16 PM

Diet and recipe swapping are an important function on many boards. Many of us have some exotic dietary restrictions due to our medical conditions. Many of us are on a constant look out for dishes that we can tollerate.

Then there are those who still struggle to remain domesticly functional and always appreciate household hints. There are quite a few of us who have become or remained functional in the kitchen thanks to simple remodling tips that have been passed on........on the boards.

It may not be rocket science but it certainly relates, in a serious way, to our medical conditions. Just a thought. Have a good weekend

hummer 09-22-2006 09:05 PM

I was worried that there weren't to be off topic threads.......I asked about it and they are to be allowed in all forums......this place isn't to be just about medicine.......what a wonderful relief that was to me....I had a large sigh of relief........

I take no medications, because of my brain injury....so any post, I ever post on, will not be about medications.....I come to this place, to help me live in the world......it is not information about meds that I take away from here....it is the human strength part, it has such tremedous value to me.....any thing that makes it easier to get through each day.....certainly rates, as a treasure......in my book........

The men in my home have come to tell me they need me.....HA.........

I hope what ever I wrote makes sense...........I think it is a wonderful and helpful thing for the caregivers.......especially if we are the wounded ones.....

Blessings to us all......
Hummer

snoozie 09-22-2006 09:27 PM

We share recipes on the weight loss forum. Any and all are welcome to join in, even if you are not necessarily coming to lose weight maybe you could share recipes or food tips that have kept you not needing a weight loss forum :p ...Sue

JD 09-22-2006 11:32 PM

I could utilize a Good Nutrition forum for sure! I am hypoglycemic and don't feel comfortable posting in Diabetes (natch) ...at least with a nutrition support forum, I could battle the most important aspect of it. :) TC. JD

purplegrrl 09-23-2006 03:33 AM

The old Alzheimers/Dementia board was the FIRST one I looked for when I came here, I think... my mum has frontal lobe variant Alzheimers, severe emphasema and multiple other medical problems. I am, for all practical purposes, her only carer... despite significant health problems/disabilities of my own. Needless to say, really struggling.

Miss the CP board, too.

Chemar 09-23-2006 07:45 AM

Quote:

Originally Posted by JDPhD (Post 11493)
I could utilize a Good Nutrition forum for sure! I am hypoglycemic and don't feel comfortable posting in Diabetes (natch) ...at least with a nutrition support forum, I could battle the most important aspect of it. :) TC. JD

Hi
I believe the Vitamins etc forum could be what you will find helpful. Doesnt have to be just pills...all food and complementary health issues/treatments welcome too :)

The Godfather 09-23-2006 08:09 AM

In case they have not already been proposed the following neurological disorders had forums on BT1 but still do not have forums on BT2 :

Essential Tremor

Dystonia

Restless Legs Syndrome

Alzheimer's Disease and Dementia

mrsD 09-23-2006 08:40 AM

JDPhD....
 
I second the suggestion, that Chemar made.

I have a good grasp of nutrition issues (how to balance your food intake
so you get the vits/minerals from your food).

I myself have insulin resistance, so I am somewhat hypoglycemic myself
and have to take care of that!

Our weight loss forum has some threads that are "nutrition" based, not
just for weight loss, but for controlling hunger. The fruits/veggie thread is
good, there. So check that out too.

Maybe that forum could be renamed Weight Loss/ Nutritional Issues?

We have a very active forum at Vit/Minerals forum here, please take a look.

swift 09-23-2006 11:21 AM

Quote:

Originally Posted by The Godfather (Post 11614)
In case they have not already been proposed the following neurological disorders had forums on BT1 but still do not have forums on BT2 :

Essential Tremor

Dystonia

Restless Legs Syndrome

Alzheimer's Disease and Dementia

I don't know how much the ET and RLS forums got used, but the dystonia one was used very little. A 'movement disorders' forum could encompass all of the top three, plus other movement disorders.

JMHO
Swift

lookingup58 09-23-2006 11:53 PM

Miss Meralgia Parsthetic Forum
 
I am happy to see braintalk2.org. This is a place we can learn, share and cope better. I am sorry to see the Meralagia Paresthetica Forum is not listed. I am hopeful it will return. MP is not understood by many people or doctors. This is one place MP was up front and there to help inform people. Hopeful it will return. Does anyone know if it will?

Glad DocJohn has made braintalk2 available to us. Thanks!

trekker 09-24-2006 07:35 PM

Thanks DocJohn
 
:D Thanks again DocJohn for the latest forums. Now I must go to my humor archive and see if I have some little goodies to bring a chuckle or two.

MoonAngel 10-03-2006 06:41 PM

gentle nudge back to the first page :)

mister 10-06-2006 10:50 PM

seconding motion
 
I am looking for information on hydrocephalus, essential tremors, kindey disease. I have learned much from others over the course of time and the free exchange of ideas in these areas aswell as others can only make this site stronger and mor actractive to others who aren't here yet. I know I have already pasted on this site to a number of my friends and I hope that they will find their way here over the course of time.

Regards
Mister

ihearvoices2 10-14-2006 08:53 AM

Brain Tumor Forum
 
Please can we have a brain tumor forum with maybe sub forums of different types of tumors? Also a MGUS (monoclonal gammopathy of undetermined significance) forum? thanks

Chemar 10-14-2006 09:15 AM

just a reminder to put forum requests on the special sticky thread Doc has created for this...that way he can check them there and try to add as best possible

here is the link to the Forum requests sticky thread

http://forums.braintalk2.org/showthread.php?t=2849

:)


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