Hi
I have posted on here before some time ago and I thought i would try again.
I am desperately searching for any private or NHS neuroradiologists in the UK that deal with many leakers and are excellent in carrying out and reading CT myelograms.
I now am at the point where I do not have any consultant anywhere in the UK helping me and am fighting to get a referral to the states to see Dr Linda Gray through the Exceptional Treatments Panel of the NHS.
On the other hand if I can get a CT myelogram done here and get the test results to her to read then i will have yet more of an arguement to state that the NHS are failing me miserably.
I suffer all day every day and by evening am suffering so much I cannot even find the words to describe it.
Laying down is my ownly relief and I am now 4 years into this!
I have been rejected by london, plymouth, bristol and do not know where else to go. I am also a member on csfleak and fb and bt in the same name and really would like to talk to other UK sufferers.
Thanks for reading
Sarah