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Old 11-15-2011, 11:42 AM #21
NewToBlog NewToBlog is offline
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Default Finding the leak

Quote:
Originally Posted by Linda Shambaugh View Post
I have had two spinal taps and four blood patches and still have not been fixed. I have been down (90% bedridden) for over 5 months. After every blood patch I feel better for about two weeks, with only slight discomfort, and then it gets worse. I have had a billion MRI's, CT scans, CT Myelogram, etc. and they can't find the leak. My last blood patch we drove & took a train 3,000 miles so that I could lay flat to see Dr. Schievink. He did a full volume blood patch. When we left LA I felt good, but within a few days started feeling bad again. This time with even greater pain in my lower back. He came highly recommended, but I would have to say that he has been hard to reach to get answers. I don't know where to turn from here....

sleepless in st. pete
Did you do MRI with contrast?
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Old 09-27-2012, 02:17 PM #22
celesteandjoe celesteandjoe is offline
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Quote:
Originally Posted by baileypumpkin View Post
Who is the Philli doctor...been leaking for 8 years..I'm 25 and in NY
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Originally Posted by Lindsey28 View Post
Hi. Just read your post about leaks. I know a great doctor in Philadelphia who can diagnose your issues. And then another in LA who does the surgery that fixes them I was told he was the top doctor in the CSF area. Let me know if you'd like more information.
Hi Lindsey...could you give me the name of the Philli doc? Looking for one desperately to help me with my cranial leak...thank you Celeste
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Old 11-02-2012, 10:05 AM #23
TinkerbellMorgan TinkerbellMorgan is offline
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Default Spontaneous leaker

Hey guys, finally found a post where people have similar experiences! I'm 20 and I've been bedridden for 6 months now, in and out of hospital with endless tests and finally diagnosed with a spontaneous CSf leak... after a long painful wait I've got my first blood patch arranged for this Wednesday. I hope it helps so much I cannot carry on like this!
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Old 03-14-2014, 10:48 AM #24
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Linda,
Are you still out there? Did you finally get sealed up and if so, by whom?
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