Go Back   NeuroTalk Support Groups > > >

Doctors good at dxing CSF leak?

Reply
 
Thread Tools Display Modes
Old 11-12-2008, 12:46 PM   #1
Laurel6123
New Member
 
Join Date: Nov 2008
Posts: 1
Default Doctors good at dxing CSF leak?

My sis has a CSF leak, I think. The docs here in Lewiston have all given up on her. We're pretty much desperate-the last doc kicked her out of the office saying there's nothing wrong, just go to the pain clinic.

Does anyone have a good doc? We're in Idaho-She can't travel really far-but Wa, OR, MT, maybe a little further?

She can't work, but hasn't been fired-yet. I'm really worried about her-shes only 23.

Any help/ideas? Please??

Thank you!
Laurel6123 is offline   Reply With Quote
Old 11-13-2008, 09:06 AM   #2
vini
Member
 
vini's Avatar
 
Join Date: Aug 2008
Location: some were over the rainbow
Posts: 552
My Mood: Doctors good at dxing CSF leak?
Default hi

hi

Dr. Robert Wharen of Mayo Clinic, Jacksonville

Dr. Wouter I. Schievink,
Maxine Dunitz Neurosurgical Institute,
Cedars-Sinai Medical Center,
8631 West Third Street,
Suite 800E,
Los Angeles, CA 90048
Office (310) 423-7900
Fax (310) 423-0810
schievinkw@cshs.org

these doctors are best maybe worth a plane trip can give you more help if you decide to go to them were dose she think she is leaking
If you want to make an appointment or get more information about seeing Dr. Schievink, the person to call is:
Cherry Sanchez (she's his administrative assistant )
310-423-0814


kind regards vini
__________________
the light connects the many stars, and through the web they think as one, like god the universe we learn about our self's, the light and warmth connect us, the distance & darkness keep us apart
.
vini
.
vini is offline   Reply With Quote
Old 09-04-2009, 11:46 AM   #3
bstone
New Member
 
Join Date: Sep 2007
Posts: 2
Default

Dr Linda Gray at Duke Univ Med Center
Dr David Adams, chief of neurology, Univ of Miami Dept of Neurology
bstone is offline   Reply With Quote
Old 02-03-2011, 01:42 PM   #4
LuckyPeter
Junior Member
 
Join Date: Feb 2011
Posts: 7
Default

I have to give a 100% Patient Satisfaction Rating to Dr. Linda Gray/Leithe at Duke University Medical Center. She literally saved my life and has gone to great lengths to continue to provide follow up care the past two years.
LuckyPeter is offline   Reply With Quote
Old 06-06-2011, 11:37 AM   #5
lkindred
New Member
 
Join Date: Jun 2011
Posts: 1
Default

Peter did you have CSF if so I could use some info for my son. Thanks
lkindred is offline   Reply With Quote
Old 10-04-2011, 02:26 PM   #6
Kemaxwel
New Member
 
Join Date: Oct 2011
Posts: 4
Default Love Dr. Gray!

Quote:
Originally Posted by LuckyPeter View Post
I have to give a 100% Patient Satisfaction Rating to Dr. Linda Gray/Leithe at Duke University Medical Center. She literally saved my life and has gone to great lengths to continue to provide follow up care the past two years.
Dr. Gray is a great doctor, I talk to her more than I talk to a lot of my friends. We have had quite the adventure over the past few months. My Dura was a mess of leaks, she worked me in the day before she was going on vacation and then called me every day while she was on vacation to see how I was feeling after the patches. A one in a million doctor! I also give her a 100% Patient Satisfaction Rating plus 10 bonus points for going above and beyond.
Kemaxwel is offline   Reply With Quote
Old 10-19-2011, 02:49 PM   #7
LuckyPeter
Junior Member
 
Join Date: Feb 2011
Posts: 7
Default

Quote:
Originally Posted by lkindred View Post
Peter did you have CSF if so I could use some info for my son. Thanks
Sorry for the delayed response. Yes, I had CSF. To be specific I had Spontaneous CSF (Spontaneous means that leak occurs for no apparent medical reason. There is a great Wikipedia article on it.
**

In my case, I was diagnosed after I my my family Dr. grew tired of my complaining of headaches over the course of one Fall. The "LuckyPeter" name comes because my GP sent me for a MRI where they imaged a brain bleed because I had lost so much cerebrospinal fluid... To be more specific I have spontaneous intercranial hypotension brought about by my CSF leaks.

Can you tell everyone a little more about your son?

Shameless Plug: When I finally got to Dr. Gray @ Duke I was in terrible shape. She found 26 or so leaks that first time. I've now had 12 procedures in the past almost three years.
LuckyPeter is offline   Reply With Quote
Old 10-21-2011, 04:06 PM   #8
cmurphy
New Member
 
Join Date: Oct 2011
Posts: 3
Smile Dr. Linda Gray DUKE UMC is the best!

Quote:
Originally Posted by Kemaxwel View Post
Dr. Gray is a great doctor, I talk to her more than I talk to a lot of my friends. We have had quite the adventure over the past few months. My Dura was a mess of leaks, she worked me in the day before she was going on vacation and then called me every day while she was on vacation to see how I was feeling after the patches. A one in a million doctor! I also give her a 100% Patient Satisfaction Rating plus 10 bonus points for going above and beyond.
I have to agree with you about Dr. Gray. She has my cell number memorized from calling me so often over the past 2 1/2 years. She is patient-focused and results-driven beyond anything I've ever seen or experienced.
cmurphy is offline   Reply With Quote
Old 11-06-2011, 02:42 PM   #9
sparkle
New Member
 
Join Date: Nov 2011
Posts: 2
Smile How are you now?

Quote:
Originally Posted by cmurphy View Post
I have to agree with you about Dr. Gray. She has my cell number memorized from calling me so often over the past 2 1/2 years. She is patient-focused and results-driven beyond anything I've ever seen or experienced.
Hello, I was diagnosed with a csf leak in August and since then we have discovered blood in my brain because of the lack of support for my brain. I would like to know if your treatments with Dr. Gray have been able to seal your leak(s)? If they have been sealed, have you had any new leaks since then? Thank you for your help!!!
sparkle is offline   Reply With Quote
Old 11-23-2011, 06:39 PM   #10
Veronica Els
New Member
 
Join Date: Nov 2011
Posts: 1
Default

I can only say wonderful things about Dr. Linda Gray at Duke. She is wonderful and educated me on my condition and what to expect. She checks on her patients frequently. Duke staff was equally professional and helpful.
Veronica Els is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Good doctors in the Washington state area GJmom Reflex Sympathetic Dystrophy (RSD and CRPS) 15 10-21-2014 02:45 PM
Hi everyone - CSF Leak Mom PinksMommy New Member Introductions 2 10-25-2010 06:29 PM
CSF Leak tired New Member Introductions 4 11-28-2007 06:21 PM
Ruling may unlock key data on doctors...A Good Thing or a Bad Thing? Stitcher Parkinson's Disease 0 08-31-2007 07:54 PM
csf leak bailey New Member Introductions 4 03-02-2007 10:58 PM


All times are GMT -5. The time now is 02:32 AM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2018 DragonByte Technologies Ltd.

All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy