[K*L*D]

Why was the Spinal Cord Injury forum deleted? While we did not have much traffic, the are people who are looking for the information posted there, and the issues are NOT the same as for spinal disorders. I was out of the country and came back to find it gone. Guess I will send people over the the original Braintalk or to CareCure and tell them to forget about this site as far as NEUROLOGIC (not orthopedic) disabilities.

[K*L*D]

After some seaching, I see that SCI has been relegated to General Health Problems and Rare Conditions. That is not an appropriate place for it. It is the number 2 disabling condition for adults between the ages of 15 and 30 (after MS) and there are at least 300,000 in the USA alone living with SCI. Many of the conditions still listed on the regular forums are much more rare than this. I guess I am the only one that that cares about this, but it is a joke to call a forum "Neuro"talk and have SCI stuck away in some corner.

[Curious]

i am sorry that you feel that way. i don't think your statement :joke to call a forum "Neuro"talk and have SCI stuck away in some corner. is a very fair one, but you are entitled to it.

we are a pretty new forum who is growing the wants and needs of it's members. we are not a mirror site to other forums and may not have the same forums they do. we might also have different ones.

as you can see from the announcement thread : http://neurotalk.psychcentral.com/announcement.php?f=3

some of the forums that were not being used much yet were moved. they are sub forums that will be moved back out as the need arises. rare or not is not the issue.

CureCare is an awesome for sci. i have even posted the link to there for one of our members who's son was injured. he has a long thread on the new spinal cord injury forum there.

[Bobbi]

K*L*D,

I also care about SCI and the SCI forum. And, too, I care about CareCure (which is where I learned much about AS and SCI) - by reading posts by none other than yourself and Dr. Young .

I'm not giving up on or overlooking the SCI forum here; I think that Curious explained it well...

Some forums were relocated as sub-forums. It doesn't mean it's permanent, from what I gather.

I hope that you will continue to visit and contribute to the SCI forum here. I do learn quite a bit from reading your messages.

[Chemar]

Originally Posted by Bobbi

K*L*D,

Some forums were relocated as sub-forums. It doesn't mean it's permanent, from what I gather.

I hope that you will continue to visit and contribute to the SCI forum here. I do learn quite a bit from reading your messages.

Hi Bobbi and K*L*D

yes, DocJohn has indicated that if the forums that were not being actively used become active again, he will move them back out from subforum status to full forums
sooooo
all the more reason to keep posting

Also, as Doc has clearly shown, he is very willing to heed member requests, and so if you feel the SCI forum needs to be re-instated to the main index, why not just PM him with the request!

[Chemar]

an idea

would SCI work better under Spinal Disorders as a subforum, rather than as a sub in the General forum?

[Thelma]

The illusion that this forum is a new entity in the world of the WWW is formulated on a false pemise that we are different.

While there can be a relatively and free site to 'talk' in it is not different in it's basic makeup.

No it is not Braintalk but it is in reality a copy of Braintalk as is almost all the other Neurological sites out there. Now that is good in lots of ways and not so good in others...............but

one thing is true and that is they are willing to hear you speak here and that is not the case at other sites.

So then if you disagree with the things that are happening why don't you try and just maintain composure and talk to John about what the problem is as you see it.

I myself don't agree with what is happening on the site in all of the sub forums but I leave it to him as it is his site.

If others of the sites in the sub forums complain I will back them up or disagree with them but it is not my place to argue against them.

there are so many sites and so many diseases and conditions out there that to label any one as topic or sub is foolish in my eyes.

The more forums we have the more people we will have. JL has shown this to be true and while there are many unused forums at that site they are used in spurts by many.

This site is getting a lot of IMHO forums that will never serve the neurological needs of all. those that are related to depression an instance. depression is a big problem for many but in the context of another more prevalent disease n their lives it is usually discussed in the original forums.

The one that to me is useless is the bringing in of the chitter chatter that is prevalent in the news of the day. This site is just indicative of your local newspaper in which you read all of the current health news such as cucumber may break out the faces of children if rubbed on the skin.

