NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Community & Forum Feedback (https://www.neurotalk.org/community-and-forum-feedback/)
-   -   Isnt this Jl's new thing? (https://www.neurotalk.org/community-and-forum-feedback/686-isnt-jls.html)

Chemar 09-13-2006 08:37 AM

Quote:

Originally Posted by DocJohn (Post 5278)
Over 2 months now. The message has been down now for more than a few days. No update, no word to the thousands of people who depended upon the community. Some on a daily basis.

At this point, I guess we should stop holding our breaths waiting for its return and just get on with life and building this community.

It's sad, but I also think we shouldn't read too much into a person's motives or behaviors without them being here to defend themselves. Instead let's focus on the positive and what can be built here.

John

Bravo!

Time to move on folks :)
Let's channel our energy into getting back to the vital function of caring and sharing here, and if and when BT returns, people will decide for themselves whether they feel more at home there, here or in both.

lindylanka 09-13-2006 09:07 AM

For John ........
 
I too have been visiting BT for many years - and it has been important to me in terms of being able to have a good dialogue with people who KNOW how I feel because they are going through the same thing. The whole thing about peer support is that. Yes, John did a great thing in setting it all up for us, but I am very baffled by the strangeness that surrounds this whole thing. At the same time that BT sank, John was apparently on a lecture tour that included slideshows that featured BT and his role in developing it, as well as projects like Brigadoon, as part of Linden Labs community efforts.

Now I'm no technical expert, but it was plain to see from a link in another message on this thread that the equipment that JL bought was under warranty from Apple for THREE YEARS from april 05. And its only september 06.......... The hardware should be okay, the data maybe not, but to get things up and running again it should have been a simple matter of reinstalling the software on repaired or replaced equipment. It does not take months to do, the software is not hard to put in place. So there MUST be other reasons for it not happening. If BT was a "non-profit corporation operating as a public charity" as described on the hasypastry page with John's message to us then surely there is some liability there - or maybe those words don't actually mean anything............

I am not writing this to attack John in anyway, he has given a lot of people a great deal over the years. I am however questioning his way of dealing with the members of BT - it seems neither responsible or ethical to leave so many people, many of whom have had devastating health issues affect them and their families, in this kind of limbo. I would just request respectfully that he steps up to the podium and offer an explanation to 'his' members about what has happened, instead of leaving them in the dark. And to do it here, and on the BT page where that rather old message is.

At this stage it is about re-empowering the people who made up BT, it's not about John, or who is to blame, it is about re-connecting people with THEIR support system, because it was not all about John and the work he did in setting things up, but about a whole community of very real people. Forums like these may seem as though they are 'virtual' - in reality they are not, we are just using a virtual medium, if you doubt that look at the Brigadoon people, their REAL lives are improved, in fact it is a lot less virtual than watching TV......

John, if you come here, or you have anyone looking in on your behalf, please let us know what is happening, if it is to do with the security breaches at LL then let us know, if you no longer have the time to devote to BT then let us know, if it all grew too big and it is too much then let us know, and allow a good end to the work you have done. IF you ARE going to put it all to rights, then also LET US KNOW, but please don't continue to leave people in the dark. It is not right to leave people with severe health problems in the lurch, it goes against everything you have worked for, everything you write about. The people who came to BT often had a commonality - they had questions that the medical profession would not or could not answer. You gave them the means to ask those questions, and find out some of the answers themselves. Well, we have another question now. It would be kind if you gave us an answer. And whatever that is, you would have more respect for answering it than for remaining silent.

Lindy

ConsiderThis 09-13-2006 10:12 AM

Quote:

Originally Posted by Chemar (Post 5441)
Bravo!

Time to move on folks :)
Let's channel our energy into getting back to the vital function of caring and sharing here, and if and when BT returns, people will decide for themselves whether they feel more at home there, here or in both.

:) Good point. Well put. YES!

dorry 09-13-2006 10:49 AM

I have no bone to pick with JL, but if BT is the

Quote:

largest online community for neurology self-help groups in the world.
(from Brigadoon)

it is inexcusable for a 'tech' to get to it, whenever. Other than that, I have no interest in what JL does or doesn't do.

If I click on a dead link once, I'll try again. 2, 3, 4 times, yes. After that? A website down for 2 months is the kiss of death online.

Quote:

BrainTalk Communities Incorporated
Misson and activities:
BrainTalk Communities Inc. currently uses online communities including forums, chatrooms, and virtual reality worlds to service people seeking support and/or information regarding neurological disorders.

Our non governmental, non-profit, organization works at the international level.

We consider ourselves as part of the international Independent Living and Disability Rights Movement.

Our organization is mainly run, controlled and represented by disabled people.

We have traineeships or volunteer positions that people with disabilities are welcome to apply for.

Our traineeships or volunteer positions are open to applicants from abroad.

Contact us:
Contact person: David Hosobuchi
Email: dhosobuchi@gmail.com
Home page: http://brain.hastypastry.net/forums/

This entry added: Wednesday 19th October 2005. (record #774) Changed: Tuesday 3rd January 2006. Link checked Monday 11th September 2006.


ConsiderThis 09-13-2006 10:52 AM

Quote:

Originally Posted by dorry (Post 5493)
I have no bone to pick with JL, but if BT is the

(from Brigadoon)

it is inexcusable for a 'tech' to get to it, whenever. Other than that, I have no interest in what JL does or doesn't do.

If I click on a dead link once, I'll try again. 2, 3, 4 times, yes. After that? A website down for 2 months is the kiss of death online.

(((((((Dorry))))))))

Curious 09-13-2006 11:03 AM

Rip
 
http://i79.photobucket.com/albums/j1...naBirdd/bt.jpg

if you look at all the emotions that have been posted...i'd say that enough "grief" has been spent on bt. shock, sadness, loneliness, anger, remorse, sympathy, empathy...the list goes on and on. time to put it to rest. life goes on.

ConsiderThis 09-13-2006 11:03 AM

Quote:

Originally Posted by Curious (Post 5499)
http://i79.photobucket.com/albums/j1...naBirdd/bt.jpg

if you look at all the emotions that have been posted...i'd say that enough "grief" has been spent on bt. shock, sadness, loneliness, anger, remorse, sympathy, empathy...the list goes on and on. time to put it to rest. life goes on.

lol
you crack me up!!!!!!

Curious 09-13-2006 11:04 AM

oh...don't forget.....after most "funerals" there is a get together with food.

i have the brownies and hazelnut coffee. :p

Curious 09-13-2006 11:05 AM

;) thought you might like it consider this.

ConsiderThis 09-13-2006 11:05 AM

Quote:

Originally Posted by Curious (Post 5501)
oh...don't forget.....after most "funerals" there is a get together with food.

i have the brownies and hazelnut coffee. :p

Oh, I LOVE Hazelnut coffee!!!!!

I'll bring coffee cake, Coffee Cake was big in my Polish family :)


All times are GMT -5. The time now is 08:38 PM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.