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10-18-2006, 08:27 PM | #1 | ||
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Hey,
Thought I would post this first thread. On the old site I was jbarsz...and have been suffering from CSF leaks for 4 years. Anyone out there?? |
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10-28-2006, 11:37 PM | #2 | ||
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Once in awhile, my ears seem to have something comming out of them, when I put my fingers to my ears, the fingers are faintly moiste, and I make sure my hands are free from any moisture beforehand. |
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03-06-2011, 08:09 PM | #3 | ||
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Hi. Just read your post about leaks. I know a great doctor in Philadelphia who can diagnose your issues. And then another in LA who does the surgery that fixes them I was told he was the top doctor in the CSF area. Let me know if you'd like more information.
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06-14-2011, 11:18 PM | #4 | ||
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Who is the Philli doctor...been leaking for 8 years..I'm 25 and in NY
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06-14-2011, 11:19 PM | #5 | ||
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8 years..where is the leak?
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08-07-2011, 12:28 PM | #6 | ||
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Junior Member
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08-19-2011, 04:28 PM | #7 | ||
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Today, I am still feeling pressure in my head, ringing in my left ear. It all started about 34 days ago - I began vomiting, felt as though I had the flu. I had never felt this sick in my life. About 10 days later, got this HORRIBLE headache; however, it would go away when I laid down. I saw two neurologists who prescribed me different meds, 1 hospital stay---diagnosed with "migraine".
I went days more with pain at home because I thought "hey, I have a migraine!" Thankfully, I listened to my body and went to a different hospital. I was told by a third neuro that I had what they call a csf leak. I was admitted, numerous tests ran (blood work, MRI, et cetera). The neuro asked me if I had any recent trauma...after jogging my mind realized the day before I became sick I saw a chiropractor who did the whole back and neck manipulation. MRI never showed actual leak, but clinically doctors made the determination that I had one. One blood patch done, spent 1 week in the hospital, am home now but still feeling strange---pressure like feeling in head, and some pains which come and go, but thankfully I can stand an sit up without being in tremendous pain. I am only 29 years old, I don't smoke, I am healthy; going through this has made me appreciate life so much more. I am not sure if anyone has gone through what I have, but if you have I feel your pain. I might have to have another blood patch done, but neuro is giving me a week to see if I fully recover. |
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09-23-2011, 09:41 PM | #8 | ||
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not actually diagnosed but being treated as if I have a leak... all started aug 2, 2011 for me =/
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10-01-2011, 12:24 PM | #9 | ||
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I had this surgery (L5 S1) a year ago and since then have had these unpleasant sensations that you all describe: pressure in the ears and temples, a lot of ringing in the head. Once the sensations were so strong, I passed out for 5-6 seconds. Several times mentioned these symptoms to both my GP and my neurosurgeon and they wouldn't say anything. Finally, last week when I had a post-surgery MRI they saw a big (tennis ball size) mass between my spine and the muscles... Now I need to schedule a surgery for the leak. I'm really concerned now not to have it again as I don't even know why I had it in the first place. Some people mentioned caffeine here. Does it really help? I thought I didn't strain myself and didn't lift any heavy things after the surgery, and I still had the leak...
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10-02-2011, 11:55 AM | #10 | ||
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