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03-12-2015, 04:42 PM | #1 | ||
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Is there any good information on this that any of you have found helpful?
I went from very healthy to now chronic neuropathic pain that prevents me from functioning like before. I am disabled by it. I am grieving for what I had before. Any suggestions, oh wise ones? |
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03-12-2015, 04:59 PM | #2 | ||
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I am grieving as well.
This is what I'm doing: On the days that I can see straight I am reading. I am becoming better at meditation. I am listening to music. I am being distracted by some Netflix series I am trusting the universe I am living in the present, reminding myself to be grateful, trying not to be fearful of the future. I am realizing that worrying is only sending more vibrations to my cells to cause them to misbehave. I am crying in between all of these other things. It's been 7 months for me since I went from on top of the world to..... what ever this is. |
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"Thanks for this!" says: | Diandra (03-21-2015), Enna70 (04-11-2015), eva5667faliure (03-19-2015), ger715 (03-12-2015), indigo (10-26-2015), RSD ME (01-13-2016), SylvieM (03-18-2016), visioniosiv (04-18-2015), zinnia (01-12-2016) |
03-12-2015, 07:01 PM | #3 | |||
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Magnate
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Healthgirl you are working through the mental exercises needed to help you Cope with a long-term or life-long Chronic Pain condition.
To both of you, the Goal is Acceptance, of being in constant, excruciating pain. Losing one's social, and possibly work, life. Being restricted in what tasks one can do. Losing friends/partners. Warding off Depression. I have suffered extreme Chronic Pain that has become worse year on year for 25 years with added complications like TN, Cluster Headaches and Cancer. I Accept that the damage done to my body causes some of the pain. Other factors cause other problems which I also have to Accept. But I don't do it meekly. I still see all my Doctors, even Neuros again this month, to see if there are any improvements over the pain/neuro meds I take. I also read when I can. Today I found out there may be a link between some of my Neuropathic problems and heavy use at work of Xylene and Toluene in the '80s. Work on Accepting your conditions, while fighting it every step of the way. Dave. |
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03-12-2015, 09:57 PM | #4 | ||
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Magnate
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I had dealt with headaches, back pain, etc. for several years; but still could lead a pretty active live. Since I had my spinal fusion/laminectomy over 8 years ago the world that I had known rapidly started to change. Continuing spine pain, along with Periphereal Neuropathy pain, Narcotic meds to help with the 24/7 pain, leading to bladder surgery with additional medical issues. I felt the depression deepening and not wanting to pick myself up. Just wanted to hid and cover myself under the blanket as a safe haven.
Thankfully, I realized all this would only lead to additional disability and depression which by my own actions was bringing me down. My biggest enemy was my dwelling on what I could no longer do instead of being grateful for what I am able to do. I still can do laundry; maybe a little slower and takes a few extra days. I can still put some meals together; not like the ones I use to enjoy making. I felt satisfaction at being to accomplish a whole list of things that were now done just differently. The biggest accomplishment was/is acceptance of my life as it is now instead of dewelling on how it once was. Of course, there are times when I feel a bit down; but don't stay there for long. Since it takes me longer to accomplish certain things; I don't have time to be on the "pity pot" for long. Also found other areas I now enjoy that I hadn't even thought of before. Gerry |
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"Thanks for this!" says: | alatini (05-12-2018), EnglishDave (03-13-2015), eva5667faliure (03-19-2015), Healthgirl (03-13-2015), Hopeless (01-12-2016), indigo (10-26-2015), RSD ME (01-13-2016), zinnia (01-12-2016) |
03-19-2015, 10:29 AM | #5 | |||
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Grand Magnate
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Quote:
it wasn't to long ago i was playing volleyball barefoot in the sand a 4 mile walk a day light weights more reps for definition i had a powerful body standing tall at 5' 9-1/2" tall at 145lb to 150lb no problems until i was in my latter 40's delivering a child natural at 38 carried her 42 weeks i don't know one night getting up from sleep to get ready for my evening job and thought i had a terrible stiff neck well after the pain becoming unbearable to the hospital we go ruptured disk bla bla bla neuropathic problems peripheral neuropathy hand and feet shot fibromyalgia that riddles my right side shoulder to waist keep coming to this beautiful helpful arena and may you not suffer as miracles do happen me
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"Thanks for this!" says: | EnglishDave (03-19-2015), RSD ME (01-13-2016) |
03-19-2015, 10:40 AM | #6 | |||
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Grand Magnate
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Quote:
the answer is that simple it is the truth some harder for other but we must strive for this truth all else will be easier to deal with it is what it is wishing all well
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03-19-2015, 10:42 AM | #7 | |||
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Grand Magnate
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Quote:
