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Doctors good at dxing CSF leak?

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Old 02-08-2013, 01:38 PM   #11
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Default spontaneous CSF leak


I'm looking for a doctor who can treat spontaneous CSF leak in San Francisco - Bay area. A doctor in Japan found spinal fluid leak from her lumber and neck.

She had 1st blood patch and her condition improved a bit, but seems that spinal fluid is still leaking and she would like to continue the treatment in the US.

Does anyone know a good doctor who can treat this in bay area?

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Old 03-14-2014, 04:01 PM   #12
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Location: Wash DC
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Ken, I am new to the forum and haven't seen
Anymore posts from you. Are you still sealed up?
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Old 06-01-2015, 09:02 PM   #13
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Default anyone heard of csf being blocked?

I have a different issue but can't find anything close so am posting here. My problem appears to be something in my spine that shows up whit on ct mylogram is lining both sides and has completely blocked fluid from flowing at l3. This basically leads to a higher level of csf causing severe back and head pain. Have you ever heard of the white stuff? Do you know anyone that specializes with csf in the Midwest? I live in Nebraska.
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