No offence taken

After saying that I have to tell you I have been around since the very first beginning of what became Braintalk. We tried a newsletter there. We did the petition Do you remember what hapened? It was so well received as was the annual meeting we planned to take place and then all H broke out.

Members didn't want to read old stories as they called them nor did they want to hear about what was of interest on other forums. seems much of what was written had already been on the site in one forum or another.

I am not being negative Lara just to be a pain. Been there and done that. Do you remember Whitey from Aussie land. wow she took us to task over just the suggestion snd I wish now I had of listened to her. It was me and Giraffe and boy were we sorry about it.

You are right I don't know much about you but I think you don't know much about me, right? You are only guessing about me but I am not guessing about a newsletter.

So I will let you all work it out and while you do please heed what a mess it can evolve into.

Having to write this is a good portent of what it can be like.

That is when strangers assume about each other and then the fur flies. It is easy to do the paper but when the words need to be monitored or edited then the fun begins.

And there is no way of pleasing everyone about many things but changing their words or not printing something and you will be fried in every forum they go to.

It is just so unrewrding


PS If you want to talk to me you know how to and I can be found here or in the ALs or Parkisons forums and sometimes addiction.

this is why I am asking for feedback, Thelma, and why we arent just rushing ahead with something before looking VERY carefully at how members feel about it and whether it will benefit the community

I've avoided responding to this thread Chemar..I guess because suicide isn't a neurological problem...it isn't an illness and most people don't want to think about it let alone talk about it or read about it.

Most of our threads are off topic and I doubt if you would find anything of interest there Thelma. But I'd like to think it serves a purpose..that the hugs can reach those in need of support.

We can't give people a reason to live but we can listen without judging them.
We can let them know that we have been "there" and lived to tell about it.
Somedays I tire of it to the point of throwing in the towel but if just one person can be talked..loved..guilted..out of killing themselves then it's all worth it.

:grouphug: for the room and that includes Thelma. *grin

Alffe....I think the SOS Forum reaches a lot more people in need of support than you or I could even begin to imagine...........

and it is a VERY relevant topic, nomatter how people may want to avoid it. Suicide may not be a neurological problem, but neurological problems and the severe physical and emotional pain and changed lifestyle that they can cause, makes it a topic that is relevant to this forum, and I thank God that SOS members are here. :grouphug:

I have experienced a sense of real wonder :) when reading many of the posts on SOS and witnessing a caring that goes deeper than I have ever seen not only on the Net, but in Life.

If our Newsletter gets going there would certainly be room for any contributions from SOS whether OT or not.

Thanks, Thelma.

I actually wasn't meaning to offend you or anyone else. I was just not understanding why it seemed such a bad idea to you especially since you mentioned :""Is it to be a social club for chit chat or a serious entity in the world of neurological help."

I just figured something like this would be a serious entity whether it was only about neurology or whether it was a bit of everything.

I do remember when a similar idea was suggested some where else and I do remember all the kerfuffle about some get together although I don't recall too much about that because I'm in Australia and it wasn't something I could be involved with anyway plus I didn't like getting involved in a lot of the arguments or 'discussions' that went on at that time in the old Forum Feedback area.

I did at one time make my own trip over to the US and Canada and met up with friends at a conference there as well as enjoyed some amazing downtime as well. That was probably the greatest thing I've ever done for myself in my life one way or another. :)

I got the impression from what Chemar has written that nothing would be rushed into and like a lot of things, it's good to talk about it all first and get ideas from everyone.

Also my question about how much do you know about me wasn't a personal type question, it was as I already said a rhetorical question. More of a general statement about how some of us might know more about others than they might know about us. We're both saying the same thing there.

Hey Thelma...
:Wave-Hello:
I remember vividly what an eeyore you were about this whole forum when it started up :p ....and look at us now!

Credit where it's due, the management here told us at the start what it could deliver and what we could expect, and encouraged feedback and suggestions from the fledgeling members to help them formulate the best working structure for *us* - they didn't just say, "we've got a blueprint for running a forum already from PsychCentral, let's just use that".

PsychCentral has a newletter, I notice NT isn't saying "from next week we'll be sending you a newsletter, same kind of thing PC has" - i.e. doing it first, sorting out problems later.

They're again asking us for our feedback and suggestions before formulating a working plan for a newletter specifically to suit *us*. In fact they're going further; this very thread, from what Chemar says, is just a "toe in the water" before casting the idea on forum waters more widely.

Past experience with the NT management has shown that if they do something they take all the necessary trouble to do it well.

So - give'em a chance, why not...but watch out, you might actually enjoy it ;)

all the best!

[quote=Thelma;99981


What exactly is this site in everyones mind then. Is it to be a social club for chit chat or a serious entity in the world of neurological help.

Better decide soon.[/quote]

and why is that? we have nothing to decide. we are doing just fine in the direction we are going. we offer both. if you only like the non caring data sites. go for it.

seems to me even the most die hard research posters here chime in and offer support.

[quote=Thelma;99981


What exactly is this site in everyones mind then. Is it to be a social club for chit chat or a serious entity in the world of neurological help.

Better decide soon.[/quote]

and why is that?

decide for the paper not the site. What does the 99981 mean? After you form the contents then an accurate response can be made as to it being viable

Artist

I still believe that the management can only be a reflection of what the members want else they will have nothing to manage. EG BT

Yep...hence this thread to talk about whether the members want a RELEVANT Newsletter

soooo
let's get back on topic shall we

I will assume that your vote is "no" Thelma :D so rest assured, it has been registered and all your comments have been noted. Thanks for the feedback

Again, unless members want this, AND are willing to help put it together....it will be just another idea that gets archived.