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Old 08-06-2018, 08:44 AM   #41
Chemar
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Just updating that I heard from mrsD's dh that there is sadly no change.
But
she is no worse, so let's continue to pray and have hope that her condition may yet improve.
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Old 08-06-2018, 10:52 PM   #42
tkrik
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Thanks for the update, Chemar! I will keep mrsD in my prayers!
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Old 09-07-2018, 10:17 PM   #43
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Was thinking of MrsD today and missing her so much. I hope she knows how much she is missed and how many are pulling for her.

I'd love to be able to tell her that a genomics research group at Stanford University is interested in my situation and what I've learned from my genetic results. I'm being enrolled in a study there.

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Idiopathic, Full Body, Small Fiber Neuropathy since 11/2013. Symptoms include altered sensation in toes; constant tingling/vibrations in feet and lower legs; intermittent tingling in temples, scalp and face; full body "buzzing" in the morning; referred sensation in feet cause by touch; occasional bouts with severe cramping in my feet and legs; when flaring, full body burning.

Metabolic issues: FBG -88 A1C - 5.1 with glucose spikes near 300, can't metabolize alcohol, high LDL.

Current treatments:
  • Omega 3's - Fish Oil (2400 mg EPA, 1200mg DHA), 200 mg Magnesium Threonate, NAD+
  • 5 mg Meribin Biotin for low-normal biotinidase levels.
  • Low carb "back to the farm" diet, lots of water
  • Quell TENS unit, 5% lidocaine patches, magnesium cream, CBD oil
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Old 10-08-2018, 03:38 PM   #44
DejaVu
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My Mood: Our beloved mrsD
Heart

I am saddened to learn mrsD is experiencing difficulties.
I really love her and all she stands for.
She is in my thoughts and my prayers.


DejaVu
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Last edited by DejaVu; 10-09-2018 at 01:08 AM.
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