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09-04-2006, 04:35 PM | #1 | ||
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09-04-2006, 08:44 PM | #2 | ||
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General Neurology and Rare Disorders
Discussions about general neurology and undiagnosed conditions, including rare disorders that may not be separately listed. Forum Feedback Forum Feedback is a place to discuss general ideas about the BrainTalk Communities - a place to ask any questions you may have, to talk about things you like, things you don't like, new ideas about how our community may grow, new features you'd like Forum for Emotional Support This is a general forum for people looking for emotional support of any kind. Adoptive Parents of Special Needs Children Advocacy and Activism Anger Management A place for people to share ideas, experiences, and tips for managing anger related to people dealing with neurological illnesses. Artistic Expression and Therapy A place to express creative ways of dealing with neurological disorders using art (words, music, images). Breast Cancer Bridging the Cultural Gap There are thousands of people from many different cultures in these forums. Here's a special place to learn and share information about different cultures and customs! Caregiver Support Chatroom Feedback A place to discuss the MGH Neurology Chatrooms and to give feedback about their use. Chit-Chat This is a place for daily "chit-chat" and other discussions that are not directly related to Neurology. This is also a place to discuss chatrooms! Comic Relief A place for people to share jokes and funny stories as a way to provide "comic relief" for people dealing with the stress and anxiety of neurological illnesses. Please just keep it in "good taste" and lighthearted! Complementary and Alternative Medicine Complex Issues / Multiple Diagnoses Computers and Technology A general forum for discussions about computers, technology, and the Internet. If you just want to "geek out" or talk about how computers tick, then this is the place! Coping with the Loss of Child Current Scientific Findings and Articles Disability Aids Domestic Abuse eBayers at BrainTalk Many BrainTalk members use eBay both for fun and as an important source of income to help people who are housebound and on a limited income. This is a place for fellow BrainTalk eBayers to share information and experiences about eBay, and to help ea Educational and School Issues This forum is for general discussions about school and educational matters regarding neurological conditions, particularly for Parents, Child Care Workers, Teachers, Students, Councellors, and Special Assistants. Featured Websites A forum to discuss and comment on useful medical websites that have appeared in the "Featured Websites" link at the top of every page here. Folding@Home Folding@Home is a distributed computing project whose purpose is to unlock the mysteries of protein folding. Many human diseases, including many neurodegenerative diseases, are thought to be caused by improper protein folding, or protein misfolding. Food for Thought - Nutrition and Neurology A forum to discuss healthy recipies, food, and nutrition ideas relative to neurology. Forget Me Not Garden of Memories A place to share stories and remember loved ones who have passed away. A place to publically say a few words about those special people who have touched our lives. Friends of BrainTalk Communities Friends pulling together to help support our Community and our Home. A place to share ideas on how to make BrainTalk self-sustainable through grants and donations. Grief Infertility and Neurology Legal Issues - General General legal issues dealing with neurological disorders. The Lighter Side The Lighter Side Forum provides an opportunity for people who suffer from neurological conditions to relieve stress and to put their difficulties into a less intimidating light through real-life humor. ?Lurking? (that is, reading without posting) is Linder's Card Shop This is a special forum to find, create, and send cards to people in these forums. Lost and Found - Finding People There are many forums here, and sometimes it is difficult for people to "find" each other. Some people move from forum to forum over time. Sometimes people go on vacation or move, and they may wish to somehow "announce" that they are going to be offl Making Peace and Moving On Have you had an argument with someone? Are you ready to "bury the hatchet" with someone? Even if the best you can do is to simply "agree to disagree" (and sometimes that is all we can do), THIS is the place to publically make peace and move on to a m Medical Conferences and Meetings A general forum for discussing upcoming medical meetings and conferences relevant to neurology. Medical Equipment Exchange A place where people can post exclusively about medical aids/equipment they no longer need and are willing to donate to someone else. Also for people with needs who can post so others might be able to help them with what they need. Medical Ethics Medications and Medication Toxicity General discussions and questions about medications for any disease conditions, including issues of medication toxicity. Memory Deficits Men's Health and Neurology A place to discuss men's specific health issues related to neurology. Night Owls A place to go when you can't sleep and would like to meet other "Night Owls." Nursing Obesity and Neurological Disorders Older People with Neonatal or Prenatal Conditions Parents of Survivors of Child Abuse Personal Injury Protection (PIP) A forum to discuss PIP issues, such as MVA or Slip/Fall cases. Pet