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Old 09-22-2006, 09:53 AM #1
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Thumbs up Forum requests........

I believe I got all the newly requested forums, but if I missed yours, please post to this thread.

Thanks!
John
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Old 09-22-2006, 12:21 PM #2
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John,
Thank You so much for the Colloid Cyst site. Hopefully others will make it over to this "new" forum.

Would I be asking too much in requesting a Tramatic Brain Injury site, and possibly a Brain Tumor/Cancer forum? I know you are working on so many right now, and these were not high volume forums on the old BT site, but they are very worthwhile and helpful to those who have dealt with, or have family members dealing with these issues.

Thank You so very much, Dodi


Also, can you give me instructions on adding stickies? I may have some additional websites that would be helpful with some of these issues.

Thank you again, Dodi
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Old 09-22-2006, 12:25 PM #3
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I didnt see a mitochondrial/metabolic disease forum!!

Maybe it's me.who knows...but can we please have our own forum?
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Old 09-22-2006, 02:40 PM #4
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Quote:
Originally Posted by KTM5665 View Post
I didnt see a mitochondrial/metabolic disease forum!!

Maybe it's me.who knows...but can we please have our own forum?
Nope, it's not you my friend I don't see a mito forum either, your eyes are still working!

Thanks Doc John for adding the Cerebral Palsy forum!
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Old 09-22-2006, 03:07 PM #5
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I'm not feelin' the love, sister. but you know, I love "you"!
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Old 09-22-2006, 03:53 PM #6
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docJohn, thank you for the caregivers room. I feel it was needed when so many are caregivers here.

I had asked for an Alzheimers/Dementia forum, but several other posts posted that we needed a cargivers room, which we did.

thank you for making a place for us all. thank you, Jo
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Old 09-23-2006, 09:19 AM #7
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Please, could you add a forum for Parents with Disabilities?

I have MS, I use a wheelchair, I have three young children. Anyone with a disability already faces issues of isolation. Add children and the issues become more challenging.

Because of my issues, I have almost no real-life contact with other parents. I have zero contact wth other parents with disabilities. I have tried repeatedly to find online sources of community for parents with disabilities and been unsuccessful.

If you added a forum here for Parents with Disabilities, I would be thrilled. I also know there are plenty of young parents with disabilities and chronic illness who could use a common place for support.

To make it clear: This would be to support disabled parents, not parents of children with disabilities.

I had asked before at BT, but I think it may have been confused with child neurology.

Thank you, thank you, thank you!!!!
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Old 09-23-2006, 09:36 AM #8
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I think a good idea and adding one word might be good too. "Parents with Disabilities" or "Parents Living with Disabilities". I, personally, think that a great idea for a forum.

I know many times my pain issues were difficult for me, but also difficult for my family to even understand, let alone help me with. It didn't matter how I felt, the children still got sick, still got in fights, still needed dinner... Then when I would have to have a surgery, or procedure, dealing with their fears and helping them with understanding was HUGE.

My children are grown now, but I have my little man that I'm raising who will be 4 next month. I would certainly contribute.

Thanks for the suggestion!

Thanks for all the suggestions!

KD
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Old 09-23-2006, 11:45 AM #9
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Thumbs up

Quote:
Originally Posted by bluesky63 View Post
Please, could you add a forum for Parents with Disabilities?
YES! I second and third this! I am not "disabled" in the clinical sense, but when you live with a "hidden" condition and are trying to raise children (esp one with a disability as well), keep a house, maintain a marriage, etc., something like this is very needed and much appreciated.


Thanks so much!

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Old 09-23-2006, 02:37 PM #10
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could we have a medical marijuana forum?
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