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02-08-2013, 11:23 PM | #1 | ||
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A doctor in Japan found spontaneous CSF leak from my wife's lumber and neck.
She had 1st blood patch and improved her headache and other symptoms she had. But it seems spinal fluid leak is still happening and headache came back 2 weeks after the blood patch. I brought back her contrasted MRI and CT results from Japan. I'm trying to find a good doctor for spontaneous CSF leak in San Francisco - bay area, so she can continue the treatment locally. Does anyone know a good doctor for spontaneous CSF leak in SF bay area? Regards |
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03-13-2013, 06:33 PM | #2 | ||
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03-14-2013, 01:00 PM | #3 | ||
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I recently found doctors locally in San Francisco, CA. UCSF Precision Spine and Peripheral Nerve Center, Dr. Hess. We are currently trying to get an appointment. If it doesn't go anywhere, I will definitely contact him! Thanks! |
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05-15-2013, 07:08 PM | #4 | ||
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Hope, Health, and Happiness, Berthabutt |
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09-22-2013, 10:03 PM | #5 | ||
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03-10-2014, 07:00 PM | #6 | ||
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03-11-2014, 03:29 PM | #7 | ||
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BERTHABUTT, was your surgery due to a spontaneous leak? I am a relatively new spontaneous leaker (79 days). Had a failed blood patch on 1/4/14 and have been bounced around neuros who don't believe the nueroradiologist in Houston who found the leaks (while I was home for holidays). I have been reading about Dr. Schievink and Dr. Gray, but can't find any spontaneous leakers they have "fixed." Starting to give up hope. Thank you for any guidance. Sara
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03-12-2014, 12:04 PM | #8 | ||
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Dr. Schievink handles any kinds of CFS leaks. I have had several. They are not sure all have been spontaneous. No one really knows for sure. Don't give up hope. Life can be good again. Send your info and have him see if he can help you. He may not be for everyone but he was for me. I did not have blood patches because he said they probably wouldn't have worked for me and I was from Florida. So I had surgical repairs. The last being in May of 2012. Hope, health, and Happiness, Berthabutt |
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03-14-2014, 02:49 PM | #9 | ||
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Thank you...
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10-10-2020, 12:09 AM | #10 | ||
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Hi, my husband may have a CSF leakage, since he has a severe positional headache and doctors didn't find anything from normal CT & MRI. Did you end up seeing Dr. Hess in UCSF? How was the experience? I really appreciate it if you can tell me more about your experience. We live in bay area.
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