Therapy A place for people to talk about their pets and the therapeutic effects of pets on people dealing with neurological disorders. Philosophy of Chronic Illness A place to discuss the philosophy of, as well as random thoughts on , chronic illness. Positive Experiences with Health Care Professionals Patient, parent, and caregiver recommended neurologists, therapists, and health care providers. Prostate Cancer Psychology of Chronic Illness Rehabilitation Sexuality Discussions about impotence, sexual functioning, and personal experiences/effects of neurological disorders on human sexuality. Sanctuary for Spiritual Support This "Sanctuary" is a place for people of all spiritual beliefs and faiths to offer support and compassion to each other in the form of prayers, meditation, and expressions of spirituality. This forum is for support, not religious debate. Single Parents with Disabling Conditions Social Security Disability Smoking and Tobacco Success Stories A place to share positive experiences about "success" when dealing with any neurological disorders. Survivors of Suicide Teens Helping Teens Tests and Procedures Vitamin Deficiency Widows, Widowers, and their Families Women's Health and Neurology A place to discuss women's specific health issues related to neurology. Worker's Compensation Private - Support Team |
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09-04-2006, 08:45 PM | #3 | ||
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Specific Neurological Conditions (A - L)
Achalasia Addiction ADHD Attention Deficit Disorder/Attention Deficit Hyperactive Disorder Agoraphobia Alcoholism, Addiction and Recovery Alcoholism, Addiction and Family Support group for people dealing with family members who suffer from alcoholism. ALS Alzheimer's Disease Amyloidosis Aneurysm Welcome to the Brain Aneurysm Foundation's http://www.bafound.org message board. This board is part of a partnership with "BrainTalk Communities" sponsored in part by the Massachusetts General Hospital's Department of Neurology. Angelman Syndrome Antiphospholipid Antibody Syndrome (APS) Anxiety Disorders (General) Allergies and Allergic Reactions Arachnoid Cysts Arachnoiditis Arnold Chiari Malformation Arteriovenous Malformation Arthritis Ataxia Autism Autoimmune Diseases Autonomic Behavioral Disorders Bells Palsy Bipolar Disorder Blood Pressure Problems Issues dealing with Blood Pressure problems and how they relate to neurological disorders. Body Dysmorphic Disorder Bowel Disorders Brain Cancer and Tumors Canavan Disease Cauda Equina Syndrome Central Auditory Processing Disorder (CAPD) Cerebellar Ataxia Cerebellar Disorders Cerebral Palsy Charcot Marie Tooth Child Neurology Chronic Fatigue Syndrome Chronic Pain Whatever the cause, support for managing long term or intractable pain. Cluster Headache Compulsive Skin Picking Congenital Fiber Type Disproportion Coronary Disease and Neurology A forum for discussing coronary disease, heart attacks, and the neurological implications/complications. Corticobasal Ganglionic Degeneration Creutzfeldt Jakobs CSF Leak Dandy Walker Decubitus Ulcer DeMorsiers Syndrome Depression Diabetes For discussions about the neurological implications of diabetes. Dissociative Identity Disorder/Multiple Personality Disorder Down Syndrome Dyslexia Dystonia Eating Disorders Anorexia, bulimia, compulsive eating, obesity issues, etc. Ehlers Danlos Syndrome Encephalitis Endocrine and Gland Disorders Issues dealing with Endocrine/Gland disorders and how they relate to neurological disorders. Endometriosis Issues dealing with Endometriosis and how they relate to neurological disorders. Epilepsy Awareness Projects Epilepsy Erythromelalgia Essential Tremors Facial Paralysis Fibromyalgia Fragile X Gaucher Disease Gifted and Learning Disabled Individuals Gluten Sensitivity / Celiac Disease Glycogen Storage Disorders Gulf War Syndrome Guillain Barre and CIDP Headache Hearing and Inner Ear Disorders Discussion about hearing, inner ear, balance, vestibular, labyrinth, vertigo and undiagnosed hearing disorders. Hemispherectomy Hepatitis C (HCV) HIV and Infectious Disease Huntingtons Disease Hydrocephalus Hypotonia and Hypertonia Irritable Bowel Syndrome (IBS) Landau Kleffner Syndrome Late Talking Children Lead Neuropathy Lennox-Gastaut Syndrome Leukodystrophy Lewy Body Disease Lightning and Electric Shock Lupus Lyme Disease Specific Neurological Conditions (M - Z) Mal de Debarquement Marfan Syndrome MSUD (Maple Syrup Urine Disease) Meningitis Menopause and Neurological Implications Mental Retardation and Related Cognitive Disabilities Meralgia Paresthetica Mercury Toxicity Microcephaly Mitochondrial Disorders Mixed and Undifferentiated Connective Tissue Disease Moebius Syndrome Movement Disorders Moya Moya Multifocal Motor Neuropathy Multiple Chemical Sensitivity (MCS) and Chemical Injury Issues dealing with Multiple Chemical Sensitivity (MCS ) and Chemical Injury, and how they relate to neurological disorders. Multiple Sclerosis Muscular Dystrophy Myasthenia Gravis Myelin Disorders Myelomalacia Myoclonus Myositis Narcolepsy Neuralgia Neurofibromatosis Neuromuscular (in memory of Rose Marie) Norrie Disease (in memory of Bobby and Matthew) OCD Overgrowth Syndrome Pelizaeus-Merzbacher Disease PANDAS Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. Pain Panic Disorders Parkinson's Disease PLWP (People Living with Parkinson's) Parkinson's Disease - DBS/STN Support A forum specifically for supporting people dealing with DBS/STN issues and Parkinson's Disease. Pelizaeus-Merzbacher Disease Periodic Paralysis Peripheral Neuropathy Periventricular Leukomalacia (PVM) Personality Disorders Phantom