Wild comment ya but it could be in the feed today even.

But it does serve to build the false total of postings of the day.

So all in all this site needs to have a setup of forums relegated to the diseases and conditions that relate to the members they want to attract, What the members want and need is not the point. If you have what anyone on the net is looking for then you will find that they will come.

Now as to why they have to come fast is beyond me. The other question of why they must have 10 posts is weird for me as well.

John you say this does not equate to you having to invest a lot of money to run and so why so you not have the time to wait.

This site is a copy of Braintalk and that is a fact but almost all of my clothes and furnishings are copies of some designer or another does not mean anything if they are fashionable and stand up to time.

My thoughts are that we need to do away with these sub-forums and stick to the main forums with the names of the varying diseases right out front.

All of the other sub topics such as chit chat and whatnaut should be added after a long time as desire increases for them in each forum.

So if this is going to be a Neurological site then we must state it as such.

If it is going to be a sidebar of a mental health site then say so.

Right now it is just swimming with a swim fin across the web as a second choice to many others and if it wants to swim on it's own then the time is right now with the membership it is to get it straight ond on target.

Then we can head for it

But John what is that target.


***************************************
I was asked for an opinion off line but that is not for me and so it is here for all to see.
Thank you for your time.

[Chemar]

Hi Thelma

the reason for the changes was that some had requested a tidier look to the overall boards, with not so many individual forums which were being little used or not used at all

however, certainly from posts here and also PMs I have received, it seems that some members may prefer to have all the forums out as main boards, not subforums,, even tho they may not be very active..

as I mentioned in an earlier post...........by now we know well that DocJohn is the kind of administrator who is very hands on and responds to member feedback.........so

in addition to the posts here, and hopefully PMs that have also been sent to him, I will bring this to his attention as well when he is back online (I am not sure if he has returned from his Thanksgiving visit to family yet) and I am sure he will respond here personally and also be willing to do whatever is needed to provide what works best for the overall membership.

[Lara]

Everyone has been very accommodating when I think about it and every forum is as valuable as the next one, so I say just ask if you feel a change is warranted, K*L*D.

Since the original influx of so many people and frantically busy posting, the site has settled down. I see it more as a demand = supply issue. If a forum has only say 3 posts and another has hundreds or more, then it might appear that the forum with only 3 posts isn't going to be utilized. When the site started there were so many people asking for different things and being very verbose. Sometimes I look around and wonder where those people are now. I think sometimes people take a lot for granted but then I'm a little jaded today and that might be affecting the way I think about this. It's not my site, so I'm just thankful for what I've got. I figure if the SCI forum is going to be used then all one would need to do is ask the webmaster about the changes and it'll be sorted out.

~~~ We might as well reasonably dispute whether it is the upper or under blade of a pair of scissors that cuts a piece of paper, as whether value is governed by demand or supply.

- Alfred Marshall
Principles of Economics, 8th ed., 1920, p. 348.

[Ellie]

The feedback is appreciated and is much needed in order to know exactly what people want so we can discuss it and make changes. It was said before, if there is something you like, dislike, want, need, etc. to make it known so that it is out in the open for discussion and then changes as needed.

I am pretty much in agreement with the members regarding sub forums of this particular size. While I do fancy some sub-forums, for example: Having an Off-Topic Forum with several sub forums for sharing recipes, music, or whatever. The same for conditions that typically have other associating problems or symptoms (having a sub forum for those in their designated condition area).

Oops, look at me thinking outloud again! Sorry. My hand swelling finally went down and I'm on a rampage now.

Anyway, this has been brought up in the moderator area (thanks Chemar!) and I'll be chiming in after I finish blabbing away here. As already stated, the best way to express changes you dislike is to make everyone aware of them so we can discuss it and throwing out ideas you may have is encouraged.

It's still going to be a trial and error type of thing when changes such as this are made.

I have high hopes things will fall into place a bit gentler as time passes.

Thanks for bringing this up, and I wanted to thank Thelma for that post, too.