Wow thought I was crazy!
 

Wow guys thought I was crazy! I'm going through the same thing. For months I suspect I've had a Csf leak but no one will listen. I was 218 lbs and full of muscle. I have had 7 MRI's a CT scan and been to 4 different neurologists. I have lost 22 lbs and feel like a shell of myself. I have twin 5 year olds and find it hard to even get up and play w them although I tough it out and do. They have now diagnosed me w New Daily Persistent Headache Syndrome and want to give me Botox. I am again pushing on to be evaluated for a CSF leak. So frustrating. I'm taking Percocet to survive and tell the doctors that I don't want to become addicted and no one seems to care. Feel like I'm losing it! Will keep everyone posted on progress. Don't know what the hesitation is for them to look for CSF leak! Ronnie

Hello guys,

I'm having the same sort of issues, headache, tinnitus and kind of dizziness that hard to explain, do you guys have any news about that?

Can a CSF Leak be totally internal i.e. not having the metallic taste in your mouth or fluid running from your nose?

Hello, I heard straining can sometimes cause a leak if the dura is weak. How are you now?