I became seriously ill nearly 3 years ago. I live with very severe neuropathic pain which has been utterly debilitating. Within 6 weeks I could no longer work Drive or walk. that was in 2013. my life has been non-stop crisis sInce. I am treatment resistant and very few medications affect the pain which is over most of my body.

I have a neurological disorder as well. Both developed at the same time. I feel like I have had my life destroyed. There is little hope of returning to wellness and access to appropriate medical care has been very difficult. I live in a small country and have had to fly to 3 other hospitals to get help. There have been some very good health professionals along the way and also some appalling ones. I'm continuing to worsen. I've worked so hard throughout trying to rehab myself, exercise, diet, and much more. I've educated myself about my illnesses and been proactive throughout but the illness has ploughed on no matter what. I now have no specialist care having been discharged from a pain clinic who had phone appts with me for 10 months. There wasn't anything else they could do although I believe pain care here is very conservative. Reading what's available in the US makes me realise how limited it is here.

As I said I can no longer work. I had to pull out of university and 2 volunteer jobs I was passionate about. I'm housebound and in a wheelchair. I live alone.

What do you do when you have nothing left to try. When your resilience comes to an end? When there's no more hope?