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-   -   just wondering....... (https://www.neurotalk.org/community-and-forum-feedback/227-wondering.html)

stumps 09-06-2006 03:20 PM

Quote:

Originally Posted by Curious (Post 3585)
i just checked...got the same message dated 8/24/06

I have been getting the blank white screen since early morning UK time, now late evening still the blank screen, so approx 12 hours so far in that state of nothing.

DocJohn 09-06-2006 06:46 PM

Quote:

Since BT and John Lester's motives have been attacked repeatedly here, why would it be inappropriate to do the same for this site where at least the people are present to respond?
I'm not sure anyone has "attacked" JL/BT1's *motives* so much as expressing frustration with the lack of communication, reliability, and a *seeming* disregard for the seriousness of the responsibility they have undertaken. Notice I choose my words very carefully, because I don't want to be misunderstood or generalized into "attacking" someone's "motives." I, to this day, believe that JL and BT1 had nothing but the best motives in all the world in running BT1. I just get a feeling (and I may be entirely wrong) that it doesn't take a priority in his life to ensure they're running smoothly. As I've said many times, that's fine. Just be honest with the community, communicate with them regularly, and if possible, find other resources to help you out.

John

Steve 09-06-2006 08:07 PM

I just saw
 
John Lester tonight on the street, walking into a restaurant! I was tempted to ask him what was up, but I didn't want to scare him off. He doesn't know me, but I recognize him from his pictures on the Web.

ZombieSlayer 09-06-2006 08:21 PM

I don't know if there is any truth in this.

Ok is that clear? Hope so ;) :D

I got an email (actually quite a few) from people who were in BrainTalks chat rooms sometime yesterday evening. Chat Moderator #1 came on and said that Mr. Lester plans on having the forums up sometime during the weekend and that the discs did arrive on time.

Again, I don't know if this is true or a rumor....but it's the latest news I've heard.

Posted here since the question was raised.

Bobbi 09-06-2006 08:24 PM

That's clear, ZombieS. - and thank you for sharing what the CM stated :D.

annie 09-07-2006 01:10 AM

Quote:

Originally Posted by unknown (Post 3475)
Hi, Annie,

I assume that when people are talking about "fragile" here, they mean emotionally, since this, or any forum, can't make financially, physically, or neurologically fragility any worse or better..

people on this forum have most certainly made my fragility better.

barabara the moose has several times found important financial resources for me. health care resources, housing. once she found a program for me so that i don't pay anything for my medicare, no premiums. believe me that helped my financial fragility.

liam on the social security disability forum on BT1 answered many questions for me on social security, as he did for anyone who posted there. several people were made homeless over problems with social security. liam has prevented much financial fragility for people applying for social security disability.

in epilepsy we have frequent threads on solving physical problems. usually there is a thread running on how to live around seizures. the two most helpful posters on how to cook without burning the house down are howdydave and david hosobuchi (firehorse) both of whom have had amazing burns caused by cooking during seizures. there is also help on taking showers, driving, many other activities directly impacted by seizures. many posters have helpful information on how to function physically.

in the computer forum here you will find a thread with dorry and zombie slayer helping me to get rid of flash on my new computer. i have photosensitive seizures and flash triggers them. they spent a great deal of time solving my problem. because they have helped me many times in the past to set my computer so that it doesn't trigger so many seizures, i panicked when i got the new computer and braintalk was down, i depend on them for help solving physical problems. don't get much more physical than a computer.

on this forum in another thread curious is offerring me her health club expertise on both exercise for the physically fragile and diet for the hum digestively fragile.

many of the posters in the epilepsy forum take meds and/or have had surgery and/or use a vns. we have many discussions on the pros and cons of these, as well as alternative medicine solutions for our neurological fragility. there is always someone to help a new surgical candidate thru the experience and explain what everything means.

we all also do a lot of educating. sue directly teachs in schools about epilepsy. rocking4epilepsy has an epilepsy awareness organization which helps children and adults. we all talk to people and try to explain epilepsy. we all try to help others with our same neurological fragility, because in this situation knowledge is what makes us less fragile.


Quote:

Originally Posted by unknown (Post 3475)
I expect that lots of people on MS forums are fiancialy, physically and/or neurologically fragile, but I assume the postings issues have to deal with emotionally/psychologically fragile.

in order to solve a problem you must first define it.

i haven't read on the MS forum. but maybe if you looked around on the other forums you would find many people actively solving the problems of financial, physical, and neurological fragility.

and of course my solution for emotional fragility is very obvious: hugs and chocolate.

artist 09-07-2006 01:42 AM

What a lovely message, Annie.

Heart-warming, thank you.

all the best.

indigogo 09-07-2006 09:04 AM

Great!
 
Annie -

Your post is one of the best I've ever read on BrainTalk - old or new!

Cheers to you!

~scrabble 09-07-2006 09:12 AM

Way to go, Annie!

I'm glad you have been able to find so much support and assistance at BT.

Thank you for sharing.


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