FAQ/Help |
Calendar |
Search |
Today's Posts |
|
10-01-2011, 12:24 PM | #1 | ||
|
|||
Junior Member
|
I had this surgery (L5 S1) a year ago and since then have had these unpleasant sensations that you all describe: pressure in the ears and temples, a lot of ringing in the head. Once the sensations were so strong, I passed out for 5-6 seconds. Several times mentioned these symptoms to both my GP and my neurosurgeon and they wouldn't say anything. Finally, last week when I had a post-surgery MRI they saw a big (tennis ball size) mass between my spine and the muscles... Now I need to schedule a surgery for the leak. I'm really concerned now not to have it again as I don't even know why I had it in the first place. Some people mentioned caffeine here. Does it really help? I thought I didn't strain myself and didn't lift any heavy things after the surgery, and I still had the leak...
|
||
Reply With Quote |
10-02-2011, 11:55 AM | #2 | ||
|
|||
New Member
|
Quote:
|
||
Reply With Quote |
10-04-2011, 12:57 PM | #3 | ||
|
|||
New Member
|
Quote:
|
||
Reply With Quote |
10-04-2011, 05:13 PM | #4 | ||
|
|||
New Member
|
Hello all. I have had a chronic CSF leak for over 16 years. Have rips in my sheniod sinus. I have had 3 unsuccessful transnasal endoscopic surgeries to try and repair.
|
||
Reply With Quote |
10-09-2011, 05:55 AM | #5 | ||
|
|||
New Member
|
I cant believe there are so many people living with this condition for years. I am convinced I have a CSF leak since a craniotomy to remove a benign brain tumour in March. Neurologists agree but no-one seems to be able to actually find anything. Have been referred to an Ear Nose and Throat consultant now - is that usual? Am lying in bed today having felt really dizzy for the past 3 days. My main worry of course is contracting meningitis - at least knowing there are so many people living with this for years means there is a chance I wont get it. Does anyone know the statistics for contracting meningitis with a CSF leak?
|
||
Reply With Quote |
10-17-2011, 11:33 AM | #6 | ||
|
|||
Junior Member
|
Had my surgery four days ago. Everything went fine, they patched the dura and I felt great for 3 days. But today I woke up with the familiar ringing in the ears. Don't really know what to do: should I call the surgeon and go back to hospital? Or should I stay in bed? I will see him next week to have the staples out. I am trying to find something to help dura heal. Does caffeine help? What about enzymes? Wobenzym or vitalzym. Did you try them?
|
||
Reply With Quote |
11-10-2011, 12:19 PM | #7 | ||
|
|||
New Member
|
I have had two spinal taps and four blood patches and still have not been fixed. I have been down (90% bedridden) for over 5 months. After every blood patch I feel better for about two weeks, with only slight discomfort, and then it gets worse. I have had a billion MRI's, CT scans, CT Myelogram, etc. and they can't find the leak. My last blood patch we drove & took a train 3,000 miles so that I could lay flat to see Dr. Schievink. He did a full volume blood patch. When we left LA I felt good, but within a few days started feeling bad again. This time with even greater pain in my lower back. He came highly recommended, but I would have to say that he has been hard to reach to get answers. I don't know where to turn from here....
sleepless in st. pete |
||
Reply With Quote |
11-15-2011, 11:42 AM | #8 | ||
|
|||
Junior Member
|
Quote:
|
||
Reply With Quote |
03-14-2014, 10:48 AM | #9 | ||
|
|||
Junior Member
|
Linda,
Are you still out there? Did you finally get sealed up and if so, by whom? |
||
Reply With Quote |
10-19-2011, 02:33 PM | #10 | ||
|
|||
Junior Member
|
Quote:
Caffeine? Doesn't make a difference to me... Lifting things? Sometimes, it just doesn't matter, you're gonna get the leak no matter what you do. I earned a couple of leaks after a stepped down funny off of a ladder one day. |
||
Reply With Quote |
Reply |
|
|