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Old 07-31-2020, 03:06 AM #1
Annavon Annavon is offline
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Default Low activity in some forums

I originally joined because I was diagnosed with peripheral neuropathy. I found that form helpful and there seems to be a lot of activity.
My diagnosis changed to post viral syndrome which I have discovered is grouped with chronic fatigue syndrome. It has also been suggested that I might have fibromyalgia. I started posting in that forum and donít get much in the way of replies. I started looking at the other posts and I noticed that the first page has posts that are almost a year old or older.

I also checked out the headache forum ((I get migraines), there didnít seem to be a lot of activity there either.

Why so little activity? I would think people would be looking for support and answers about these conditions.
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Old 07-31-2020, 03:33 AM #2
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I suspect this is because many members are busy coping with the direct and indirect effects of the Covid-19 pandemic.
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Old 07-31-2020, 06:15 AM #3
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Default And, unfortunately--

--over the last several years, nearly all forums like this one have seen a dimunition of postings as people have gravitated towards groups hosted on social media sites.

I'm not fond of those--they don't tend to have the curation, and thus the overall accuracy, of more moderated boards--but they do seem to be easier for people to access, as they're often there for other reasons already.
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Old 07-31-2020, 10:54 AM #4
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I'd like to echo what glenntaj said.

I've tried social media and still use them but in a very limited way compared to many people.

It's hard to carry on much of a discussion of anything when your space is limited as it is on social media sites.

Your space is limited here too but not nearly as limited.
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Old 07-31-2020, 01:14 PM #5
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OP: I've offered a LOT of info on this forum and often no thanks, but I continue as just maybe my info can help someone. Being on here I think about 5 yrs, I believe it was a lot busier yrs ago... And there are not answers for EVERY issue I suppose around here...you mention migraines and I've never had one of those but COULD BE the grape seed extract I've talked about until blue in the face, could help you there. I have NOT had a regular ole headache in 25 yrs since taking Grape Seed Extract.
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Old 07-31-2020, 03:10 PM #6
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We do have a search tool to find past posted info on symptoms & testing & medications.. Much of that will still apply, or give you ideas to search online for current info..
https://www.neurotalk.org/search.php

We have the useful sticky threads at top of each forum with saved info also..

Starting a discussion can help to increase activity..
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Old 08-01-2020, 01:27 AM #7
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Quote:
Originally Posted by caroline2 View Post
OP: I've offered a LOT of info on this forum and often no thanks, but I continue as just maybe my info can help someone. Being on here I think about 5 yrs, I believe it was a lot busier yrs ago... And there are not answers for EVERY issue I suppose around here...you mention migraines and I've never had one of those but COULD BE the grape seed extract I've talked about until blue in the face, could help you there. I have NOT had a regular ole headache in 25 yrs since taking Grape Seed Extract.
Caroline, I thank you for your helpful replies and posting. However sometimes you are the only one replying.
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Old 08-01-2020, 01:57 PM #8
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OP: I don't know where everyone is but I continue to try to support what I know and have used in my long life.
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Old 08-01-2020, 03:00 PM #9
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I agree with both kiwi33 & glenntaj regarding the effects of the current pandemic, and especially the rise of social media "groups" on reduced forum activity. This is not just happening at NT but on many forums.

Sadly, we have also lost a number of our steadfast posters, like mrsD and others who are too ill to post or have passed away. They were so reliable in trying to answer all over the forums with their wide range of knowledge and experience.

Also, when NT was recently moved from the PC URL, that caused a drop in search engine ranking, so reducing new members finding us... but it seems to be increasing again. There is also a high volume of views, so it's good to know many are reading the valuable info accumulated here since 2006, even if not posting.

There are a number of our forums that are still active, and as Jo*mar mentioned, often just by starting a discussion, more participation follows.
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Old 08-02-2020, 10:09 AM #10
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I don't expect to be thanked. Any thanks I get is just frosting on the cake.

This board provides a space where you can air your ideas, information you'd like to share, even photos. If nobody appreciates your contributions, at least you've put them out there in case anyone is interested.

You can't please everyone. And you can never know who's actually reading your posts and how much your posts have meant to them. There are people reading but never saying anything.
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