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-   -   Doctors good at dxing CSF leak? (https://www.neurotalk.org/csf-leak/59605-doctors-dxing-csf-leak.html)

tom1019 02-08-2013 02:38 PM

spontaneous CSF leak
 
Hello,

I'm looking for a doctor who can treat spontaneous CSF leak in San Francisco - Bay area. A doctor in Japan found spinal fluid leak from her lumber and neck.

She had 1st blood patch and her condition improved a bit, but seems that spinal fluid is still leaking and she would like to continue the treatment in the US.

Does anyone know a good doctor who can treat this in bay area?

Regards

sowoo 03-14-2014 04:01 PM

Ken, I am new to the forum and haven't seen
Anymore posts from you. Are you still sealed up?

hiatthome2 06-01-2015 09:02 PM

anyone heard of csf being blocked?
 
I have a different issue but can't find anything close so am posting here. My problem appears to be something in my spine that shows up whit on ct mylogram is lining both sides and has completely blocked fluid from flowing at l3. This basically leads to a higher level of csf causing severe back and head pain. Have you ever heard of the white stuff? Do you know anyone that specializes with csf in the Midwest? I live in Nebraska.


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