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spontaneous CSF leak

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Old 03-03-2014, 07:49 PM   #51
djflake
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Join Date: Mar 2014
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Default Do Blood Patches Work?

I read a question from someone about not hearing many stories about blood patches working, the truth of it is in most cases they do work.

The reason you don't hear about them on these forums is because after that horrible headache is gone you generally don't continue to research.

That said the people like myself that have had bad luck with blood patches either have other reasons why they don't work that they know about, or possibly have not yet figured out why it is not working. It seems that it is such a small percentage of people that fail overall, that not many people can find someone versed or even following this problem, not to mention that there are so many variables in each of those of use that have had them fail multiple times are far and wide.

If my case would allow me to continue having blood patches even though the procedure is quite painful while it is happening, I would do it again with hopes of relief.

Best of luck to all of you!
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Old 03-11-2014, 03:33 PM   #52
sowoo
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Join Date: Mar 2014
Location: Wash DC
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Default

DJFLAKE, thank you for a glimmer of hope. I have been leaking for 79 days now with one failed blood patch and losing hope. Diagnosed with 5 lumbar leaks in Houston on 1/4/14 over holidays while home visiting parents. Back on E. Coast and neuros say they don't see the leaks that Houston "saw." Meanwhile I continue in horrible pain and can't go into work. Trying to figure out next steps. But again, thank you for a glimmer of hope that another blood patch might work. I can't find any spontaneous leaker on the internet or boards that say they were fixed.
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Old 02-05-2019, 04:05 PM   #53
Mack Pol
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Join Date: Mar 2018
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Default I read on Polish doctors forum

That CSF should go back is heal it self or need an operation...
Coffee helps from big headaches cos push blood pressure up to head and squeezing out liquid, other wise air gets suck in and bacteria triggers super Headaches!?!? Hallelujahs
I'm just discovered I have an leak for 2.5 years..and doctor my doctor suck!

Regard Mac
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