I would also like to see a forum on this. How about one on "Integrated Medicine", my own daughter has cerebral palsy spastic quadrilegia and G-Therapy which has recently been spoken about in The Times of India has been the only therapy after trying a great many that has given us any positive hope. Dr. Oswal is treating many different neurological disorders from toddlers to adults.
The Times of India article is below:
http://www.timeswellness.com/fullSto...TW10ART9102006
My daughter's page is on http://www.g-therapy.org/cslaura.htm

Regards,
Val (UK)

Treatment Reviews???
 

Is it possible to have some kind of review forum where we can report our experiences with different treatments, medical products, maybe meds (or maybe meds should be seperate?) I know Lyrica is being used for several conditions and there are discussions about it right now on several forums -why not have a single forum to report side effects/results so any person whose Dr is prescribing it can go to that forum and see what others have experienced?

I just had an Advanced Bionics SCS implanted yesterday, and wd be helpful if there was a forum to record experiences for future patients considering SCS to go directly to, rather than searching entire site. Same for pain pumps, infusions, etc, etc,.

You might be able to see which brand of a product has higher satisfaction among members, or get answers to questions, or relieve anxiety between Dr's hours. Other people's experiences are often more valuable in making a decision than a Dr's off-the-cuff recommendation.

It wouldn't mean people couldn't discuss such things in the forum, it wd be in addition to, to keep sort of an archive that could be easily accessed. What do you think?

Doc John, thanks lots and lots for BT2 - I'm lovin' it!

beth :)

Sub-forum for Normal-Pressure Hydrocephalus?

Would you mind putting up a forum for the Tarlov cyst?

Hi,

Was just wondering if any more new forums are going to be added. Alot of these requests have not been addressed yet so it got me wondering. :confused:

Thanks

MA

one more bump :)

Mod-induced bump!:cool:

Myasthenia Gravis, LEMS and CMS
 

I agree that Myasthenia Gravis, LEMS and CMS should have a separate forum. Autoimmune diseases have very specific differences and treatments and it may get confusing to have them all grouped together. All three of these are considered neuromuscular junction disorders/diseases.


MG (Myasthenia Gravis): An autoimmune disease that causes an antibody attack to the neuromuscular junction.
LEMS (Lambert-Eaton Myasthenic Syndrome): Also a disorder of neuromuscular transmission.
CMS (Congenital Myasthenic Syndromes): A group of genetic defects that cause a variety of disturbances at the neuromuscular junction.

I have CMS. It would be more likely that another person with CMS would log on if it was in the title of a new topic category. I now know of no one with CMS and it would help tremendously if I did.

Thank you!

Raechel

I've put in a friendly reminder to Admin here. Hopefully we'll see those new forums up shortly. :)

Thank you. :)