wishing you well me
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someone who cares eva |
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03-21-2015, 08:51 AM | #8 | |||
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Quote:
hi baba, Like dave, i am 20+ yrs in this and, as dave said, acceptance. As difficult as that seems right now. Keep fighting though, fix what you can fix, keep going for all the methods or treatments that ease your pain and your soul. Focus only on what is good in your life, do not look at the things you cannot change because you are wasting your very precious energy and time. It is so hard, i know, but cherish the people in your life that are still coming around and helping and being with you. Don't stew over the family and friends who maybe are not there for you. Losing my career was the hardest for me. Feeling productive was hard. I volunteered as i could. When i first lost my job, we gave up our house for a small apt so we could save money. We lived across the street from a hospital so i walked across the street to the volunteer dept, told them my story and my limitations and asked them if they had volunteer job for me. Three hours a week i worked in the family icu waiting room tending to, holding the hands and just trying to help the families who were distraught over their loved ones brought to the icu by car accidents or sudden severe illness. I was helping them, with all my limitations, i was still able to help someone and these people were so grateful for the help. Many were alone and elderly and crying. Holding someone's hand or an arm around a shoulder and kind,soft word was all i could offer but, it helped. Little did all these folks know, they were helping me learn, i did still have some value. The distraction of all this took my mind off my health and pain issues. You learn there is always someone worse off then you and you can help and that alone, helps your soul. Truly....i know it sounds corny, but it is true. I made some wonderful friends with that little hospital job, 3 hrs a week. There is a book given to me in 1994 when it was written called "a whole new life" by reynolds price about how he dealt with a life altering illness that turned his life upside down. He was a professor at duke univ, an author. And obviously, seeing a therapist to talk about the grief and loss. I not only went to a therapist but to a hypnotist who did hypnotize me and had me go back in my mind to an age when i was my happiest and healthiest....we went back yr by to the age of 25. He had me recall how i felt, my joy, my young healthy body, my frame of mind. He taught me that when i am at my lowest, to think about that time and oddly, that works. The mind is powerful, that is why meditation and guided imagery works. Go on youtube and there are many lovely guided imagery meditations with lovely music that are helpful. My best to you as you deal with this, diandra |
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"Thanks for this!" says: | bluesfan (03-21-2015), EnglishDave (03-21-2015), eva5667faliure (01-13-2016), ger715 (03-21-2015), RSD ME (01-13-2016) |
03-21-2015, 11:06 PM | #9 | ||
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Magnate
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Diandra, really liked your idea of volunteering at the hospital. I'm sure those you visited really appreciated. Just shows there are so many ways we can be useful; just have to give it our best. Learning new ways to work with the abilities we do have and not focus on what is gone only brings us down. Gerry |
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04-11-2015, 08:38 AM | #10 | |||
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Grand Magnate
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Loss
So deep that wonder emerged whether I would survive Body wracked by pain So visceral I screamed end on end until lapsing Unto the bliss of unconsciousness No more the athlete Career not only shambles, but evaporated as mist "Friends" in the profession turning away, Probably out of fear It could be catching Or They might feel it Or It is not honorable to watch one slip from vitality Alone, but for family, very closest of friends, Cash passes as though through a sieve Lasts a while Yet finally missing as though smoke from snuffed candle Home and possessions sold Thank God Brings some financial reprieve Food on the table Shelter But Pain overwhelmed yet still Docs Meds Surgery upon surgery upon surgery Disability Morose Sought escape None found SCS implant Some control over major pain But not all Could dance no more Hiking by wheelchair, not astride sturdy legs SPOUSE, my blessing encouraged me - grow Sought career once more Doors made fast , declining market, openings where? I dwelled in self pity, and too long for my health Near calamity THEN inspiration Reach out, outreach Connect Network SO MANY like me Without career, profession-less What about them? Started small group Compared notes Shared networking strategies Practiced skills Then One By One Each found revival of employment Self esteem restored, providing again Sweet And Even I, broken, yet capable Grasped opportunity And hope became promise morphed to work exploded into joy Truly NOT as lofty as once held in my career valise Yet.....enough.....and gratifying At long last Yes Still have pain Have had more surgeries Meds held at bay for breakthrough need Thankful for SPOUSE who encouraged, legion of medical pros Who helped And Counseling which centers my focus A path Now used oft with cane And my wheelchairs Which leads to me being whole My prayer for you, too, M56 |
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"Thanks for this!" says: | bluesfan (04-30-2015), Diandra (04-11-2015), EnglishDave (04-11-2015), eva5667faliure (01-13-2016), ger715 (04-11-2015), RSD ME (01-13-2016) |
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