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11-12-2015, 11:41 AM | #1 | ||
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Senior Member
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Dear indigo,
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As Lara inquired,... do you have any one for support and help? I am glad to see that you have reached out to NeuroTalk and I hope that we can be of some assistance. If nothing more, we are here to listen and sometimes that is of some help when we are feeling so defeated. You may be living alone, but you are not alone, ... you have an entire community here to be by your side whenever you wish to talk with us. Wishing you better days and better access to needed healthcare. |
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"Thanks for this!" says: | DejaVu (11-14-2015), eva5667faliure (11-13-2015), indigo (11-12-2015), Kitty (11-12-2015), Lara (11-12-2015), Littlepaw (11-12-2015), mrsD (11-12-2015), natkat126 (11-19-2019), PamelaJune (11-13-2015), vintagewine (11-13-2015) |
11-12-2015, 05:51 PM | #2 | |||
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Magnate
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Hi indigo,
Lara has made many practical suggestions and Hope has beaten me to what I would say - by reaching out here you have gained the ear and support of the Community we all belong to. That small connection can mean the World when all you feel is emptiness and despair. It may not be the physical help, nor the answers, you desperately need, but know that you are not alone, nor will you ever be alone as long as you come here. I understand the frustrations, the inability to function, the isolation. Even though I have family and my Ex in my life I can go weeks without an adult conversation. Disabilities, by their nature, are isolating at some level to many of us, being geographically isolated as well makes things much harder. I live in a rural area and since the brain lesion which caused the vision problems that stopped me driving, I have felt stuck. My Depression has worsened in line with this. My release is struggling to read and reply, where I can, here on NT. The acts of thinking and Posting have done more for me than my last 2 Therapists. Please try to alleviate your mental issues, in the interim, by talking to us - you really should pursue Therapy as an option. As for the physical side, try to follow Lara's suggestions. Wishing you comfort and ease, Dave.
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You and I are yesterday's answers, The earth of the past come to flesh, Eroded by Time's rivers To the shapes we now possess. The Sage - Emerson, Lake & Palmer. |
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"Thanks for this!" says: | DejaVu (11-14-2015), eva5667faliure (11-13-2015), indigo (11-12-2015), Kitty (11-12-2015), Lara (11-12-2015), Littlepaw (11-12-2015), mrsD (11-12-2015), PamelaJune (11-13-2015), vintagewine (11-13-2015) |
11-13-2015, 07:42 AM | #3 | |||
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Grand Magnate
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So sorry As many here I relate My life too changed over night Just lost my municipal job this past April Dear Father knows what a sweet job it was Today I have to settle for much less in healthcare as my insurance I am still grateful for does not pay anywhere near what my private jobs insurance covered Back to you We have some like you I and many others who are medication resistance it's a blow hard to take You even in a rural area Is there not a system in place for persons like yourself have help come to you It may not be as often I would imagine And imagine is all I can do We all suffer in our own ways But are united here A place that has never let me down Rather lifts us up Your status like Lara suggested Can you move your whole entire life closer to medical help Or move to Canada There are med my son needs to get from that country It is quite difficult to get decent doctors That take on medicine as a challenge But when it comes to the poor like me and my family it blows big time And it's now wonder we feel many times like the latter of your story And if I may Thank you for sharing Please your return is something we look forward too To know how a fellow sufferer who life has been changed forever My pain is something I do not welcome But it's bad consumed my entire morning Waiting for my med to come over me like a wave of a blanket over my body Until then I come on neurotalk and talk my life away as it once was and what my struggles are today Please let someone become your advocate As mine were my older children Not in my life right now But I always try and bring someone in my life My oncologist Whom I was just at pays such close attention even the absence of my immidate family Are you estranged from family and friends since becoming ill Like Lara says So many questions You take care as best you can God be with you Always Amen Love Me
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someone who cares eva Last edited by eva5667faliure; 11-14-2015 at 12:32 AM. Reason: Lots of typos |
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"Thanks for this!" says: | DejaVu (11-14-2015), EnglishDave (11-13-2015), indigo (11-13-2015), Lara (11-13-2015), Littlepaw (11-14-2015), PamelaJune (11-13-2015) |
11-13-2015, 02:14 PM | #4 | ||
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Legendary
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indigo,
I'm wondering about you and how you are feeling. |
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11-13-2015, 02:59 PM | #5 | ||
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Junior Member
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Dear Indigo,
I'm so sorry that you are having such a difficult and painful time. I was wondering if New Zealand has any clergy in various churches and social services agencies there, that would come to your home, due to your circumstances?? They would give you support and maybe some suggestions to help you . My heart and prayers are with you every day XO |
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"Thanks for this!" says: | DejaVu (11-14-2015), EnglishDave (11-13-2015), eva5667faliure (11-14-2015), indigo (11-13-2015), Lara (11-13-2015), Littlepaw (11-14-2015), PamelaJune (11-13-2015) |
11-13-2015, 10:41 PM | #6 | ||
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Junior Member
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thank you so much everyone for your kind and thoughtful answers that has meant so much to me. Sorry I haven't responded until now. You're right English Dave, I felt a lot less alone when I read what people had written. I'll answer a few of the questions that people have asked me to clarify my situation. I live in a town rather than a city but health services are still rather Limited particularly in the case of care for people with pain. hence the need to travel to 3 other regions to get basic care. by that I mean 3 weeks in a rehab Hospital and seeing pain specialists elsewhere as my own region does not even have any specialist services. as far as family goes I have frail parents who I was caring for before I became ill. My siblings live overseas. sorry I will have to leave this message as I am mainly using voice activation because my hands are very painful and I have photosensitivity, part of my neurological illness. Just gets too difficult to write. thank you so much to all of you. It means a lot to me that you took the time to reply
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"Thanks for this!" says: | bluesfan (11-13-2015), DejaVu (11-14-2015), EnglishDave (11-14-2015), eva5667faliure (11-14-2015), Lara (11-13-2015), Littlepaw (11-14-2015) |
11-14-2015, 12:38 AM | #7 | |||
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Senior Member
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Hi Indigo,
I am sorry you have been experiencing such a severe pain exacerbation again. I apologize for my delayed response. I have been attending medical testing and have not been able to sign in here daily. I love the many responses given to you here, as they are so genuine, so full of love, of thought and of concern. I have responded to your PM prior to seeing this post. I will cut this short for now, since we have been in touch via PM. Redundancy is boring. Lol. I hope there is more for you, in the way of care, comfort and companionship. Please know you are loved. DejaVu
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May we have the courage to live from our hearts, to allow Love, Faith and Hope to light our paths. . . . |
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11-14-2015, 09:55 PM | #8 | ||
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Junior Member
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just to finish answering the questions and ideas people raised I am very fortunate to have a caregiver who comes in in the morning and in the evening as well. She is lovely and I know how lucky I am, if I did not have her I would not be able to live here at all. And thank you Lara for the suggestions about Lifeline and Health line. I have used both of these numbers in the past Everytime I ring Healthline they want to ring an ambulance and in 2 cases have done so. However the emergency department is not the place for me now and the hospital does not cater well for chronic conditions.
EnglishDave I agree getting my mental health in a better space would be helpful but that would be no easy thing. I've had very serious depression since my teens and am now in my late 40s. All my adult life I've worked hard to manage it and was what they call 'high functioning ' but many of my helping tools were around being able bodied. So I walked in the hills, ran on the beach, just got out in nature. ....it was always where i felt best. I have to develop new tools I guess. Anyway thanks again for everyone's thoughts. |
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