Limb Pain Porphyria Post Polio Syndrome Post Traumatic Stress Disorder Premenstrual Dysphoric Disorder Progressive Supranuclear Palsy (in memory of "JanDel") Proximal Myotonic Myopathy (PROMM) Pseudotumor Cerebri Radiation Exposure and the Nervous System Ramsey Hunt Syndrome Reflex Anoxic Seizure Reflex Sympathetic Dystrophy Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II) Repetitive Strain Injury Restless Leg Syndrome Rombergs Disorder Schizophrenia Scoliosis Self Injury Sensory Integration Disorder Shy Drager (Multiple Systems Atrophy) Silicone Related Diseases Sjogren's Syndrome Sleep Disorders Spasmodic Torticollis Speech Disorders Spina Bifida Spinal Cord Injury Spinal Disorders Spinal Muscular Atrophy Stiff-Person (Stiff-man) Syndrome Stroke Sturge Weber Syndrome Survivors of Sexual Abuse Sydenhams Chorea Syringomyelia Tardive Dyskinesia Tethered Cord Syndrome Thalamic Pain/Central Pain Syndrome Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy Tics and Twitches Discussions about tics and twitches in general. TMJ (Temporomandibular Joint) Syndrome Tinnitus Tourette Syndrome Transplants Traumatic Brain Injury Trichotillomania Trigeminal Neuralgia Trisomy 18 Disorders Tuberous Sclerosis Urinary Disorders Urinary Disorders related to neurological disorders. Vaccine or DTP Injuries Vascular Malformations Visual Impairments |
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09-04-2006, 09:21 PM | #4 | |||
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Hell I hear John left a sweater at the old site lets go get that too.
Now it is getting really ridiculous. You can't be serious about this....can you? |
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09-04-2006, 10:16 PM | #5 | ||
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Quote:
Weren't you the one complaining that there were only some forum topics here, or was that sarcasm? There are some forums listed that aren't here that I would like to see medical information on. Others have stated that their disease of choice isn't listed. I've never heard of 90% of the diseases listed above, and I doubt many of them were frequented often, if ever. They were probably taken from a neuro disease list. BT could come back tommorow, but personally I have no interest in returning there. If nothing more, than the outpouring of paranoia and demanding attitude that I have seen here. I'm a patient person, but not that patient. I know my limitations. Others that I've invited here from the old BT forum have read here and said no thx. Not because they think their precious BT had been stolen, but rather it brought out the worst of what they remembered from BT and why they seldom went there either. You may not care to stay here, but many of us do. We're looking to build a community where some familar faces want to park themselves and discuss neuro disease. I don't happen to know what diseases they want, so I copied the list. I don't understand your point. |
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09-04-2006, 10:40 PM | #6 | |||
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Thank you Dorry for finding the list.
Personally, I would like to see an Autoimmune forum here. There were a lot of forums at BT for specific Autoimmune diseases, but I don't see the need for that here (yet) but a general autoimmune forum would be a nice addition in my opinion. Liz |
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09-04-2006, 11:04 PM | #7 | ||
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your welcome wittesea. I'd like to see these forums, if there are other members with similar problems.
Autonomic Disorders Coronary Disease and Neurology Sleep Disorders or Insomnia Panic Disorders from Arrythmias or otherwise Alot of autonomic disorders have overlapping symptoms and many diseases may have similar symptoms that patients could share info on how to cope. I agree with your suggestion that a group of disorders could be classified in one related category. I tend to not be a medication taker because of allergic reactions, so I would love to converse with ppl that manage their symptoms without medication. Those would be some of my choices. |
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09-07-2006, 05:06 PM | #8 | ||
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Yappiest Elder Member
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LOL
if the sleep disorder/ insomnia one gets started...we might as well name it curious'es room! ya think i'm a yappy monkey now? hehe....did you know i rarely sleep? |
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09-07-2006, 05:26 PM | #9 | ||
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Senior Member (jccglutenfree)
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I'd think looking at the top thirty or so most active old forums would provide a good base, and then people could request additional forums be opened if they saw or had a need. I pulled the number thirty out of the hat...might be more....but I'd imagine there are some that could go. I agree that a lot of them were empty and served little purpose..of course, empty forums don't cause many problems either. A forum doesn't need to have a lot of members to be useful. So, I guess that came full circle...lol.
Cara
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. Last edited by jccgf; 09-07-2006 at 05:36 PM. |
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09-08-2006, 01:22 AM | #10 | ||
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Junior Member
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Quote:
Gillian |
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