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02-29-2016, 09:45 PM | #1 | ||
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Junior Member
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hi thank you everyone for your thoughts and your support. it means a lot to me. I felt a bit silly the next day when I read what I'd written. I seem to say the same thing over and over I guess I do feel really frustrated. I, like many of you, have invested so much time and money trying to get better or at least improve and no matter what, things don't seem to get better.
I like the quote that you remember what life was like before. I find it hard to remember. But one moment for me this week was I went and swam at the local pool and the moment I'm in the water all the pain goes and I can even swim. Even though I'm very weak now I managed to do 6 lengths and I felt the way I used to and my body was free. I can only go fortnightly because of the chemicals but every time I came up for air I had a grin on my face ( : |
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"Thanks for this!" says: | bluesfan (03-01-2016), Lara (02-29-2016), Littlepaw (03-01-2016), PamelaJune (03-01-2016), PurpleFoot721 (03-01-2016), RSD ME (03-12-2016) |
02-29-2016, 10:08 PM | #2 | |||
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Legendary
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It's good to hear back from you.
Water is wonderful therapy that's for sure. I'm glad you were able to get to the pool and feel that calming relief even for a moment. Take care there. |
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"Thanks for this!" says: | indigo (03-01-2016), Littlepaw (03-01-2016), PamelaJune (03-01-2016), PurpleFoot721 (03-01-2016), RSD ME (03-12-2016) |
03-01-2016, 06:45 AM | #3 | |||
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Grand Magnate
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Quote:
This is when my body feels its best I am so looking forward to the pool Members we always are BUT YOU ARE RIGHT YOU HAVE BEEN THE ONLY PERSON here to mention that It is the weightlessness I am still very careful As I enter slowly I can feel the pressure crushing But it is the BEST feeling for this broken body All the best in you search for your relief Love Me
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someone who cares eva |
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"Thanks for this!" says: | indigo (03-01-2016), Lara (03-01-2016), Littlepaw (03-01-2016), PamelaJune (03-13-2016), PurpleFoot721 (03-01-2016), RSD ME (03-12-2016) |
03-01-2016, 06:06 PM | #4 | |||
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Senior Member
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I am so glad you got out in the pool! Having that bit of time where you are without pain and feeling free is so very restorative. 6 lengths is great.
If you get tired of laps you can get a buoyancy belt and just swish around too. I found this both relaxing and therapeutic for working out little grievances my body had with me when I was on crutches. Are you swimming inside or outside? I find the chemicals noxious too and do much better in an outdoor pool when available since there isn't the fume build up. It's nice to hear back from you. I'm happy to hear you're feeling better.
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Littlepaw Shine Your Bright Light |
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"Thanks for this!" says: | eva5667faliure (03-02-2016), indigo (03-01-2016), Lara (03-01-2016), PamelaJune (03-02-2016), PurpleFoot721 (03-02-2016), RSD ME (03-12-2016) |
03-01-2016, 10:00 PM | #5 | ||
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Junior Member
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Hi Littlepaw. Thanks for your encouragement. I've been swimming indoors. In New Zealand we're heading into winter. The chemicals are proving very problematic. Two years ago I went to a rehab hospital and we were taken to a 7 foot deep pool 3 times a week. it was heaven and was not treated in the way the pool where I live is. unfortunately it's too far away for me to go unless I went and stayed there. the staff used to have trouble getting me out ( : I'd love it if we had a pool like that here.
The other thing I'm determined to do is get back on a horse. The medical people don't like that but too bad. I'm in a wheelchair and can walk only a few steps but maybe they could tie me on! My hands and feet are where the most severe pain is so it will be very challenging to do it but when I think about it it makes me feel happy. I found a place that do therapy work with horses. I'll keep you posted. ( : |
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"Thanks for this!" says: | bluesfan (03-01-2016), eva5667faliure (03-02-2016), Lara (03-12-2016), Littlepaw (03-02-2016), PamelaJune (03-02-2016), PurpleFoot721 (03-02-2016), RSD ME (03-12-2016) |
03-01-2016, 11:57 PM | #6 | ||
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Member
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Hi indigo
You inspired me to go to the pool today - first PT in two months - just a short stint - like you the chemicals set my PN off but still glad I went. |
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"Thanks for this!" says: | eva5667faliure (03-02-2016), indigo (03-03-2016), Lara (03-12-2016), Littlepaw (03-02-2016), PamelaJune (03-02-2016), PurpleFoot721 (03-02-2016), RSD ME (03-12-2016) |
03-12-2016, 10:26 PM | #7 | ||
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Senior Member
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i'm so sorry you are suffering so much on a daily basis. i also have a very painful chronic illness too with no cure called rsd/crps. i've had it for five years and one month now and i struggle every day to just get out of bed shower dress and eat. its not the active life i used to have prior to rsd, but i figure there is a reason this happened to me and i try to use the pain i feel every day to help educate others on this rare condition as well as try to help others who are suffering with chronic pain by just letting them know i am here if they need a shoulder to lean on. it is never too late to live your life over again. it may be different then is was before you got sick but you still can have a purpose. the mere fact that you get out of bed each day and are reaching out to others on NT shows that you still have a purpose and you still matter in this life we live. making the most of what we have and helping others one day at a time is what gives me the strength to keep trying. you can do it too. you never know how strong you are until being strong is the only choice you have. i read that somewhere and it helps me keep going. i hope you feel better soon both physically and emotionally. i hope always remember that you matter in this world! soft hugs my friend.
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RSD ME . |
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"Thanks for this!" says: | bluesfan (03-12-2016), eva5667faliure (03-15-2016), indigo (03-25-2016), Lara (03-12-2016), PamelaJune (03-13-2016), PurpleFoot721 (03-13-2016) |
03-15-2016, 06:43 AM | #8 | |||
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Grand Magnate
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Daniel was approached a second time in his life
While lying on the ground exhausted in his endeavors in his life and then an appearance when he could no longer move forward He was so weak And was told "You are valued" "Peace be to you" Danial thought how could this be possible He could speak He was told "Be strong" "Be really really" And was replenished In his strength It is not easy We must not give up ever Especially like what my father did This I so do know Sometimes all one needs is just to have some to just listen Not say anything But just listen My 18 year was on the bus with her older sibling My child Granddaughters mother This morning My mechanical woes kicked in All weather related It's cloudy and thick with clouds Humidity killing me Barometer pressure Some get it Oh so can't wait to the pool And dry days She said as she came in with a hot water bottle for my back She was thinking on the bus as her one foot began to fall asleep Bad circulation She said it was so painful coming back Said if I could take one of the pains you suffer from She wouldn't know what to pick It is what I have to offer Hope it helps As it was given to me Love Me
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someone who cares eva |
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