Originally Posted by Linda Shambaugh (Post 823568)

I have had two spinal taps and four blood patches and still have not been fixed. I have been down (90% bedridden) for over 5 months. After every blood patch I feel better for about two weeks, with only slight discomfort, and then it gets worse. I have had a billion MRI's, CT scans, CT Myelogram, etc. and they can't find the leak. My last blood patch we drove & took a train 3,000 miles so that I could lay flat to see Dr. Schievink. He did a full volume blood patch. When we left LA I felt good, but within a few days started feeling bad again. This time with even greater pain in my lower back. He came highly recommended, but I would have to say that he has been hard to reach to get answers. I don't know where to turn from here....

sleepless in st. pete

Originally Posted by baileypumpkin (Post 778895)

Who is the Philli doctor...been leaking for 8 years..I'm 25 and in NY

Originally Posted by Lindsey28 (Post 750655)

Hi. Just read your post about leaks. I know a great doctor in Philadelphia who can diagnose your issues. And then another in LA who does the surgery that fixes them I was told he was the top doctor in the CSF area. Let me know if you'd like more information.